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johnaccardi
USA
182 Posts |
 Posted - 03/29/2008 : 14:41:43
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Thank you Dor for the response.
To answer some of your questions:
-Yes, I am aware of the fact that Sjogren's syndrome effects predominately older women.
-Yes, I have talked to my parents about it, my communication with them is great about this and they know I am very worried.
-I have actually had blood test done, which came back all negative but it was after the negative results that the Rheumatologist said it's probably Sjogren's. Also, there are many people out there who have Sjogren's with negative blood test results.
-I am in the process of making an appointment for a labial biopsy, which is about 80% accurate.
I really hope this isn't Sjogren's. I want it to be TMS so bad. I realize that before even trying to treat TMS I must back up and do whatever I must to rid myself of doubt. This may just simply take time as tests aren't 100% helpful. |
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mizlorinj
USA
490 Posts |
Posted - 03/29/2008 : 15:12:47
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Hi John.
I was referencing my book You Can Heal Your Life by Louise Hay for something I felt coming on yesterday. I thought of you as I passed the page with dry eye on it. So may I give you an assignment? Do you think you could check your local library for the book? It has a chart of symptoms (many of them) and for dry eye she suggests anger and/or needing to forgive someone/something. If you check your conditions, eye, mouth, skin, etc. slowly read the suggested emotion involved and ask yourslf if there is something in that suggestion that could possibly relate to you. Somewhere in your life would it be possible there is a connection.
I have found this helpful many times. I had to really stop and think about where it could apply, and often did some writing based on that suggested feeling.
May be helpful to you too. Seems forgiveness of ourselves and others is gaining media attention as of late. Many of the books I've read this past year give it a lot of attention too as it's necessary for our healing in most cases.
Hope you find the answer that works best for you. We do care about you and want you to benefit from our experiences with conditions we had that WERE indeed TMS. 
Best warm wishes,
Lori |
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Dor
67 Posts |
Posted - 03/29/2008 : 17:40:00
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John, I am so, so glad that you are in touch with your parents about all of this and that you have a good relationship with them. That helps so very much. And, I am glad that you are getting the testing done. Even 80% is a good percentage! Please keep letting us know how you are doing. I remember so well being your age and worrying about so many things, as my own son is doing now. He even said to me today - I would feel better if the chest pain was not on the left side! Little do people understand that the heart is acutally in the center of the chest! I say this so you will understand that you are not alone in what you are dealing with. The symptoms may be different, but the diagnosis is probably the same.
I am thinking of you and trusting that you get all the answers that you need. In the meantime remember, float don't fight, and keep moving forward. I think because of all of this that you are going to make a great psychologist one day. You will so be able to relate what people are going through. Maybe, just maybe, there is a reason for all of this. I think you will find that one day all that you are going through right now is going to lead you to helping others in the future.
Thinking of you,
Dor |
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Dor
67 Posts |
Posted - 03/30/2008 : 06:44:43
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John, on other thought - do you still have your wisdom teeth? If so, are they all the way through, just coming in, causing any aching or pain? I have just read that wisdom teeth can cause dry mouth. Many people your age deal with wisdom teeth issues. Might be worth thinking about and checking with your dentist. Have you seen a dentist for your problem? Often they can discover things within the mouth that are causing problems that a doctor would not be aware of.
Dor |
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johnaccardi
USA
182 Posts |
Posted - 03/30/2008 : 09:34:08
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Dor,
I have had my wisdom teeth removed about a year ago but I have not gone to a dentist yet about this problem. I will probably make an appointment soon, like you said, they are experts when it comes to the mouth. |
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stanfr
USA
268 Posts |
Posted - 03/30/2008 : 10:32:47
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| Slight correction--i haven't 'gotten rid of it' but have eliminated the annoying symptoms to a large extent. I wouldnt get too hung up on labels, but there is no question in my mind that psoriasis is psychosomatic, whether you can equate it to TMS is another issue that has been argued about in numerous topics here. It's clearly related to anxiety. As is the case with all 'TMS' type disorders, it's important to recognize that and not give the symptoms any attention. |
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johnaccardi
USA
182 Posts |
Posted - 03/30/2008 : 14:51:20
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| Thank you Stanfr, the fact that Psoriasis is pretty well known as being psychsomatic brings me relief. Do think my mind picked this symptom specifically because it is related to Sjogren's even though I had never heard of Psoriasis before??? Is that possible??? |
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stanfr
USA
268 Posts |
Posted - 03/31/2008 : 12:10:47
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| I personally think it's quite possible, although youll find others here (like Hillbilly) who would argue that's pure nonsense. In my case, i originally thought it was a fungal infection. it got worse after i sought surgery for my sinus issues (bad congestion/ allergy attacks). At the time, i didnt know whether my sinus problems were a TMS equivalent or truly physical (a deviated septum). I even considered the idea that it was part of 'leaky gut' syndrome which is a fungal problem. (ive since come to the conclusion that leaky gut is pretty much nonsense). So it may not be a coincidence that my psoriasis developed/got worse immediately after i "defeated" my sinus issues, i think its quite possible that it was 'targeted' because at the time i was mentally receptive to it being related to my sinus issues in a physical way (both fungal). |
Edited by - stanfr on 03/31/2008 12:11:26 |
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h2oskier25
USA
395 Posts |
Posted - 03/31/2008 : 13:17:01
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quote:
Originally posted by johnaccardi
-Yes, I am aware of the fact that Sjogren's syndrome effects predominately older women.
