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hundreth
USA
12 Posts |
 Posted - 06/18/2009 : 12:04:31
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http://chronicfatigue.about.com/od/diagnosingfmscfs/a/off_course.htm
This makes me sad to see. This woman had a panic attack and ended up diagnosed with Fibromyalgia. It is painfully obvious she is simply suffering from anxiety symptoms, but now she thinks she will never be cured and gave up her job as a TV producer.
As someone who's life turned upside down because of googling "stiff neck" and ending up thinking I had fibromyalgia, this is pretty crazy. |
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HilaryN
United Kingdom
879 Posts |
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sarita
130 Posts |
Posted - 06/19/2009 : 03:47:55
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why not get in touch with this poor lady and tell her about this forum, tms???
I may do it tonight. |
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hundreth
USA
12 Posts |
Posted - 06/19/2009 : 18:07:09
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Hilary,
Unfortunately my story with pain has not come to completion as of yet.
My story is as follows though:
I am a 23 tear old Software Engineer working for a medical software company. It is a very high stress job, I work many hours and have to be the on call support guy every other day including weekends. One weekend about a year ago I had an influx of calls. I was literally on the phone tackling problems the entire weekend. I guess from having my neck cradled for so long as well as the stress, I developed a stiff neck that lasted me well into the week. I began to worry as it was not easing off one bit. I began googling symptoms of course, I came across pinched nerve, meningitis, and of course the biggie.. Fibromyalgia. By the time I was able to get to a doctor I was extremely concerned. My doctor did not even really examine me, he said nothing was wrong and that it would go away in a week. Of course I did not listen. I continued googling symptoms, my pain spread to my shoulders, and it worsened daily. Finally I started having panic attacks, the worst of which at my birthday party, which I somehow miraculously hid from everyone around me.
I worried non stop about my constant pain for months and tried everything, but the harder I tried the worse it became. My pain spread to the rest of my body, I became exactly what I feared most, a fibromyalgia patient. I was never actually diagnosed with fibromyalgia by a physician, they just have no idea what is wrong with me. My muscles are insanely tight all the time, I get crazy spasms in my legs, and I have trouble sleeping well. I read Sarno's books and unfortunately they did not help me, maybe because I don't fully believe everything he writes is 100% correct, and I am the kind of person who needs everything to make 100% sense before I commit. After obsessing about my condition for the longest time and doing tons of research, I feel that most likely I have an anxiety condition and that Fibromyalgia is really just caused by an overactive nervous system, the same way anxiety is caused. At least I believe this is the case for me, considering how my condition began. I have not gotten better most likely because I have not left my super stressful job yet, but I become angered by how saturated the internet is with bogus information about this BS mystery diagnosis Fibromyalgia. If I had never googled symptoms, none of this would have ever happened to me.
I do credit Sarno for bringing my attention to the mental side of pain syndromes, I think without him I would have been a completely lost case. I'm just praying I eventually get relief by trying to ignore my symptoms and do what makes me happy, which at this point is quitting my job and doing something else with my life. |
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HilaryN
United Kingdom
879 Posts |
Posted - 06/20/2009 : 03:07:15
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Hi hundreth,
I'm sorry to hear that. Good luck with your recovery.
Hilary N |
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HilaryN
United Kingdom
879 Posts |
Posted - 06/20/2009 : 03:08:40
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Sarita,
That would be great if you get time to do it.
Hilary N |
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sarita
130 Posts |
Posted - 06/20/2009 : 04:00:15
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hey hundreth,
read the posts by hillbilly. it has helped me.
get lots of information.
have you had mri's and blood work done? vitamin d deficency can make your muscles hurt.
i say, once you have sort of excluded everything, then i think nothing should hinder you to give sarno a REAL try.
with me, anxiety is a huge issue and i think a predecessor to my upper back pain and arm pain. i love claire weekes, not so much "hope and help for your nerves" as "essential help for your nerves". (they are both great but in the latter she talks about muscle pain and so much more).
there are some great book recommendations on this site.
PATIENCE.
http://www.amazon.com/Self-Help-Your-Nerves-Overcoming/dp/0722531559/ref=sr_1_2?ie=UTF8&s=books&qid=1245492051&sr=8-2
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sarita
130 Posts |
Posted - 06/20/2009 : 04:04:32
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one more thing; if all the tests show normal why dont you find a tms doctor?
getting better in tms has a lot to do with being persistent and smart and POSITIVE. no way anyone will get better when scared and intimidated by the dreaded term "fibromyalgia". i am struggeling myself! elimination of such fears is a must.
i am observing that a lot of people get better with sarno on initial symptoms, but the following symptoms, the so called equivalents, are harder to deal with, to get rid of. i think our brain sees through the trick of healing it and we must be imaginative.
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Edited by - sarita on 06/20/2009 04:20:49 |
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sarita
130 Posts |
Posted - 06/20/2009 : 04:18:16
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FEAR
is a huge factor
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hundreth
USA
12 Posts |
Posted - 06/20/2009 : 10:34:46
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Sarita, thanks for your help.
