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cskrone
USA
2 Posts |
 Posted - 09/28/2011 : 11:14:38
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Hi All -
I am a 27 year old (otherwise healthy) male in a very good career in New York. I was diagnosed with depression/anxiety and most recently Pure-O (OCD) a year ago.
I've suffered TMS symptoms for the past 5 years. Here they are in order:
Knee Pain for 10 months - Thought it was due to running but my dad is a orthopedic surgeon and MRI's couldn't find immflamation. Pain vanished when I said screw it and went for a run.
Hand Pain for 8 months - I was afraid of typing, it hurt to turn doorknobs, hurt to do ANYTHING with my hands. I cried over the phone with my parents saying my career is over. This vanished when I said screw it and worked out.
Chronic Dizziness - Off and On for 1 year - This became severe points. I went to balance clinics and they said it was anxiety caused by hyperventilation. This gradually just vanished.
Vague Pain above my right eye - I researched cluster headaches etc. and this pain went away when I graduated from college.
Tingling in Right Hand - Came on after a very minor kitchen burn. Lasted for 8 months. Doctors said tingling was caused by sensory nerve regeneration and would go away within 2 weeks. This caused intense distress.
Most recent is the worst. I was put on Risperdal as off label for OCD (anti psychotic). I took 3 very small doses and developed EPS symptoms (numb lips, tense tongue, etc). My doctor discontinued the med and said this is normal and would go away within a week or two.
This has lasted 4 months and I've had SENSATIONAL fears about this being Tardive Dyskinisia. My doctor has labeled this "Psychogenic Movement Disorder" and said, once OCD gets better, this will vanish but I don't believe it. I BELIEVE it's TD and it's permanent and going to ruin my life. I've read that TD can be caused by 1 dose of antipsychotics but it's incredibly rare. Like literally 1/100,000 people.
Due to the history of psychosomatics, my doctor is very convinced this is all in my mind and, because I was afraid of TD, I convinced my mind to get TD-like symptoms.
Any thoughts on this? What should I do? This is ruining my life and I have severe depression over this and am avoiding seeing everyone.
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theghost
30 Posts |
Posted - 10/02/2011 : 16:03:06
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I've also been a tms sufferer for 10 years or so. I had throat pain, rib pain and most recently, tmj pain. I'm using the tms workbook. I'm not getting one hundred percent better yet, but it's helping me quite a bit. I'm a lot better off than I was maybe a month ago.
You can get it here:
http://www.mindbodymedicine.com/7tms.html
I got the pdf version and then converted it to a word document so I could type on the computer and place it in my journal.
It's a 30 day program. If it doesnt' work after 30 days, just repeat it. It helps you make connections between things you wouldn't ordinarily connect, and it might help you work through some of the frustration/anger/etc. that is causing your symptoms to manifest in the way they are.
I am also ocd, 33 years old, and I can empathize with you greatly. Feel free to email me if you need someone to talk to. |
Edited by - theghost on 10/02/2011 16:03:54 |
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wrldtrv
666 Posts |
Posted - 10/03/2011 : 20:13:33
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Cskrone, I don't need to mention the details again here, but I can definitely see myself in your description in so many ways. The symptom leading to symptom to symptom; some mild, some severe, some really scary. Just when you think you are off the hook, something new.
For me, it's a work in progress, but I find if there is one thing that works, it is to try not to fear the symptom! Easier said than done, of course. That's why it is a work in progress. Gradual exposure in whatever doses you can handle. The more you run, the more the fear has you and the more terrifying the symtom. I don't know about the OCD, but it certainly sounds like health anxiety (which I have).
If you can find a med to help you in this process, all the better. I agree, it would be extremely unlikely that a few doses of Risperdal gave you TD, but of course, your anxious brain won't believe it right now. Find a way to step back, give yourself a break, settle yourself. Then when you are able, start to gradually confront the fear. That's my take on it. |
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art
1903 Posts |
Posted - 10/03/2011 : 20:54:02
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Of course you don't have TD. Given your history in combination with the extreme rarity of the disease after a few doses, it's a virtual certainty..Once you stop worrying about it, your symptoms will go away. Guaranteed...
All that said, I would not be messing around with strong anti-psychotic medication. That stuff can be nasty. Find other, less damaging ways to deal with your OCD.
All just my personal opinion naturally. |
Edited by - art on 10/03/2011 20:54:28 |
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bryan3000
USA
513 Posts |
Posted - 10/03/2011 : 22:54:58
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CSK,
Start looking around for posts by guys like Art, Tennis Tom and Hillbilly. (Among others.) All very inspiring posters here.
My personal advice for you is to start by making things small. In other words, don't try to solve all of this at once. Try to start slowly calming yourself and recognizing your conditions for what they are. Work on finding a few minutes of peace each day, then build it up to hours. Meditate, read and try to relax.
Listen to audio books and podcasts on anxiety. (Claire Weeks, Anxiety Guru.net, etc.) Find some guided meditations that you enjoy.
It sounds to me like you've gotten a hold on this stuff before. You can do it again.
I came down with anxiety and "sinus headaches" a year and a half ago, and haven't worked my way out of it yet. Attempts with medications have only made it worse. (See my sig.) I am finally showing some signs of improvement. I just recently discovered TMS theory, and am working through it. But, I have a long way to go. I need to get control of my mind, lose fear of the fear and allow myself to just be... without judgment or creating stories. I'd imagine a lot of that applies to you, too.
Stick around, update us and just know that you'll beat this thing.
Acceptance and understanding does work miracles. But, that also takes time, work and practice.
Be well.
_____________________________
-1/2010 - Developed chronic sinus problems. ENTs/Docs can't find anything
-5/29/2010 - Doc gives cocktail of allergy meds which induces first ever panic attack/anxiety.
-7/16/2010 - Anxiety stays/worsens - put on Xanax
2/1/2011 - Began Xanax taper - Withdrawal starts - full body chaos
-6/11/2011 - Last dose of Xanax. Physical/emotional chaos continues for several months.
-Now: Taking it day by day, looking for real answers and ways to heal myself without medical poison. |
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tennis tom
USA
4749 Posts |
Posted - 10/04/2011 : 09:48:06
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quote:
Originally posted by bryan3000
CSK, Start looking around for posts by guys like Art, Tennis Tom and Hillbilly. (Among others.) All very inspiring posters here.
Thanks for the complement Bryan! If I can add Dave to that, his posts are very accurate and concise. |
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TMS Symptoms?
