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j0yful
17 Posts |
 Posted - 03/27/2006 : 12:21:25
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| A friend of mine was just given the diagnosis of Generalized Dystonia. However the neurologists don't agree and nothing is helping. She has muscle spasms and severe pain all over. Sounds like it could be TMS. Does anyone have any experience with this "diagnosis"? |
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drziggles
USA
292 Posts |
Posted - 03/30/2006 : 07:11:04
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| Generalized dystonia is usually a genetic disorder in young people (teens-twenties). It involves very painful twisting postures of the muscles throughout the body. If neurologists are not in agreement, your friend should go to a movement disorders specialist at an academic center in order to get a definitive diagnosis. This problem can be worsened by stress, but is not TMS. It would be crucial to know if that is truly what they have, rather than a psychologically-induced problem. |
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FlyByNight
Canada
209 Posts |
Posted - 03/30/2006 : 07:34:40
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Drziggles
how come some TMS doctors believe that dystonia is a manifestation of TMS and that they claim having 'cured' patients diagnosed with this disorder by using Sarno's approach ?
thanx for your answer |
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drziggles
USA
292 Posts |
Posted - 03/30/2006 : 14:16:24
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| I would wager that some focal forms of dystonia (torticollis, writer's cramp, other task-specific dystonias) may be manifestations of TMS in some case. However, generalized dystonia, which is usually genetic, is a whole other awful situation. Google some pictures of poor kids with it--their bodies look like pretzels. Very sad. Not TMS. |
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FlyByNight
Canada
209 Posts |
Posted - 03/31/2006 : 09:01:23
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thanx
I appreciate your knowledge about that and thank you for taking the time of sharing it with us !
`P. |
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j0yful
17 Posts |
Posted - 04/06/2006 : 07:40:14
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| Thanks for your responses. I think her doctor just didn't know what to call her muscle spasms. He's given her botox injections with transient relief. MS has been ruled out. She's had 3 MRIs. I think it's TMS but she is no way ready to hear the possibility. She rages about any doctor who might start to suggest there is a psychological element to her symptoms. She's mad at me so I'm not going be the one to suggest TMS. However, another friend who has more patience then me is watching for an opportunity to introduce her to the idea. |
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Grateful
1 Posts |
Posted - 04/06/2006 : 18:36:33
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20 minitues ago a friend told me to look up TMS, I had never heard of it. I have spent the past 2 days having 3 MRI's and 2 very painful nerve and muscle tests. I will be given a diagnosis next week. They are saying possible dystonia, early ms, or cyrvical and spine issues.
I am not sure what TMS means, but I do not have much faith in Western medicine so I am willing to listen and read.
I guess I need to go back to the search page and find something too read that explains what TMS is.
Thank you |
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drziggles
USA
292 Posts |
Posted - 04/07/2006 : 07:43:42
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| Grateful, the first thing you should do is get a copy of John Sarno's book "The Mindbody Prescription". The info on the site is great, but reading his book would be the best introduction to the TMS concepts. Good luck to you. |
Edited by - drziggles on 04/07/2006 14:18:17 |
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h2oskier25
USA
395 Posts |
Posted - 04/07/2006 : 10:16:22
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Grateful,
You are lucky indeed. Both in finding TMS and this forum, AND in the reading material being so easy to find.
"The MindBody Perscription" by Dr. John Sarno is where you want to start.
Best Wishes
Beth |
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vnwees
64 Posts |
Posted - 04/07/2006 : 19:57:39
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| grateful, i agree with the above advice. buy/borrow dr. sarno's "mindbody prescription". keep an open mind and give it a try. the first time i read the book (in 1998) i thought 90% of it was crap...however the 10% that DID seem to make logical sense made me read it again. the second time 90% made sense to me and i immediatly began trying it with xlnt results. i was desperate, terrified and willing to try. that's all that's needed (and a bit of self discipline). it's a shift in thinking at first, but definitly not some twinkie alternative thing as i'd feared. best of luck to you! hang in there...there is great hope...so many have been helped by this! vicki |
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Generalized Dystonia
