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Darko
Australia
387 Posts |
 Posted - 03/14/2012 : 16:16:29
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no dramas!
The only thing I would suggest, and feel free to ignore this, is to....
1- get a second or even third opinion....it's your life and you just never know.
2- Don't ever stop challenging/questioning the physical diagnosis. With a physical diagnosis you have zero chance of getting better without medical help and drugs and you'll always be a victim of the disease. At least with "TMS" you're in a position of power.
3- Get and watch Bruce Lipton's work.....it may help you, if you want help that is.
good luck
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Ace1
USA
1040 Posts |
Posted - 03/14/2012 : 17:04:35
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Hi Lara
I'm a medical doctor and I can tell you what your MRI is showing can be treated and will respond to tms treatment. Let me even tell you I have seen cancer disappear with tms treatment. As you can see that in some cases the condition goes away quickly in others it takes a while. But if you stick with it you will get better. Do you know that traditional medicine really has no reason for the cause of these illnesses nor do they ever cure anything except trauma and infections. There are many reasons that I am almost certain of what I'm telling you and I will one day share with this forum what I have seen to explain. I'm about 95+% cured of tms but not where hillbilly and balto are yet and when I get there I can give people better advice. I'm getting better everyday. In my case I have to change my reaction to my life bc I cannot change it. Just bc you haven't Gotton better yet doesn't mean it's not the diagnosis and it doesn't mean your not going to recover. Dr sarno once told me that everyone eventually gets better as long as they don't give up. That should give everyone hope. |
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Ace1
USA
1040 Posts |
Posted - 03/14/2012 : 17:11:04
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| By the way do you know what tendinosis means? it is NOT tendinitis. It's a structural abnormality like a degenerated disk. |
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wrldtrv
666 Posts |
Posted - 03/14/2012 : 19:23:02
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| It's great to hear you're 95% cured of TMS and maybe you can write your own TMS book. I think we need more accounts from former sufferers, like SteveO, who can show that it's possible to fully recover. By the way, which specialty do you practice? |
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Wavy Soul
USA
779 Posts |
Posted - 03/14/2012 : 19:30:25
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Ace1, that is very encouraging, thanks. I had cancer last year, and although I immediately had a pretty simple surgery, I did feel it was at least as psychosomatically caused as my fibromyalgia and other symptoms. I have worked (as a counselor) with clients who have every kind of illness imaginable, from this TMS perspective, and I have witnessed amazing cures including worse cancer than mine that completely disappeared. And yet... although I'm not in the desperate place I was before, I am not at a super-healed place.
I'm not a physician, but you might say to me, physician, heal thyself. I feel that the real graph on which my TMS cure is charted is the SERIOUSNESS QUOTIENT. I just don't take my very intense and varied symptoms very seriously any more. And I have had all kinds of rage-inducers... If you were to rate me on that stress test in recent years, my life would get the maximum points - deaths, deadly illnesses, betrayals, divorce, no money, yada yada...
Anyway, thanks for posting, and we won't exhale until you come back with the goods.
Love is the answer, whatever the question |
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bryan3000
USA
513 Posts |
Posted - 03/14/2012 : 23:22:28
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I'm just curious if it was physical... why panic attacks would take turns with it?
Personally, that would send out a red flag or two.
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Hillbilly
USA
385 Posts |
Posted - 03/15/2012 : 05:41:52
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lara,
I believe it would be helpful for you to accept your pain as being stress-related if you tell us your history of stress problems. Were you anxious as a child? Did noises bother you or storms or were you quiet and serene? All these things have a past, but not a single past. The common thread is nervous disquiet and nearly always from birth, blamed on "personality."
And what happened just before this pain set in? Did you get panic attacks then, or did they start along with or subsequent to the pain? What about your current situation makes you feel trapped or taken advantage of?
I hate quotations. Tell me what you know.
