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holly
USA
243 Posts |
 Posted - 12/13/2004 : 05:30:25
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| I am 99% sure this is the same as TMS. Anyone on this board overcome this? Do you Know of anyone?? |
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pushmower
USA
6 Posts |
Posted - 12/13/2004 : 16:18:06
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| hi holly ive had r s d for the past 19 months i live on the island to.ive had many procedures and ended up with a spinal cod stymulator. r s d is a tough one but you gotta keep pushing. if you are interested with some help or just need some info or you need to talk, shoot me a e mail. my name is yigal pushmower@hotmail.com |
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Laura
USA
655 Posts |
Posted - 12/13/2004 : 17:46:20
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Holly,
Did you mean RSD or RSI? When I first read your post I immediately remembered Dr. Sarno talking about repetitive stress injuries but I have no clue what RSD stands for.
Laura |
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holly
USA
243 Posts |
Posted - 12/13/2004 : 18:04:45
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Hi Laura,
How are you?? I meant RSD (regional sympathetic disfunction).
Has to do with the sympathetic nerve. Also known as CRPS. It is not RSI. If you read about RSD on the Web MD you would totally freak out! What it is is another description of TMS. But on the Web MD they say it is noncurable mysterious disease and it spreads throughout your whole body. REALLY scary stuff if you don't know about TMS!!! My husband read it and said "sounds just like TMS to me!" That's when I realised how stupid I've been not to see that. You gotta check it out. What they say is outragious! |
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Laura
USA
655 Posts |
Posted - 12/13/2004 : 18:31:35
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Holly,
I can only imagine. I've been suffering from dizziness for nearly three years. For me it started after a trip to Cancun where I'd been on a plane (5 hours), a "booze cruise" in calm water (45 minutes each way to an island) and on jet skis (where my husband hit a big wave and my neck flew back and my jaw slammed together). I had suffered from dizziness after another trip a couple years prior, again where boat/air/train (all of the above) had occurred.
What this story is leading upto is that after the second bout, I went on-line and looked up "dizziness" and "vertigo" and found a disorder called Mal de Debarquement. Oh, my gosh! It scared the bajeebers out of me! I remember sitting at my computer and weeping and crying out "No, no" because the people who had this horrible "syndrome" were talking about how there was "no known cure" and how it can last "months of even years." They spoke about "brain fog" and not being able to work because you feel like you are rocking on a boat. I'd been to three different medical doctors and they all scratched their heads and didn't know what to tell me. My first bout of this dizzy thing had lasted three weeks but I think that's because the doctor told me (she had no clue what was wrong by the way) "You have labrynthitis and it will be gone in about three weeks." Three weeks later, it was gone. I think this second time I freaked myself out so badly from reading on that website and I convinced myself I would be one of the people to have this horrible syndrome for years and years. It wasn't until I really started reading Dr. Sarno's books and applying it that I realized I was feeling better. Also, I noticed so many similarities in the symptoms people had on the website to the equivalents of TMS. Like, many of the people (most of them women, in their 40's) talked about fibromyalgia, migraines, etc. In fact, they (the so called experts) believe Mal de Debarquement is a "migraine variant." That's when I put two and two together and decided it must be part of TMS.
My husband always said "stop reading that stuff" because he knows how suggestible I am. I can only imagine what they say on the website you are talking about. I think that's why I felt such relief when I found this TMS forum because it gives me hope.
I wish I knew about RSD so I could help you. Good luck to you in your journey to good health!
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Dr. Fatteh
USA
16 Posts |
Posted - 12/14/2004 : 01:45:31
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Holly,
I'm glad that you brought up the subject of RSD. This stands for, as folks may or may not know, Reflex Sympathetic Dystrophy. It is a poorly understood condition in which the body's sympathetic nervous system essentially goes haywire, particularly involving a specific limb. It can be triggered by an injury, or surgery, or it can be spontaneous. Its textbook presentation is that of a hot, sweaty, exquisitely tender limb with symptoms of neuropathic pain including hypersensitivity and/or burning/lancinating pain. The gold standard test for RSD, and one of its few treatment options (and these days it is officially referred to as CRPS, or Complex Regional Pain Syndrome) is actually an injection that blocks a nerve bundle near the cervical spine (for arm problems) or one that blocks a nerve bundle near the lumbar spine (for leg problems).
I don't believe that Dr.Sarno discusses this condition, but I have long suspected that it is a TMS equivalent. In fact, there is pioneering work being done by a pediatric group in Milwaukee in which psychological counseling has essentially cured their kids of all RSD symptoms in a majority of cases. However, the medical community has been reticent to extrapolate these findings to the adult world of RSD, likely for the same multi-layered reasons that TMS is rejected for other conditions. Particularly when I see patients in whom RSD "spreads" to different limbs do I suspect TMS more and more. Wouldn't it be nice to spare patients the trauma of sympathetic nerve ganglion blocks, neuropathic pain medications, and spinal cord stimulator implantations, especially since they have done little to ensure recovery. I'm sure you could attest to that, Pushmower.
