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mseymour88
USA
26 Posts |
 Posted - 04/13/2009 : 07:47:54
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Ok folks
I have now been diagnosted with Interstitial Cystitus.( wonder how they came up with that word?)
Anyway, I am well aware that this is a TMS equivalent.
I was just wondering if anyone could share thier experiance, and maybe suggest dietery stuff, that would help with symptoms.
Thanks
Mike |
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RageSootheRatio
Canada
430 Posts |
Posted - 04/13/2009 : 08:11:02
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| I was also diagnosed with this by my doctor who prescribed medication and suggested I look up dietary advice to help. I had already been successful at treating my "sinus headaches" as TMS and really just wanted him to rule out something serious. So I completely rejected his diagnosis, and treated it as TMS, which I feel has been quite successful. There was NO WAY I was going to start focusing on dietary things and continually checking to see whether my bladder was hurting or not! |
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mk6283
USA
272 Posts |
Posted - 04/13/2009 : 10:07:45
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quote:
Originally posted by mseymour88
I was just wondering if anyone could share thier experiance, and maybe suggest dietery stuff, that would help with symptoms.
You need to go back and read the books. TMS isn't a disorder treated with medications, dietary modifications, etc. Thoughts like that will only hinder your progress. TMS is a psychosomatic syndrome that is a widespread epidemic in our society. You have to understand that a cure requires a change in your mindset, a change in the way you process and express your emotions (new and old), and a change in the way you think about pain and disease. Interstitial cystitis (aka Irritable Bladder Syndrome) is definitely a TMS equivalent and it requires a TMS/psychologically-oriented treatment approach.
I had a similar experience myself just a couple days ago. I woke up with some bad knee pain for the first time in my life. I had done some running the day before and I just assumed that it was probably some tendonitis that would clear up on its own real soon. The pain started to get a little worse as the day progressed so I thought that I might as well take some Motrin. As I was about to pop the pills I said to myself "I know better than this. What the hell is going on?" It was then that I remembered that I left a deposit on an engagement ring the night before I woke up with the pain. I was going through some major changes in my life that I hadn't fully processed and/or accepted. My knee pain wasn't a reactive inflammatory response to running, but rather a psychosomatic response to what was going on in my life. Our bodies are our subconscious minds. I never took the Motrin. My knee pain cleared up in a few hours and has been fine ever since.
Good luck!
Best,
MK |
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mseymour88
USA
26 Posts |
Posted - 04/13/2009 : 10:25:00
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Thanks MK.
You are absolutely right.
Mike |
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forestfortrees
393 Posts |
Posted - 04/13/2009 : 20:46:06
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A great person to talk to about IC would be Abigail Steidley:
http:// vulvodyniacoach.wordpress.com/about-abigail/ (remove the space)
I'll let her know about this thread.
She wrote the following text for the wiki's IC page (it isn't there yet for technical reasons):
(Abigail’s Story)
I was diagnosed with vulvar vestibulitis, vulvar dysesthesia, interstitial cystitis, and pelvic floor dysfunction several years ago. I was unable to work, wear underwear, sit, or walk. After seeking medical treatment but not finding much pain relief, I began applying a mind-body approach. I worked with a woman who taught me how to effectively reduce stress via deep breathing, and became more and more interested in mind-body methods. I was seeing immediate results just from the breathing exercises, and began studying everything I could find. When I came across Dr. John Sarno’s The Mindbody Prescription, I was already completely sure that my illnesses were a result of how I was dealing with stress, how I was living my life, and how I was dealing with emotions. So when I opened the book, it really hit home. I was clearly a perfect match for the Sarno personality profile, and though he never specifically discusses vulvodynia in the book, I knew it simply had to be a manifestation of TMS or mind-body syndrome.
I had already had considerable pain reduction, but reading the book brought everything into even more clarity. I did not seek the particular analytic therapy recommended by Sarno, but simply found methods of dealing with my own mind and emotions that were highly effective. Before I knew it, I was completely pain free. I was so focused on the inner work prescribed by both Sarno and the breathing expert I actually did not even notice when the pain disappeared. Now I maintain a lifestyle that includes this kind of inner personal awareness and focus, which has actually brought incredible and fantastic changes in every area of my life. I feel connected to my soul, joyful, energized, and just plain happy.
IC and TMS (or Mind-Body Syndrome) Resources
http:// www. yourpainisreal.com/ (Dr. Howard Schubiner)
http:// vulvodyniacoach.wordpress.com (Mind-Body Health Coach Abigail Steidley)
http:// vulvodyniacoach.files.wordpress.com/2008/12/schubiner-interview1.mp3
(Remove all extra spaces in the links. The spaces are to ensure compliance with TMSHelp's policies because the above websites sell services. I'm not just being mean to the other websites.  I don't need to put the spaces in for links to the wiki since the wiki doesn't sell anything and doesn't have any advertising. )
tmswiki.org |
Edited by - forestfortrees on 04/13/2009 20:51:16 |
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AbSteidley
10 Posts |
Posted - 04/14/2009 : 10:28:44
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Hey Mike,
I dealt with IC as a mind-body syndrome/TMS, and it worked like a charm. I now coach (I'm a mind-body health coach) lots of people dealing with that and other pelvic pain syndromes, and have added my own twists and additions to the mental aspects of Sarno's basic ideas. Basically, I enhanced the places where I got stuck. There's a ton of free info on my blog, which Forest posted above, so check it out and hopefully it helps. I have lots of other resources/links, too. Dr. Schubiner (mind-body doc) suggests we call IC irritable bladder syndrome, which makes SO much sense to me. Don't fall into all that IC food garbage. Uck. It doesn't work and will just make you crazy. Stay out of the internet IC forums - they will just make it harder for you to follow a TMS-type approach. You can ABSOLUTELY do this! Feel free to email me with questions anytime - you do NOT have to be a client of mine to talk to me via email or find helpful free resources on my blog. I strive to be a positive force in the TMS/mind-body area regarding pelvic pain issues.
abigail@thehealthylifecoach.com
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mseymour88
USA
26 Posts |
Posted - 04/15/2009 : 06:56:05
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Thanks Abby
I will be in touch
Mikequote:
Originally posted by AbSteidley
Hey Mike,
I dealt with IC as a mind-body syndrome/TMS, and it worked like a charm. I now coach (I'm a mind-body health coach) lots of people dealing with that and other pelvic pain syndromes, and have added my own twists and additions to the mental aspects of Sarno's basic ideas. Basically, I enhanced the places where I got stuck. There's a ton of free info on my blog, which Forest posted above, so check it out and hopefully it helps. I have lots of other resources/links, too. Dr. Schubiner (mind-body doc) suggests we call IC irritable bladder syndrome, which makes SO much sense to me. Don't fall into all that IC food garbage. Uck. It doesn't work and will just make you crazy. Stay out of the internet IC forums - they will just make it harder for you to follow a TMS-type approach. You can ABSOLUTELY do this! Feel free to email me with questions anytime - you do NOT have to be a client of mine to talk to me via email or find helpful free resources on my blog. I strive to be a positive force in the TMS/mind-body area regarding pelvic pain issues.
abigail@thehealthylifecoach.com
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INTERSTITIAL CYSTITUS