Ralph Waldo Emerson |
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balto
839 Posts |
Posted - 03/15/2012 : 07:25:24
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Hillbilly, I remember in one of your previous post you said something about how important "belief" is. This is one of the example. Lara, in her belief right now it is something structural, not emotional that is causing her pain. Her belief whether true or false is not going to change easily. If her belief is correct, good for her and we wish her luck. If it is wrong then she will eventually come back and learn more about tms/anxiety when conventional medicine give up on her. It is just like with religious. It is difficult trying to convert someone from one religion to another.
In my mind I think she has tms/anxiety. The clue came from her original post. In it she said her physical pain went away for 2 hours when she had panic attack. My thought is: if it is structural, the pain is not going to stop for 2 hours and wait for her to finish with her panic attack. When I cut my finger, bruiser my leg, or twisted my ankle, the pain is consistent and non stop until it is healed. It doesn't stop for 2 hours for any body. |
Edited by - balto on 03/15/2012 08:18:19 |
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Hillbilly
USA
385 Posts |
Posted - 03/15/2012 : 09:54:47
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Balto,
There is a chapter in Abraham Low's book that spells out exactly why people don't recover when they are in the midst of suffering from nerves. It is simple as pie, so logical, and yet so very, very difficult to come to grips with.
Here he was, an erudite physician with a roomful of cured patients telling their stories of suffering away, being unable to leave their homes, go to work, care for their young. Multiple hospitalizations, shock therapy, addictions, abuse, negligence, a morass of human suffering. New patients and those still suffering after years of treatment were brought in for meetings and given the chance to account for themselves in front of the group and get feedback. The ones who got well absorbed the doctor's explanations and got back to life. Their symptoms hung around for a while, but the power of the many exhortations from the doctor and those who had come through, many of whom were thought to have little hope before, buoyed them between meetings.
The chronic cases were summed up so beautifully and eloquently, that it bears repeating here. He says, and I'm paraphrasing, that the patient sees his suffering as special, unique, is jealous of others who've listened and done as they were instructed, doubts that the suffering of others is nearly so acute as theirs, thinks it's very easy for the doctor to give instructions to do things that cause them to have panics and pains because he doesn't suffer, and on and on. That resonated with me because that is EXACTLY what I thought and believed at the time.
And despite whatever cure rates that he could publish or espouse, some people just simply couldn't believe that their nerves could cause such widespread havoc within the body's functions. He would remind them each week that they didn't find him by accident, that they had all seen a litany of physicians, had a battery of tests, and what ultimately convinced them to try was that there wasn't anything left to do but give in and comply with doctor's orders, to join the group instead of standing on the sidelines and criticizing and holding themselves out as special and unique. Humility is a very powerful healer because it calms, orients, and instructs.
This board and the many like it that are dedicated to functional illnesses and conditions, is literally peppered with examples of this. There's a new symptom of the day, a post about anyone who's dealt with it, asking is this TMS, and does anyone have experience dealing with it. Yes, we've all had it or something similar, yes, it disrupted our lives and drove some of us to the brink of sanity and/or suicide, and yes, it is curable in the same manner that others have followed. But do you believe it and will you do what's necessary to overcome it and take responsibility for your own suffering and your own healing? Only you can answer, and it makes little difference what you can come up with in way of a pithy rebuke or well-documented rebuttal.
What do you believe is causing your symptoms? If you think something other than nerves is to blame, then why did you find this board, how did you post this question, and why are you reading this answer? If it is because you are still gathering information, that's fine. But there isn't anything anyone can say to assuage your suffering other than, "Wow! Sorry to hear that. Hope that doesn't require surgery." For those of us who remember full well how badly we suffered, how we thought, whose minds have been changed through reading and sharing and even arguing, we can simply say accept it. It is nothing, and you are healthy as a horse. Be glad and of good cheer. You will thank us later. For now, you have a life to lead. Go lead it courageously.
I hate quotations. Tell me what you know.