Parvez Fatteh, M.D. |
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holly
USA
243 Posts |
Posted - 12/14/2004 : 05:53:41
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Dr. Fatteh,
Wow I am sooo happy you as a Dr. answered that most important question. We are all so lucky to have your presence on this board. BTW RSD is mentioned in the MBP as an equilivant.
Dr. Fatteh if I may ask you a question? My inflammed "pinky Toes" were diagnosed with this RSD. I was told how "lucky " I was that it didn't spread . (They attributed it to my weekly treadmill activity). I attribute it to my knowledge of TMS along with my activity! It actually did start to slightly show signs of spreading alittle below the right pinky toe that got me back on the TMS track.
Back to the question:
In your professional opionion can what I describe as "chronic inflammation"(always there in some degree or another)in my pinky toes still be TMS? I was up in bed last night wanting to ask the board this "burning" question. |
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pushmower
USA
6 Posts |
Posted - 12/14/2004 : 10:45:45
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| thank you dr fatteh as you said i have been through the mill with all the hellish procedures and meds , without the support and love of my angel wife , i would have ended my life a long time ago,being a landscaper for 20 years. ive had to come to the reality that i will never work again, and that iam permenataly dissabled.even with the spinal cord stymulator, i still have to take a cocktail of narcotics, nerve meds, which iam addicted to.i have faith in my doctors that they will hopefuly sooner than later get this under controll. iam currently seeing dr c argoff who is a up and coming excpert on r s d and dr c stamatos. out of north shore syosset.next week we are going to try another infusion of ketamine amatriptaline drip, hope fully i will get better relief, our plan is to continue trying till we hit upon the correct one. then iam going to check into rapid detox. i also have crohns disease which is a autoimune diseease. that impeds any type of healing. and of course iam constantly getting sick.iam going to show my dr next week what you wrote and see what he says . thank you for careing. |
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tennis tom
USA
4749 Posts |
Posted - 12/14/2004 : 12:25:27
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Dear pushmower,
You certainly have my heartfelt best wishes for recovery. Are you finding Sarno's TMS theory of any hope to resolve your medical problems? You sound very lucid considering all the meds you are taking and what you have been through. Does any of this TMS stuff resonate with you? I'll be praying for you. I think I recall Crohn's being mentioned as a TMS equivalent. |
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pushmower
USA
6 Posts |
Posted - 12/14/2004 : 16:27:16
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| thank you for your kind words tennis tom, my friend has been seeing dr sarno for the past 2 years she just gave me his book i havent read it yet just skimmed through it, i hpoe it will help somewhat. i dont really know if chrons is a t m s equivalent,my problem with chrons is in my lower intestimal track. whats left of it anyway. |
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tennis tom
USA
4749 Posts |
Posted - 12/14/2004 : 20:14:52
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Dear Pushmower,
I am actually glad to hear that you have NOT read Sarno yet, because that gives me all the greater hope that you will be 100% better after you do. Please read it! You have been through so much, reading a 200 page book is not much more to have to do. You sound like an intellegent, caring person. I hope you see yourself in the book and will make a rapid turn around. I am sure if you give it a chance you will see a big change. |
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Dr. Fatteh
USA
16 Posts |
Posted - 12/15/2004 : 02:34:09
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Holly,
Without addressing the specifics of your case, it is common for unusual symptoms involving one or more limbs to be thrown into the junk drawer known as RSD. So, general "inflammatory" conditions involving a limb could very well be TMS. Of course, with any evaluation, the necessary testing should be done, including X-rays and blood tests to rule out such things as rheumatological conditions, but even they can benefit from mindbody techniques.
And, that applies to you as well, Pushmower. It is unclear as to whether Crohn's is a TMS equivalent, as this is an Inflammatory Bowel Disease that is thought to be autoimmune in etiology, similar to rheumatologic conditions. Conditions such as Irritable Bowel Syndrome are thought to be more purely TMS equivalents. Nonetheless, a mindbody approach can help to lessen (or even vanquish) the symptoms. I would be careful, however, about approaching your traditional physician with the notion of TMS. Particularly when you are talking about Pain Management Anesthesiologists. Physicians of this specialty live for procedures, such as nerve blocks, sympathetic blocks, infusions, implantable pain pumps, spinal cord stimulator implantations, and the like. In fact, many of them are wannabe surgeons. So, presenting them with the concept of TMS can be quite threatening as it would minimize (and in reality wipe out) the need for their services. So tread lightly, for not many of us MD's who treat chronic pain are enlightened as of yet.
Parvez Fatteh, M.D. |
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Carol
91 Posts |
Posted - 12/16/2004 : 10:07:34
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Pushmower, when you do read The Mindbody Prescription, refer to page 79 for Dr. Sarno's reference to RSD as a TMS equivalent.
Carol |
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Anyone diagnosed with "RSD"??
