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 my tms is going mad
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healingback

United Kingdom
134 Posts

Posted - 12/16/2010 :  12:20:11  Show Profile  Reply with Quote
Hey everyone, so I'm writing I guess for a little support... this past two weeks I've been doing a lot better, the fatique has died down, and this week the back pain dropped down to 60% of what it was... but the skipped heart beats and tightness in the chest substituted the back pain... last night I starting getting gluteus medius pain/cramp then today it went onto scaitica/piriformis pain... I also had tendonitis in my wrist for a few hrs this morning, I got in from work and had neck pain for maybe half hr... I'm laughing it all off... at least trying...

Is ok to stretch or is that against sarnos rules? I.e stretch out the piriformis muscle...

I'm still awaiting the mri results but given the decrease in pain and all these other flare ups... I feel mri or not my head is with tms... it makes sence... its the key... I've just go to get it in the lock properly ;)

This to shall pass....

waterboy

USA
12 Posts

Posted - 12/16/2010 :  16:56:23  Show Profile  Reply with Quote
Sounds like symptom substitution to me. My pain symptoms seem to switch between back/neck/shoulder pain and a skin-level sunburn-type pain. I also occasionally get a mentally-fatigued thick head type feeling on occasion with zero pain. None of these three are ever present at the same time. Thus, the overall level of discomfort is the same, although I've been getting more and more periods where I am pain-free and thinking clearly. I am getting better at seeing these symptoms as all one and the same thing (i.e., TMS/anxiety). Thus, when I do get a flare-up, I can see it as less of a defeat and more a natural process of recovery.

Before I learned about TMS, my symptom was only back pain. Now that I understand the TMS pain strategy, my pain started to find other places to hide. Although this disconcerted me at first, I am trying not to be fooled now. I know that my body is capable of not producing pain, and this gives me confidence and hope. I remember laughing to myself the other day when a pain in my leg that I had a few days ago was replaced by a pain in my back. I think my body will always find places to hide the pain until my fears are confronted and my nerves are desensitized. It's tough and requires daily strength.

I trust that with time and acceptance, the pain will go away completely, and I trust this will be the same with you.

Peace.
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Darko

Australia
387 Posts

Posted - 12/17/2010 :  05:58:53  Show Profile  Reply with Quote
You keep focusing on the symptoms.......they'll chop and change in order to get you to focus on them....which you are.

I recommend you do your stretches until you see they're pointless. Stretching will keep you focused on the symptom and really do nothing for you.

When I have bad pain I have no flexibility.....stretching helps until the next morning. The end result is ZERO net gain....if I focus on my thoughts/feelings then the pain goes and flexibility returns.

Might be different for you.....so give it a go and find out what works for you.

D
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healingback

United Kingdom
134 Posts

Posted - 12/18/2010 :  00:50:38  Show Profile  Reply with Quote
Thanks waterboy and darko, I'm also inclined to think its symptom substitution, but I do find that when for instance the back pain subsided and the heart beats started skipping I was so pleased to of had the heart beats as tms rather than back pain, and I think because it didn't bother me as much as it was the better option for me anyway my tms decided it didn't like me being 'pleased' with this new condition, so on went the scaitica and glute med pain, both of these get to me more as there closely related to the si joint and its an easy thing to go back to and grab my attention... its the harder for me to ignore, but I am, and I will continue to intill this mind trick gets bored of bugging me and thinks 'you no fun, I'm gone'...

My friends and family think I'm on abit of a high ,,, as everytime my mind starts thinking of my back, or some other tms pain I burst into song... or jump on the floor and play fight with my dog, anything which diverts my attention away from the body, I also put pen to paper and just write about whatever comes up, but I've found these past few days I don't have any new stuff to say which I haven't already written about... do you have to continue to write about things even if you've writen them before? Do you have to keep repeating the journalling process intill the tms switches off?

Hb

This to shall pass....
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Back2-It

USA
438 Posts

Posted - 12/18/2010 :  09:00:57  Show Profile  Reply with Quote
quote:
My friends and family think I'm on abit of a high ,,, as everytime my mind starts thinking of my back, or some other tms pain I burst into song... or jump on the floor and play fight with my dog


Interesting that you write this. I started to sing again (in the shower and other places at home). Luckily I live alone so others are spared the many off notes. I also have to drive many miles for work, so I take a camera with me to take pictures of things that interest me. That and I listen to audio books in the car. Helps keep me in the present out of the land of "What if?" and "Oh, My God".