I've read Hillbilly's posts and they have been very influential to me. I've been acquiring information for the past 10 months, believe me I've run out of things to google.
I initially had blood work done and everything came up fine. I can not think of anything an MRI could show which would result in my entire body locking up this way.
I certainly believe I have a TMS personality type. I rarely show emotion, a real Stoic. I simply cannot buy into Sarno's oversimplified blood restriction explanation. I think his treatment method can help many, but I've noticed the most successful of his followers are those who do no additional work and simply lose fear of their illness. This is essentially the goal of anxiety recovery. An overactive nervous system stuck on high alert seems a much more likely culprit for my strange symptoms.
My lingering fear is that I've overloaded my nervous system to the point of no return. I fear there is a permanent damage there which makes it so rare to see someone fully recover from Fibromyalgia like symptoms. |
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sarita
130 Posts |
Posted - 06/20/2009 : 12:09:11
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you are still so young! i am 28. also young.
about the reduced blood flow theory; people take this part too seriously! Sarno himself raves about the writer of "molecules of emotion" and this is all about hormones, the peptide system (it just arrived, i will read it). However let me tell you, if you have made lots of research on Fibromyalgia (our favorite word) then you should know, oxygen deprivation indeed plays a huge role (oxygen will reach the muscle with blood!) Its a fact, my pt told me, pain is somehow always connected to the nutrition of the muscle. Be it oxygen, etc. Claire Weekes also explains it brilliantly on page 8! PLEASE, you sound like a nice girl, get the weekes book! Order it now , I thought NO ONE HAS A CLUE what I am going through until I "met" her.
About the nervous system being permanently damaged, I can only say: ......BS.
as opposed as some here, I do believe the sarno theory about deeply repressed emotions, which we are unaware of but which rule , to a huge extent, our actions, our thoughts. maybe some day ill start such a therapy. for now, i still have bad moments, anxiety, the "whoosh" moments of sort a panic and annoying pain (upper back and arms). i know i will beat it. and so will you. there is some guy, lakevin (look him up on members). he was worse than you. he recovered.
to quote weekes : let there always be a bit of hope.
if you want, ill paste here the posts of lakevin for you. i saved them!
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sarita
130 Posts |
Posted - 06/20/2009 : 12:11:47
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| btw no more google! cyberchondriac is not an official term. lets not join them. |
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hundreth
USA
12 Posts |
Posted - 06/20/2009 : 12:37:09
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BTW I am a guy. 
I've read lakevin's posts as well, they were indeed inspirational. His case is one of the more mind boggling because he suffered so many symptoms yet makes it seem plausible that you can be pain free one moment later after an "Ah Ha!" moment. He was also against journaling and other classic Sarno treatments. Quite an interesting case, he neither fit into the anxiety recovery mold of being patient and letting time pass nor the Sarno recovery mold of journaling and digging deep for repressed emotions.
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sarita
130 Posts |
Posted - 06/20/2009 : 13:32:17
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oh sorry! i just never know wether guy or girl in this forum!
ok. i suggest you read joseph murphy, power of your subconscious mind and the claire weekes!
also, some people got better after being reassured by a tms doc (one of the good ones). they needed this. i may, too.
you see, if our condition is a result of chronic tension and anxiety (dont know if u have a history of it but it doesnt reallt matter, i think it can be unconscious and just still powerful) then we must get rid of the fuel that keeps this heightened state going. and i do believe one is able to do this, no matter how strong. i am starting to believe...that brains are required. 
if it makes you feel better i am in a simmilar boat!
please dont throw my book recommendations in a sock.
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Edited by - sarita on 06/20/2009 13:34:16 |
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sarita
130 Posts |
Posted - 06/20/2009 : 13:33:29
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| btw sarno also says tms is due to an overactive autonomic nervous system. |
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sarita
130 Posts |
Posted - 06/20/2009 : 13:36:01
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| sarita again for a change. you see, by providing information on whats going on, sarno does just that, take away the fear. just as you said. thus those nervous systems can finally relax, and healing starts. he had patients who were bed bound. |
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sarita
130 Posts |
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Dave
USA
1864 Posts |
Posted - 06/20/2009 : 14:09:09
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quote:
Originally posted by hundreth
I'm just praying I eventually get relief by trying to ignore my symptoms and do what makes me happy, which at this point is quitting my job and doing something else with my life.
Consider that your job situation might be a major contributor to your symptoms. While it may not be realistic to quit your job right now, explore the emotions that the job might be stirring inside you without you even realizing it. This is not the "stress" of the job but how it makes you feel about yourself deep down. |
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HilaryN
United Kingdom
879 Posts |
Posted - 06/20/2009 : 14:28:43
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quote:
(sarita)btw no more google! cyberchondriac is not an official term. lets not join them.
 I like it! I think cyberchondriac should be an official term from now on.
Hilary N |
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HilaryN
United Kingdom
879 Posts |
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sarita
130 Posts |
Posted - 06/20/2009 : 15:05:02
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| oh hilary i mean cyberchondriac is a term which exists!!!!! misprint. |
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Topic |
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Panic attack to fibromyalgia
