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KariP
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Posted - 07/01/2010 : 08:09:30
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Hi. I'm so grateful to have found this board. I did so actually by doing the dreaded google symptom search (thinking I have ALS or MS or Lupus) and quite by accident stumbled upon this board. Once I read about TMS, it's almost as if a light bulb went off. I'm now wondering if past medical issues and current ones aren't related to TMS.
This might be a long one....bare with me...
I've always had anxiety problems as a child. I can remember feeling panicky at times that weren't necessarily stressful. However I did endure alot of stressful situations-domestic abuse, alcoholism, mother's cancer diagnosis when I was 13, dysfunctional family stuff, low self esteem, etc... I worried about death, nuclear war, diseases, etc...
Flash fw to ten years ago, during my engagement to my husband. Stress set off a 2 month TMJ headache that I was convinced was a brain tumor. I couldnt enjoy my wedding day because I though I had breast cancer. I've had endometriosis, but even w/ that dx I always assumed it was ovarian cancer or some dreadful, fatal disease. Chest pains that I thought were heart attacks (each time diagnosed with costochondritis) I catastrophize about everything. I recently had a hysterectomy at age 34 because of my endometriosis and the severe pain I was experiencing. Mentally and physically everything has spiralled since then. I was so anxious and stressed before surgery, convinced I would die on the table. I have had the hardest recovery. Rehospitalized because I was sure that a normal fluid collection in my pelvis must have become abscessed. I was reading online about infection and my body temperature actually went up! I started feeling feverish. When I was admitted to the hospital, no temperature.
Pains in recovery morph and change. Now I'm having leg and back/muscle and joint pain..muscle twitches. I've had blood work---cbc fine. I'm so worried about autoimmune now. I do have some off thyroid number that are being monitored and I was reading that low estrogen can cause these body aches-----but I had my estrogen level tested and it was in normal limits. I'm on a bioidentical estrogen hormone replacement, but just stopped because Im trying to see if this is a side effect of this.
I have many unresolved issues, health anxiety and tremendous fear that my body is falling apart--that something bad is right around the corner. At what point do I stop asking for tests and looking at the physical and start considering TMS? I'm going to ask for my vitamin D level to be tested and see if I should see a rheumatologist. Keep on my thyroid...beyond that, should I think that TMS is playing a part?
I have no doubt that my mind is very powerful and tends to negatively affect my body. I just can't let go of this fear that something is really physically wrong w/ me.
Thanks for listening.
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tennis tom
USA
4749 Posts |
Posted - 07/01/2010 : 12:13:09
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Google the Holmes Rahe list of life stressors and find the ones that are triggering your TMS. They will help you confirm the role of TMS in your symptomology.
Do all the medical test to rule out the low percentage true physical causes such as a tumor or a fractured femur.
Cheers
Some of my favorite excerpts from _THE DIVIDED MIND_ : http://www.tmshelp.com/forum/topic.asp?TOPIC_ID=2605
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walnut864
94 Posts |
Posted - 07/01/2010 : 12:17:41
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Hello and welcome to the forum! Reading your story is like reading my own life (minus the female problems). Although I did have male problems with the prostate that they diagnosed as prostatits. I beat it with no antibiotics and feel it was just TMS. I too greew up with anxiety. We are alot alike in so many ways I cannot even begin to describe. I took Dr Howard Schubiners course online. It worked for me. By following his course I relieved all of my symptoms, for 1 week. The symptoms did slowly return. I have been able to get rid of them slowly over time but, that one great week I had proved to me that I have TMS. The sad thing is that because of my catastrophizing I sometimes doubt the TMS diagnosis and fally prey to fear of something worse. Then I get worse physically. In my opinion your situation sounds very much like TMS. If you have seen a medical professional and they say you are fine, than mosty likely you are just that, fine.
I highly recommend Dr Schubiners book, its called: Unlearn your pain. I am really worried at the moment that you may feel like I am trying to sell you the book. I am only trying to share with you what worked for me. You can try dr sarno's books, fred amirs book and whoever else has one. It doesnt matter to me which one you get as they are all very good. I really enjoyed fred amirs book and sarnos but I for some reason favor dr schubiners book and method.
Oh I also wanted to share this with you. You said you started having twitches. I started to get these just a a couple weeks after I started accepting the TMS diagnosis. It started in my eye lid. Before teh month was out I had started to experience these twitches called "fasciculations" all over my body. Not at the same time. One muscle would be affected for a little while then it would move to another muscle a few days later.This drew me awayfrom the TMS diagnosis and before long I was all over the MS, ALS or some other neurological disease. Thats been well over a year ago, maybe 2 years. I still get the twitches sometimes but I dont fear them anymore and they go away.
Hope to hear from you again soon, would love to hear how you do if you challenge this from a TMS standpoint. It sounds to me you have TMS. Most importantly you have to STAY AWAY from google, bing or any other search engine! Stay away from ALS, MS, LUPUS, Lymes Disease, Dental amalgam forums or any other forums. I wasted alot of time getting better by not fully accepting TMS. Talk to you again soon. |
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