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yogaluz
USA
81 Posts |
 Posted - 03/02/2012 : 09:45:13
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Hi All,
I received some very bad news yesterday and could use some input. I have been struggling with sinus issues for a few years now so I finally went to an allergist thinking that was the problem. Based on what I told her and my symptoms, she decided to do some blood tests to look at my immune system. I had my follow up yesterday and was told that I have "common variable immune deficiency" (CVID) which basically means that I don't create antibodies to bacteria. This condition usually manifests in chronic and severe respiratory infections (I did go through a two year bout with chronic bronchitis and now the sinus infections for about 3 years). As if this weren't scary enough, people with this condition have a 25% chance of developing an autoimmune disorder and are more likely to develop malignancies (stomach cancer in particular).
Needless to say, I'm pretty freaked out (though not as badly as I would have been before I'd started on my TMS journey). I'm slowly learning to control my health anxiety but now THIS. These results explain all the symptoms I've been struggling with for about 10 years... GI issues (common problem for CVID folks), dizziness which I always thought was related to my sinuses due to fluid build up in my ears, and most recently very achy joints (I've avoided seeing a rheumatologist because I couldn't bare hearing I had an autoimmune disorder).
I really don't know what to do with this information. The lab results were right there in front of my eyes and science doesn't lie. I'm now left wondering if, beyond the initial bout with severe back pain which I know was TMS, that all my suffering has been due to a medical condition that is irreversible (well, they put me on antibiotics for now and then I am also eligible for antibody replacement therapy which I think I should do).
Honestly, I'm feeling absolutely hopeless. I've been such a strong believer in TMS and have been able to control my health anxiety through those beliefs and now they're shattered. Anyone else receive such a diagnosis or have knowledge of this condition? I could really use some encouragement....
pain is inevitable, suffering optional |
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marsha
252 Posts |
Posted - 03/02/2012 : 12:38:41
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Try not to freak out. It is what it is and it is happening to you. You have no choice other than to deal with it.
This winter I developed Breast Cancer. I thought I would never be able to deal with something like that. Surprisingly , I did very well. Having and dealing with TMS has taught me to just accept things I have no control over and deal with the things I can control.
Check this diagnosis out with another doctor. Then, treat the illness with the prescribed tretments.
Good luck.
marsha |
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taxman
Canada
20 Posts |
Posted - 03/02/2012 : 13:09:33
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Hang in there and tell yourself you can handle it and will be just fine. You are alive and well - these 'symptoms' are just annoyances that you can reduce to the back burner. Be extra vigilant in your meditation, physical exercises and positive living. By the way, I don't care what anyone says, you can cure anything. Whether you feed into it or reduce it, it's all "psychological" and that's a GOOD thing!
Stay strong. |
Edited by - taxman on 03/02/2012 13:10:34 |
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tennis tom
USA
4749 Posts |
Posted - 03/02/2012 : 13:56:54
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That's good advice Marsha and Taxman gave you.
Is there a TMS doctor in your vicinity for a second opinion?
Bad "science" lies all the time, tests are misinterpreted, dx's are wrong like back x-rays--that's what this forum is all about after all.
==================================================
TMS PRACTITIONERS:
John Sarno, MD
400 E 34th St, New York, NY 10016
(212) 263-6035
Here's the TMS practitioners list from the TMS Help Forum:
http://www.tmshelp.com/links.htm
Here's a list of TMS practitioners from the TMS Wiki:
http://tmswiki.org/page/Find+a+TMS+Doctor+or+Therapist
Here's a map of TMS practitioners from the old Tarpit Yoga site, (click on the map by state for listings).:
http://www.tarpityoga.com/2007_08_01_archive.html |
Edited by - tennis tom on 03/02/2012 14:00:30 |
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yogaluz
USA
81 Posts |
Posted - 03/02/2012 : 16:34:40
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Thanks Guys. I'm doing my best to keep calm and I'm amazed at how far I've come. 10 years ago, a diagnosis like this would have had me in a total shut down state of panic. Now I'm slowly trying to weed through the feelings and gather information. And yes, I know on some level, anything can be "cured" or resolved and I need to stay on that line of thinking. I've made an appointment with my naturo and am going to try to get a non-Western perspective. In the meantime, I'm going to follow the protocol and focus on calming my panic. The fact that I'm leaving for Asia next week for a 3 week work trip isn't helping though!!!
Interestingly, since I received this diagnosis yesterday, I've been absolutely enraged at my mother (older posts describe the unique form of hell that was my childhood). It's my birthday and I know she's going to call and I'm dreading it. She sent a present and I haven't opened it because I don't want to have to fawn over it and make her feel good about what she sent me (the whole reason she sends me things to begin with - they're never anything I would like but rather, what she would like). I literally feel as though I might scream at her if she calls. SO... obviously still some ground to cover there but how odd that when my body launches the ultimate in distractions, I start opening up to the rage. TMS is an strange beast.
pain is inevitable, suffering optional |
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Bad test results - please help!
