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 A new epidemic on the rise- sigh!!!
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shawnsmith

Czech Republic
2048 Posts

Posted - 06/09/2007 :  15:30:22  Show Profile  Reply with Quote
Dear gang,

A got a pamphlet on this new syndrome at the mall today while I was shopping and looked it up on the internet. Dystonia affects over 300,000 Americans. But if you read the symptoms on the url below, it sounds an awful lot like TMS to me:

Dystonia defined:
http://www.dystonia-foundation.org/pages/what_is_dystonia_/26.php

Main website:
http://www.dystonia-foundation.org/

Contact and feedback at:
dystonia@dystonia-foundation.org

I personally wrote them and recommend Dr. Sarno's "The MindBody Prescription."

Edited by - shawnsmith on 06/09/2007 19:17:01

art

1903 Posts

Posted - 06/09/2007 :  19:44:10  Show Profile  Reply with Quote
I know you mean well, but you've really no basis for making this assertion. For one thing, some forms of this illness are genetic which would argue that it's not TMS, or so it seems to me...

It's tempting to want to view the world through a single, simplifying lens, but there are real illnesses out there.


Edited by - art on 06/09/2007 19:46:31
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stanfr

USA
268 Posts

Posted - 06/09/2007 :  21:17:49  Show Profile  Reply with Quote
Well, to be fair i kinda agree with Shawnsmith (maybe with less glee and enthusiasm ) It sure sounds like a mind-influenced disorder (reminiscent of 'restless leg' which of course has made mucho donero for the drug companies) and that's all shawnsmith is saying: "sounds like" not "is". In fact, i had this "disorder" when i was recovering from sciatica 10+ years ago, and right now i have it again that im in the process of beating another equivalent: psoriasis. I actually was happy to get it because it told me that my mind was reacting big time to all the psyche work ive been doing!
Like most of these fads, it's very poorly defined, liked IBS, firbromyalgia etc.
There is nothing inconsistent with TMS and it being "genetic": quite the contrary if you have read Sarno you know that TMS is itself genetic/hereditary!
Yes, there definitely are real illnesses and real injuries out there, however less than what is commonly believed, IMHO.
Thats the very reason why most the money is being spent "treating" mindbody disorders. And even 'real' diseases like Cancer and hypertension/heart disease are very strongly tied to ones emotional and psychological health. It may be that it's a real "genetic" syndrome, like nearsightedness or something like that, but do you really think the proponents are treating it as such? I'd be willing to bet the focus is on drugs or invasive techniques--sounds cynical but that's the way it usually is.
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tennis tom

USA
4749 Posts

Posted - 06/09/2007 :  23:34:53  Show Profile  Reply with Quote
quote:
Originally posted by art

I know you mean well, but you've really no basis for making this assertion. For one thing, some forms of this illness are genetic which would argue that it's not TMS, or so it seems to me...

It's tempting to want to view the world through a single, simplifying lens, but there are real illnesses out there.






I trust Shawn's knowledge of TMS to uncover it wherever it may lurk. Since we're speaking in generalities here and this IS the TMS board, the odd's on any dis-ease is 80% psychosomatic and 20% legit structural and I have zero knowledge of whatever this malady is, be it distonia or estonia.

Art, it seem to me that Shawn has just as much right to make his assertion that it is TMS as you have to say that it's not. What's your evidence to the contrary?



Some of my favorite excerpts from _THE DIVIDED MIND_ :
http://www.tmshelp.com/forum/topic.asp?TOPIC_ID=2605
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MikeySama

Netherlands
55 Posts

Posted - 06/10/2007 :  02:05:09  Show Profile  Reply with Quote
If you want more on a new epidemic how about this one...

Excessive use of the Wii-Remote control causes tendonitis. I think it was only a matter of time before something like this would start up. Funny if you think about it...

It's the latest and probably one of the most popular consoles, and voila we have a (old)new symptom O.o; I think that proves TMS, but i'm not an expert on the subject.

