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plum
United Kingdom
641 Posts |
 Posted - 02/07/2013 : 08:50:58
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...when she says this:
That is great Nicole, thank you for your speedy reply! I just knew it, which is why I've been whining and pining for some relationships with recovered and recovering CFS FM folks. Where two or three are gathered...GRACE is there to work it's healing magic.
It would help me a lot to hear from/about people who've beaten trigeminal neuralgia and/or severe tmj. I don't have a sore jaw, I have screaming pain.
I have had good days, enough to give me faith in tms but when tms is severe, I believe it helps immeasurably to receive the assurances of someone who's been there and come out the other end.
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alix
USA
434 Posts |
Posted - 02/07/2013 : 10:15:29
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It may be great or it can be very upsetting with the wrong set of people.
In general I think that pursuing new things (and I was guilty of it big time) is simply a distraction that perpetuates TMS.
Monte Hueftle wrote this a while back on this board and I agree:
3. Do not keep searching outside yourself for the answers to TMS. This includes help/support groups, internet searching or believing that you must be diagnosed by a TMS doctor before you can accept TMS. This type of searching (distraction) will usually “feed” the strategy or is your “crutch” for not beginning your own genuine “inner work/change”. |
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plum
United Kingdom
641 Posts |
Posted - 02/07/2013 : 10:22:10
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| Thanks alix but I have been doing the genuine inner work/change for a long time. I'm not looking for a distraction or a group but really just some moral support. |
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alix
USA
434 Posts |
Posted - 02/07/2013 : 10:31:14
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| plum, I understand. My point is that it can quickly derail and become a full time quest that feeds TMS. It happened to me. |
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Sylvia
199 Posts |
Posted - 02/08/2013 : 06:03:33
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Alix it IS derailing me. Too much information, too many choices. The simpler times of Dr. Sarno one or two books.
Choose and go I say.
plum as balto said in another post, we are a herd animal. If you have screaming pain, then I take it you are more housebound then out in the world. That is me, and the isolation alone and Ace would agree is itself strain producing. Humans are not meant to be alone, nor to feel imprisoned against changing that. So we are here. But the internet forum is a poor, well no substitute for being with others.
plum said I believe it helps immeasurably to receive the assurances of someone who's been there and come out the other end.
Let us get well and be that for others. |
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alix
USA
434 Posts |
Posted - 02/09/2013 : 15:19:32
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Sylvia, the first time around, I became obsessed with finding "a better" TMS treatment. I did not even realize that it was feeding the TMS habit.
The second time around (after my NET stuff that jump started me again) I just focused on the psychological and whenever I was tired of doing it, I moved to a new hobby (I did not look for different and new TMS ideas). In my case, I went to see houses in my town that are featured in a book on local architecture. The goal was to completely keep my mind far away.
But if Schubiner is it and you stick to it, great. |
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I think Sylvia is making a valid point...
