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scd1833
USA
124 Posts |
Posted - 12/29/2009 : 11:08:33
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I'm having an irritation to the tip of my tongue, and I seem to be totally obsessed with it. I've seen MD's and oral surgeons and they don't see much, but I'm really worried and obsessed with it. I'm a classic TMS case with lots of other tms symptoms that pop up when I have an episode of back pain.(holidays!) is this TMS? has anyone had an experience like this? I'm getting really worried, and it seems to be making it much worse, and distracting. it act's like another tms substitute, but it's hard to ignore it. any help is appreciated
thanks, Steve |
Edited by - scd1833 on 12/29/2009 11:09:45 |
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catspine
USA
239 Posts |
Posted - 12/31/2009 : 01:22:49
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Hi I do not know if it can be TMS but maybe if you've been under pressure it is possible that the tip of your tongue pushing against your teeth repeatedly from the tension can become more sensitive or inflamed. the tip of your tongue is where the taste buds are. Did your doctor give you a list of food to avoid for the time being? Good luck. |
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winnieboo
USA
269 Posts |
Posted - 12/31/2009 : 07:07:26
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I am going through a similar thing scd, only the irritation for me is on the left side my mouth, but mostly my tongue. Feels sore, swollen, painful, like it's rubbing on the inside of my teeth. It's been going on for six months, triggered by a biopsy (I had a benign fibroma removed from the inside of my cheek) and some dental work.
Everything was so irritated and painful that I had a root canal on one of the upper teeth at Thanksgiving which helped my mouth a bit (turns out the tooth was very inflamed) but did nothing for my tongue. I've seen several MDs and the oral surgeon. Everything "looks" normal, nothing looks swollen. They don't agree on any diagnosis (if they have one at all). I've been told TMJ, trigeminal neuralgia, nerve damage from a novacaine injection (which has since been ruled out), and now the dentist thinks I may have another bad tooth. I'm reluctant to rip up another tooth if it's truly unnessary, not to mention that I greatly fear dental work at this point! Anyway, all is very unclear.
On my good days, I think it's TMS because I've experienced hours or a day or two per week when the pain and strange sensations go away completely. On my bad days, I go back to ruminating over what could be wrong and I get extremely frustrated and anxious. On those days I am not relaxed. My jaw does feel tighter, my tongue feels tight or twisted on the left (and could definitely be described as feeling tense) and my left shoulder tenses also.
For the time being, I'm working through a book on anxiety that was recommended by a Forum member, and I started journaling again (something that has not really worked for me in the past). The days that I journal I seem to feel better. I am not in therapy currently but am hoping to return (looking for the right person). My past TMS therapist thought that my mouth symptoms were definitely TMS.
Hope you feel better. I know exactly what you mean. Pain in your mouth is beyond annoying. Very hard to ignore. |
Edited by - winnieboo on 12/31/2009 07:13:51 |
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drziggles
USA
292 Posts |
Posted - 12/31/2009 : 10:08:41
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Sounds like "burning mouth syndrome", which is definitely a TMS equivalent. Surprised no one came up with that as a possible diagnosis.
Of course, you should consult with your physician before making any medical decisions. |
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scd1833
USA
124 Posts |
Posted - 12/31/2009 : 10:58:38
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thanks everyone for your comments winnieboo, .seems like we have alot of the same issues, I don't fear dental work, but I am terrified of cancer, etc., and I have a LOT of dental work that still needs to be done. so that's another source of anxiety I had the "burning tongue" symptoms also for a long time, now it seems to be focused on the tip. I also had a small fibroma removed, but I was convinced the surgeon missed it even though I had a nice crater burned in my tongue. I sure seems like TMS, but the sensations are so bothersome it's very hard to think of it as a TMS equiv. and impossible to ignore. oh well happy new year! |
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winnieboo
USA
269 Posts |
Posted - 12/31/2009 : 11:42:09
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scd: I've got the cancer fear, also. I thought my surgeon missed my fibroma as well! So sorry you are going through this. Keeping the focus on TMS gives me hope.
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catspine
USA
239 Posts |
Posted - 12/31/2009 : 14:48:07
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SCD1833 and Winnieboo, While my own problems were escalating a few months ago I was subjected to fear of cancer that triggered extreme panic and anxiety attacks at the time because I couldn't explain the severe symptoms and nor could the physicians I sought help from but somehow from one test to the next it helped to eliminate some of the questions leading to irrational fears.
The visit to the 1st doctor didn't make it any better when he mentioned cancer in the worst case scenario and left me with this for a 3 weeks until the test results became available.I learned a simple thing to do from that : tell the physicians you're seeing before the visits start so they can consciously eliminate the words triggering unnecessary worries from their diagnosis. it seems logical they would be considerate enough to do so but they can make mistakes too sometimes.
Although I usually wait and see what happens until I understand what's going on before making a move I follow through with what I have to do as rule #1 for my health. It is always a difficult period mentally but it saved me a lot of trouble and money since I moved back to the US. In Europe I never had to worry about cost or question what the motivation of the doctor was or how they proceed to do their job so it took some adjustment when big problems hit me here.
Anyway the idea is not to let fear rule the game. From a distance it looks like your best chance to lower the fear level would be to 'kill two flies at once' by seeking second opinions and solutions to getting the dental work done properly and to proceed once you have it all figured out. Teeth are serious stuff with a high potential for complications and you definitely want to eliminate that out of the picture before anything else and asap. By eliminating the doubt it will boost your ability to deal with TMS as well. if the problem came from your teeth your tongue will know the difference and let you know once the dental work is done. Naturally it will take a while to find out as things return to normal but chances are that if TMS is trying to get its share of the pie by invading your tongue it will probably disappear or try to move to somewhere else for better luck after that. First thing first.
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scd1833
USA
124 Posts |
Posted - 01/05/2010 : 21:52:02
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thanks for your input everyone, I have a lot of the same symptoms as winnieboo, I think it probably is a TMS substitute, and hearing from all of you has seemed to help make it better. I've also been reading "the divided mind" this week while sitting and waiting for jury duty. thanks so much again. |
Edited by - scd1833 on 01/05/2010 21:52:56 |
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