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 What if it's not painful?
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roxygirl577

USA
42 Posts

Posted - 06/28/2012 :  21:42:07  Show Profile  Reply with Quote
Hello all, I've been a tms sufferer for over 10 years and was able to beat my tms a few years back (suffered from agonizing neck//back pain, headaches, ibs, anxiety), but now my tms has come back with a vengeance..well at least I hope it's tms this time. For the past 6 months I've been dealing with new pains that are related to structural problems I have. A few years back, actually it was a few months after I beat tms, I went through a series of surgeries. I had to get a prosthetic jaw joint put in because of a bone tumor I had that fused my jaw completely shut. Because of that surgery I had major nerve damage to that side of my face and lost my ability to blink so they had to put a gold weight underneath my eyelid to make it heavy enough to cover half of my eye, and allow it to blink better and close at night. I was pain free and doing pretty well for about a year and a half after that (other that anxiety and depression), but have recently started getting the pain first in my affected eye (blaming it on the blinking problem and the weight), then all of a sudden that pain disappeared and I suffered horrible chronic migraines that lasted two months (blamed that on my jaw), then that disappeared and started feeling a strange heaviness/constriction in my jaw. I still have mobility problems in it, I can only open around 20 mm, which is a huge difference from the 4mm before my surgery. But this constriction is terrible! Sometimes I wish I had pain instead, at least I am familiar with that. I feel this almost all day long and it is so exhausting. It feels like my jaw weighs 50 pounds and a feeling that it doesn't belong to me. I am of course blaming it on the fake jaw but I did just fine for the first year a half so I don't see why it would just now be like this. I am afraid to tell my oral surgeon about this because she is really wanting me to get my other side replaced and this might just be her reason to do that...and I know I don't need another surgery.

Sorry for the long story, but basically my question is, has anyone here suffered from this heaviness/constriction as a form of their tms?
I guess the thing that makes me feel better is that my other symptoms are gone so perhaps this is a symptom imperative? I am just so lost and I'm so sick of tms and I want to beat it for good this time. I feel like ripping my jaw off sometimes, as morbid as that sounds lol. I would rather rip the tms from my life though. Anyone relate?

mala

Hong Kong
774 Posts

Posted - 06/29/2012 :  05:47:15  Show Profile  Reply with Quote
Hi roxygirls577. I am really sorry that you are in so much agony. Becoz of the surgery that you have had it is very difficult to say whether what you have is TMS or not.

What really got to me is this line from yr post.

quote:
I am afraid to tell my oral surgeon about this because she is really wanting me to get my other side replaced and this might just be her reason to do that...and I know I don't need another surgery


You obviously need to see someone else if you feel this way about yr doctor. Have you ever sought a second opinion ?

Or Maybe you could see a TMS doctor if that's possible. That way you can get proper advice.

Take care & hope you get some relief soon.

Good Luck & Good Health
Mala

Edited by - mala on 06/29/2012 07:26:44
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