Ralph Waldo Emerson |
Edited by - Hillbilly on 03/15/2012 09:57:48 |
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Ace1
USA
1040 Posts |
Posted - 03/15/2012 : 10:12:04
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| Hi Im an Oncologist. No one hold their breath, I dont want my posts to cause anyone TMS! I wish you all the best |
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lara
USA
101 Posts |
Posted - 03/15/2012 : 10:39:01
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Please understand me ,my heart is broken. I was hoping that MRN come bavk normal. |
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Hillbilly
USA
385 Posts |
Posted - 03/15/2012 : 11:10:37
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Lara,
What would you have done or be thinking now if there had been a cancerous lesion on the report? There wasn't. In fact, there was nothing at all to explain the intensity of your suffering. Why did they focus on the nerves involved in that area if the problem isn't nerves? Are you presenting some logic here to offset the hysteria over tendinosis or vascular compression? What is the prognosis? If it isn't death within six weeks, what is the fuss? You are in discomfort, but so are/were all of us, and we are telling you that many of us have had much worse reports (my initial diagnosis was AS, a form of arthritis that is progressive and eventually curls you up like a shrimp). Scary as hell, but didn't explain other stuff going on in my body. Nervous disquiet was the cause of it all. Peace and tranquility, a sense of acceptance, less living on adrenaline and more understanding and calm reasoning were the cures.
Perhaps a visit to a physician versed in psychosomatic medicine would be in order. If you can't stop thinking you are irreparably damaged, nothing we say can be of help. Belief, remember.
I hate quotations. Tell me what you know.
Ralph Waldo Emerson |
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Dave
USA
1864 Posts |
Posted - 03/15/2012 : 11:26:44
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quote:
Originally posted by lara
why do i get this attacks when i should be happy that the pain is not present?
The anxiety is a substitute symptom for the pain.
quote:
I have been doing the wikipedia approach religiously ,and thinking pshycologically,but this panic attacks are really scarring too!
Stop being "religious" about it and start ignoring it. You are focusing way too much on the symptoms, which is why they persist.
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Ace1
USA
1040 Posts |
Posted - 03/15/2012 : 11:28:25
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| Lara, do you not believe that tension can cause real physical changes in the body? Do you also not know that tension PREVENTS the body from healing? There was a woman I knew who fell off a cliff and her arm was dislocated and damaged. She was told that it would never stay in its socket now. She however kept positive with the will and affirmations that it would heal. Would you believe that it came back in place? I personally am a christian and I know many people dont believe in this, but I share this with you bc if you believe God created your body and God is peace, hope and love, where do you have to be emotionally for your body to work right? In peace, hope and love! Its like taking a pineapple tree and planting it in Alaska. One day I hope you understand this. If "doctors" fix you in their way, you will never be really cured, youll see something else pops up. Good luck to you! |
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Carolyn
184 Posts |
Posted - 03/15/2012 : 21:28:00
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Lara,
I'm starting to sound like a broken record but I had pelvic congestion syndrome too. That is in fact what started the whole thing. I developed it during a pregnancy and then it persisted afterwards. And yes it was a real thing- diagnosed repeatedly by venograms which is the only real way to diagnose it. I had pelvic veins embolized 4 different times. Each time after the procedure I would get better for a little while then it would recur and I'd go back in and they found reflux in another vein and embolize it for another temporary cure. Having been down that road, I know that at the end of it I still had the pain and the constant focus of pain down there started to shift it around to other muscles which resulted in all of the many other diagnoses I had. Looking back on it, I know I had the congested veins- I taveled to see an expert at who told me I had the worst case he'd ever seen- but I'm still convinced the pain was TMS. Some people get pelvic congestion syndrome without the pain and each time I was temporarily cured by the procedure something else would come up to take it's place. I became depressed for the first time immediately after one treatment, another time I was plagued by awful wrist pain. Then the pelvic pain would come back and the other symptoms would go away. I see it all very clearly now in hindsight but at the time I was completely focussed on fixing the physical cause. Even if pain has a real physical cause, TMS can still amplify it and turn it from something merely annoying into something that takes over your life. The fact that you had anxiety when the pain goes away just really makes me think you are going through what I went through. If you need to for yourself, explore the physical avenue to see for yourself if you can find the cure there, but if it is TMS you really can't get better while you are doing that. I wasted a few years of my life caught up in all of that and I finally found the cure here. You can't do the TMS approach half way and it won't work as long as you believe you have a physical problem. Just know that it is possible for the TMS approach to work and others have gotten better from similar problems as yours. Good luck!!