-Yes, I have talked to my parents about it, my communication with them is great about this and they know I am very worried.
-I have actually had blood test done, which came back all negative but it was after the negative results that the Rheumatologist said it's probably Sjogren's. Also, there are many people out there who have Sjogren's with negative blood test results.
-I am in the process of making an appointment for a labial biopsy, which is about 80% accurate.
Mr. Accardi, WHY are you planning another blood test!?!?!? First rule of Sarno, repudiate the physical !!!! And, you have had blood tests that RULE OUT SS!!
The rheumatologist you spoke of has permission to be wrong, like most doctors. She said it was probably Sjorgen's ?!?!? Based on WHAT exactly? Based on the fact that she's only trained to see changes in the joints or autoimmune disorders?
Anybody can be less than excellent at their job, and your Rheumo is in that crowd.
You are going through your first year of college. It's all kind of big and scary. I remember. Dor's kid is living it, too.
I like the float don't fight advice given here.
Please, take a deep breath, look around, and be thankful for the health you have. Be thankful for the boxing, and all the physcial activity you are able to do. Try to appreciate the fact that college is a great experience. No parental limitations, a huge opening up of the mind, wild parties, all the stuff. Enjoy this chance that a lot of people would kill to have, but will never have.
Regards, |
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johnaccardi
USA
182 Posts |
Posted - 03/31/2008 : 13:58:12
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h2oskier25, I am not scheduling for another blood test, it's a labial biopsy. I know that Sarno says to repudiate the physical but he says that first you must rule out serious disease. I want to approach this the right way and I still have doubts that I'm trying to rid myself of; more tests can help in that respect.
I am really trying to appreciate what I have now, because I know some day I'll wish I was back in this time and place. It is very hard however and I sure hope this is one of the harder portions of my life. |
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Dor
67 Posts |
Posted - 03/31/2008 : 17:14:08
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John, I do not think you are wrong for ruling out the medical first, and I do not think that Sarno would disagree. The one thing I would like you to do is to try not to put so much pressure on yourself. OK, so this is your first year at college and you are "supposed" to be all happy and having a great time. But, ya know what, that is not always true for everyone and I would be willing to bet, not true for most. Life has its hurdles and this is one of yours. Don't force yourself to be happy, just be!!! Whatever that being is, just be. There is so much life ahead of you and life is going to have its ups and downs, so just because it is college doesn't mean that it is the best time of your life. There are people who never left high school in their brains because that was "the best time".
John, I was married six months before my husband was sent to Vietnam. Here I was newly married and this was "supposed" to be the best time of my life and wow, it was the worst. There was extreme anxiety that took a long time to recover from and a mulitude of physical manifestations of that. And, even when he came home safely, thank God, that didn't mean the road was smooth sailing from then on. Other issues and problems pop up in life. We have recently retired and moved to our ideal place, but that does not mean that life is care free now - a whole host of medical problems have beset me this past year and none that are based in TMS.
My point is, I think you are right to explore every avenue until you are convinced that it is TMS. Maybe it is and maybe it isn't, but I agree, Sarno suggests nothing less. I told you in a recent posting that until we can come to the TMS diagnosis it sometimes requires that the brain accept that it is not physical in nature. There is nothing wrong with that - nothing!
The only one you are required to make peace with is yourself in whatever form that takes. Sometimes it is very important that we explore everything. For example, I have just had a series of severe dental problems - loss of teeth, partials that did not work, TMJ, and ringing in the ears. I know that Sarno lists ringing in the ears as a manifestation of TMS. While I agree that this can indeed be true, since getting my partials last week the ear ringing is diminishing as a result of correcting a bite that was out of line. Did stress make the ear ringing worse? Of course. But there was also a medical component to it as well. In order to heal we must get the medical and the mental to come together. In other words, to quote an old phrase, one can not throw the baby out with the bath water!!!!
My very best advice is to do what your gut tells you to do. The mind and the heart may become confused, but the gut is seldom wrong. You do what is right for you no matter what anyone else says. Everyone is going to have an opinion. But, you know, you really do know what the answer for you is. You just have to look at it honestly and completely. Let you gut lead the way. It will not fail you, promise!
Dor |
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johnaccardi
USA
182 Posts |
Posted - 04/02/2008 : 16:28:49
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Thanks Dor,
I plan on ruling out the physical first. Like you said "go with your gut" and my gut says I will never accept TMS fully and geniunly unless I rule out Sjogren's Syndrome 100%(at least in my perception). Your advice to float through life has helped me. I realize that fighting was the wrong way, we need to just let our feelings ride and trust that God will make it all work out. |
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Not TMS after all?