Being "on abit of a high" could be the mindbody's own way of lessening your perception of pain, as pleasurable things do help reduce the actual pain that TMS creates. You could be creating little pockets of a natural high throughout your body. Thinking out loud here.
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waterboy

USA
12 Posts

Posted - 12/18/2010 :  11:08:56  Show Profile  Reply with Quote
I actually don't journal really as I think it would keep me more focussed on pain, and I feel like I understand the condition well enough that I don't think I'd find much catharsis through journalling anyway. It also happened for me that one pain was more desirable than the other, and my body stopped going there as much. But think about it this way: if one pain is more desirable, then that means you aren't afraid of it anymore. You can get there with the rest of your painS too as long as you don't think about them as separate entities. Try to think about what it is about the less desirable pain that bothers you so much and then ask yourself if these are valid concerns or if its just your mind playing tricks. That may be a good journalling exercise if you haven't tried to write about it already.

Also, I would say distract with confidence. I don't think it's enough to just do something to get your mind off. I think it's necessary to do all of your activities with the mindful intention that pain won't hinder your ability to perform the activity. And it helps to mentally laugh at the pain while you're doing the activity or even better after you've done something that you previously doubted you could do with pain. That helps to reinforce the notion that this is sham pain.
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Darko

Australia
387 Posts

Posted - 12/18/2010 :  20:02:59  Show Profile  Reply with Quote
I'm with Waterboy......as in I don't really write much any more. If I need to I write about what is bugging me and what my thoughts are around it then I do, but I'm pretty relaxed about the whole thing. I have found my state of mind and WHAT I think is most important.

Disaster/negative thinking will create TMS pain in me everytime. Anxiety is another one.

One thing you need to be aware of is the 'results lag' what you start doing today may not show up in relief for days, weeks or months. This is why it can take a long time to actually free yourself. It's important to accept the pain and the situation, be at peace with it and then start working on the keys to relief......which are all in the head.

Focusing on the symptoms will keep you trapped.......period

To answer you questions, I had the same issue when I first started off writing. People always say write about your feelings.....thats great. If you continue to have the same stupid thinking about a situation you will continue to have the same stupid feelings......thus you will end up writing the same thing over and over and over and get no relief.

See my point?

Change your thoughts = change your feelings = no need to suppress nasty feelings = relief from pain.

I know I bang on about it constantly.......but after about 13 years and 3 major pain onsets.......this is what gave me relief.


D

Edited by - Darko on 12/18/2010 20:19:54
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healingback

United Kingdom
134 Posts

Posted - 12/19/2010 :  10:39:26  Show Profile  Reply with Quote
Darko bang on all on you like, you speak sense, and your no nonsence way gets to the point, keep it coming...
Thanks to all the other info from others, coming on here, I read, I take it on board and when I get stuck or start doubting myself I come back on here and re read all these post... my thing at the moment is I now completely accept the tms, I'm still at the earlier stages but given the changes I've had so far its more than enough to keep me going, I'm still waiting to get back to the gym, being a personal trainer I know this is going to be the hardest thing to get around, but I haven't reached the point where the pain has subsided enough to get started on the exercise side of things...

I feel like now I know its tms, everytime something stresses me out I'm scared of a tms attacked and I think I'm even looking for one... any ideas on how to get through that fear?

This to shall pass....
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Darko

Australia
387 Posts

Posted - 12/21/2010 :  05:12:47  Show Profile  Reply with Quote
HB,
not sure if that Q is directed to me or you're putting it out to the forum. If to me, then you need to re-read my last post until it sinks in. Fearing the symptom is focusing on it......you cannot push away that which you don't want, you can only attract something else.

observe/change thoughts, don't focus and fear the symptoms. Do this for a month and commit to it.....see what happens

you gotta do the work now.

D
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scd1833

USA
124 Posts

Posted - 12/30/2010 :  19:07:08  Show Profile  Reply with Quote
when the pain moves around like that, it's a sign that the treatment is working and you have tms on the run.
keep up the good work
forget about stretching right now, wait til your feeling better before you get back to physical activity
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