Carolyn |
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lara
USA
101 Posts |
Posted - 03/16/2012 : 07:09:35
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quote:
Originally posted by Carolyn
Lara,
I'm starting to sound like a broken record but I had pelvic congestion syndrome too. That is in fact what started the whole thing. I developed it during a pregnancy and then it persisted afterwards. And yes it was a real thing- diagnosed repeatedly by venograms which is the only real way to diagnose it. I had pelvic veins embolized 4 different times. Each time after the procedure I would get better for a little while then it would recur and I'd go back in and they found reflux in another vein and embolize it for another temporary cure. Having been down that road, I know that at the end of it I still had the pain and the constant focus of pain down there started to shift it around to other muscles which resulted in all of the many other diagnoses I had. Looking back on it, I know I had the congested veins- I taveled to see an expert at who told me I had the worst case he'd ever seen- but I'm still convinced the pain was TMS. Some people get pelvic congestion syndrome without the pain and each time I was temporarily cured by the procedure something else would come up to take it's place. I became depressed for the first time immediately after one treatment, another time I was plagued by awful wrist pain. Then the pelvic pain would come back and the other symptoms would go away. I see it all very clearly now in hindsight but at the time I was completely focussed on fixing the physical cause. Even if pain has a real physical cause, TMS can still amplify it and turn it from something merely annoying into something that takes over your life. The fact that you had anxiety when the pain goes away just really makes me think you are going through what I went through. If you need to for yourself, explore the physical avenue to see for yourself if you can find the cure there, but if it is TMS you really can't get better while you are doing that. I wasted a few years of my life caught up in all of that and I finally found the cure here. You can't do the TMS approach half way and it won't work as long as you believe you have a physical problem. Just know that it is possible for the TMS approach to work and others have gotten better from similar problems as yours. Good luck!!
Carolyn
Thank you so much Carolyn!
I guess my only option now is save the money for the TMS dr,since working tms by myself only makes me extremely depressed and lot of pain,wich becomes a cycle,pain=amxiety=more pain.
I have insurance,but co-pays,medicines etc and with myself not working ,it is hard to pay the TMS dr,who i just called and charges 500 dollars,the TMS package.
But Carlyn let me tell you this,if it wasn't for you,i wouldn't have seen this horrific pain as TMS again! you are a great woman!
God bless your heart.
Lara |
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Carolyn
184 Posts |
Posted - 03/16/2012 : 08:48:47
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Lara,
You don't have to wait to see the TMS doctor to start. That's your subconscious trying to keep you where you are. There's no reason not to keep reading the books, journaling, meditating and noting every instance where your symptoms don't seem consistant with a physical cause. What do you have to lose? How much worse could it get? It is normal for both the pain and the anxiety to get worse when you start the process but it is short-lived and if it happens you should realize that that is a sign that you are on the right track. If the pain starts shifting around, you will KNOW that it is TMS. You can decide to see a TMS doctor sometime in the future when you can afford it but in the meantime you have to take control yourself. Waiting for the TMS doctor to cure you is no different than trying to find relief from a doctor to treat your physical symptoms. Ultimately, the cure comes from you so you need to stop searching outside yourself.
Carolyn |
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Dave
USA
1864 Posts |
Posted - 03/16/2012 : 09:25:55
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quote:
Originally posted by lara
I guess my only option now is save the money for the TMS dr,since working tms by myself only makes me extremely depressed and lot of pain,wich becomes a cycle,pain=amxiety=more pain.
Frankly, this is a cop out.
You do not need a diagnosis from a doctor to successfully treat TMS. He will not tell you anything you cannot read in Dr. Sarno's books.