----
Call me Mike :)
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shawnsmith

Czech Republic
2048 Posts

Posted - 06/10/2007 :  06:31:47  Show Profile  Reply with Quote
The point I was was making is the the symptoms for this condition, along with the recommended treatment program, are very similar to TMS and has emerged out of seemingly nowhere. It gives us all something to think about. Actually, the precise cause of primary dystonia is unknown. Here is more information at this link: http://en.wikipedia.org/wiki/Dystonia

*******
Sarno-ize it!
Read chapter 4 of Dr. Sarno's "The Divided Mind." It's all you need to know in order to recover.
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art

1903 Posts

Posted - 06/10/2007 :  07:23:30  Show Profile  Reply with Quote
quote:
Art, it seem to me that Shawn has just as much right to make his assertion that it is TMS as you have to say that it's not. What's your evidence to the contrary?


That's actually a good question...As I said, simply the genetics of some forms of the illness would argue that it's a real disease. Of course, one could counter by saying that the TMS prone personality is inheritable, but then why this particular illness showing up in the same families, instead of say, garden varietyy back pain...

Beyond that, I think it's slightly irresponsible to label illnesses psychosomatic without any real evidence...At the other end of this discussion are real people in real pain. It just seems too easy to make these pronouncements from on high about illnesses we know nothing about...To my way of thinking, it's not respectful. Might sound a little stick-in-the-muddish to you, but that's my gut response...




Edited by - art on 06/10/2007 07:25:51
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tennis tom

USA
4749 Posts

Posted - 06/10/2007 :  08:18:59  Show Profile  Reply with Quote
Art, the assumption is that TMS is looked at as a cause, AFTER all conventional medical testing has been conducted and nothing sructuraly wrong has been found--if we've been here a while we all know that not everything is TMS.



Some of my favorite excerpts from _THE DIVIDED MIND_ :
http://www.tmshelp.com/forum/topic.asp?TOPIC_ID=2605
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h2oskier25

USA
395 Posts

Posted - 06/11/2007 :  15:30:25  Show Profile  Reply with Quote
quote:
Originally posted by tennis tom

Since we're speaking in generalities here and this IS the TMS board, the odd's on any dis-ease is 80% psychosomatic and 20% legit structural and I have zero knowledge of whatever this malady is, be it distonia or estonia.



I suddenly have this strange urge to speak Russian and spend lots of Kroons. Could it be I have a raging case of Estonia ?!?!

Good LORD !!



Beth
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FlyByNight

Canada
209 Posts

Posted - 06/12/2007 :  12:06:38  Show Profile  Reply with Quote
An interesting hypothesis about idiopathic dystonia is that accumulating stressful events through life can make happen what is called "archaic tonic reflexes" to resurface and then causing dystonia.

These reflexes are usually very visible in babies (arm extend the same side the head turns , etc) and they are unconsciously regulated. Every baby has them. These reflexes are otherwise integrated deep into more 'mature' set of movements in adults. In fact these reflex are the basis through which we build always more complex movements through our life. We usually are not supposed to visually "see" these reflexes in adults but they are nontheless there as they constitutes the basis for our complex set of movements

It is now aknowledged by some neurologists (Vojta, etc) that stressful events in our life that trigger the fight of flight reaction can also make these archaic reflexes to resurface in an unwanted asymetrical way as a kind of disorganised protective reaction to what we percieve threatful situations or large amount of RAGE. This phenomenon can of course cause a mess in the way we move, pain , asymetric tension that lead to chronic pain...

Because these reflexes are directly related to this sixth sense tha we have that is called <proprioception> and that proprioception is also very related to the image we have of ourselves, including emotional self-image. I strongly believe it could constitutes in a way another physiological way that could be used to explain TMS rather than just merely oxygen deprivation.


As Dave always says on the board... its not important to understand how tms works to get cured from it but I thought that this theory was so resonant with TMS that it could be interesting to post it .

Pat.



Edited by - FlyByNight on 06/12/2007 12:08:49
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shawnsmith

Czech Republic
2048 Posts

Posted - 06/12/2007 :  12:36:19  Show Profile  Reply with Quote
I communicated with a TMS doc- I won't reveal his/ her name- but this doc believes that his condition is TMS and recently say a patient diagnosed with Dystonia.

*******
Sarno-ize it!
Read chapter 4 of Dr. Sarno's "The Divided Mind." It's all you need to know in order to recover.
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