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davec
United Kingdom
14 Posts |
 Posted - 06/19/2007 : 05:05:52
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I took neurotin then lyrica with amitriptiline at night for two years-it did nothing for my 'neuropathy'and completly fogged my days and i slept alot at home.Did it help with the burning? NO!
I hope this helps,i stopped at Christmas when i discovered TMS Am I still burning?Yes,but i am able to think straight and am doing the work to get better.
David |
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LuvtoSew
USA
327 Posts |
Posted - 06/19/2007 : 05:43:16
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Littlebird- I like your name too, and I haven't been sewing much lately either.
I got diagnosed with MS in 1992- but the right head humming and R. facial spasms I don't think is the MS as it doesn't come and go- has been constant for the last 1.5 years.
My neuro thought it might be from a pinched nerve in the neck, thats
why I thought maybe neurontin might rule that out. On the other hand I hate to take a pill to mask my symptoms = I want them gone. I just hate the thought of being on neurontin as I know some people have side effects and I don't want to feel drugged.
The spine specialist said he couldn't be sure it was from the neck but facet block injections would rule the neck out or as the culprit.
At this point I just hoping it goes away! but its disrupting my whole life so I may have to break down and try something. |
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K2toK9
29 Posts |
Posted - 06/19/2007 : 19:20:45
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Dear ScottyDog,
I have thought on and off for three years now that maybe it was my mom's passing away and not the hysterectomy, but then I thought that it had to be the surgery.....maybe a nerve got hit or something. Then an operating nurse told me that nerve damage is uite possible with hyst or abdominal surgery mostly due to position and length of time on the operatin table.
As for my Mom....no regrets in our relationship. She is the one person in this world that I know I truly had a good relationship with. I loved her and she loved me. The rest of the world I question, but not her. I do miss her something aweful. One reason the foot pain strikes me as possible TMS is that my Mom walked and walked everyday....10 miles per day for 25 years....sun, rain, snow, col, heat....she was out there walking until the cancer and all the chemo.
My plan to get through the sudden surgical menopause that came upon me, way too early in life, due to the hysterectomy, was to walk through it and just keep walking. I am prone to anxiety and I figured the walking would help that too... and the grief. So, after a month of recouperating, I asked my doctor/surgeon if I could go back to my daily walks and she said "yes". I pushed it of course, and walked longer and faster than I was suppose to at first....but it felt good to be outside moving. Two weeks into it, I had burning feet that were numb and leg pain. Two weeks after that I stopped taking walks.....I also stopped the hormone meds. I remain on a very small dosage of klonopin and have been for years and years.
I have seen countless doctors at the very best hospitals. Diagnosis: "idiopathic neuropathy"....and one doctor added, "polyneuropathy and depression" and sent me for an MRI....which was normal. Then he sent me to the Pain Clinic where they wanted me to take cymbalta, but it was not on my insurance and too expensive. That was alomost 3 years ago.
K2toK9 |
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K2toK9
29 Posts |
Posted - 06/19/2007 : 19:25:31
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P.S. If this helps any, my Mom died of ovarian cancer which is one of the reasons I had a complete hysterectomy.
I am open to any insights from anyone as I am stuck in pain right now. I did see a TMS doctor about 2 years ago and I have read and read Dr. Sarno's book and watched the video. No improvement.
Thanks Everyone,
K2toK( |
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just curious anyone ever use neurotin??