The cycle you are observing is correct, but only you have the power to break it. You have to be ready to accept it and take away its power over you. It seems you are not quite there yet. |
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lara
USA
101 Posts |
Posted - 03/16/2012 : 09:57:33
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quote:
Originally posted by Dave
quote:
Originally posted by lara
I guess my only option now is save the money for the TMS dr,since working tms by myself only makes me extremely depressed and lot of pain,wich becomes a cycle,pain=amxiety=more pain.
Frankly, this is a cop out.
You do not need a diagnosis from a doctor to successfully treat TMS. He will not tell you anything you cannot read in Dr. Sarno's books.
The cycle you are observing is correct, but only you have the power to break it. You have to be ready to accept it and take away its power over you. It seems you are not quite there yet.
Dave,
I tought a TMS practioner not only can diagnose me but also help me with treatment since i can't do it alone.
I don't like how men give me opinions about this issue here ,since it's not their clits,vagina,perinium or rectum the one that's hurting.
And please don't take this as a rude manner,it's just that i am very sensitive and (i mean very very emotional) i feel that a man without this kind of pain could easily tell me that "i am not there yet" because a back pain is a walk in the park compared to pelvic pain.,(i have had very bad back pain before ).
Please guys talk to me like you would to your wives,mothers,sisters,girlfriends etc
"  i repeat i am very sensitive .
Lara |
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tennis tom
USA
4749 Posts |
Posted - 03/17/2012 : 10:10:49
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Hi Lara,
Sorry about your pain, while I don't have a couple of your body parts, I do have a perineum and a rectum, so do feel somewhat qualified to respond. I'm quoting Dr. Peter Zafirides, a TMS psychiatrist's, response to Erika. If your pain is due to TMS, it applies as well to you, g'luck:
"Erika,
While I cannot provide specific medical advice, I do hope you have been to your doctor and they have ruled out any medical problem that can cause the pain. In TMS, most people will see relief from pain by reading the books, listening to the CD lectures or seeing a TMS clinician.
When people continue to suffer with pain despite of all of this TMS work, talk therapy may be needed. The emotions that cause the physical pain to occur (as a protective distraction, a survival-based mechanism) are felt by the mind to be terrifying. They tend to be in the unconscious mind. For most, reading and some reflection brings relief, but some people may need to see a therapist in order to unlock those emotions.
I hope that information is helpful.
DON"T GIVE UP HOPE!!! You are way too strong!! Look at all you have accomplished DESPITE the pain. THAT is your true strength.
You are so much more powerful than you realize.
Kindly,
Peter Zafirides"
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DR. SARNO'S 12 DAILY REMINDERS:
www.youtube.com/watch?v=r0dKBFwGR0g
TAKE THE HOLMES-RAHE STRESS TEST
http://en.wikipedia.org/wiki/Holmes_and_Rahe_stress_scale
Some of my favorite excerpts from _THE DIVIDED MIND_ :
http://www.tmshelp.com/forum/topic.asp?TOPIC_ID=2605
==================================================
"It is no measure of health to be well adjusted to a profoundly sick society." Jiddu Krishnamurti
"Pain is inevitable; suffering is optional." Author Unknown
"Happy People Are Happy Putters." Frank Nobilo, Golf Analyst
"Be careful about reading health books. You may die of a misprint." Mark Twain and Balto
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TMS PRACTITIONERS:
John Sarno, MD
400 E 34th St, New York, NY 10016
(212) 263-6035
Here's the TMS practitioners list from the TMS Help Forum:
http://www.tmshelp.com/links.htm
Here's a list of TMS practitioners from the TMS Wiki:
http://tmswiki.org/ppd/Find_a_TMS_Doctor_or_Therapist
Here's a map of TMS practitioners from the old Tarpit Yoga site, (click on the map by state for listings).:
http://www.tarpityoga.com/2007_08_01_archive.html |
Edited by - tennis tom on 03/17/2012 10:23:25 |
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Panic/anxiety attack
