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Wavy Soul
USA
779 Posts |
 Posted - 03/07/2007 : 22:44:29
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The thing about fibromyalgia, from my point of view, was that because it kept moving around, it wasn't so easy to "work through."
One of the "drips" I had that eventually led me here was that I read a study saying that they found that people with fibromyalgia who focused a lot on the pain were developing MORE pain pathways! So a very real treatment was painkillers, even though they can be a problem, because they take the patient's focus off the pain.
When I read that, years ago, I saw the light for a few seconds. But soon plunged back into darkness as I searched the web for information on - let's see, maybe it was "hiatal hernia" that day!
Chantal! Come back! We're with you. We are you. We all resemble our own remarks!
xxx
Love is the answer, whatever the question |
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sonora sky
USA
181 Posts |
Posted - 03/08/2007 : 07:34:11
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I'm not sure what to say or how to help, Chantal. It seems like you will not believe fibro is TMS until it is proven, scientifically, beyond a shadow of a doubt, that each and every sypmptom is in fact mind-body related. (Is this correct?) I guess the answer to your question is "no," all these symptoms have not been addressed by Sarno (though many of them have). Perhaps, if you were able to schedule a personal appointment/exam with Sarno himself or another TMS doctor, they may be able to go through the list of symptoms with you and tell you 100% that they are TMS, or that they strongly believe that they are. I think this may be the only way (at this point in time) that you would be able to get a definitive answer. Though I'm not sure that they would be able to offer you "proof" in the form of studies/reports, as in many cases, these have not yet been performed. (Additionally, mindbody symptoms/disorders are often difficult to test/quantify with hard, cold science.) So, I think you may be at a stalemate (sp?) in your personal exploration of TMS.
Do try the book that has been recommended on this thread, as it presents fibro, specifically, as a TMS concept.
I hope you will find relief, through this method or another. Good luck,
ss
p.s. FYI for those reading/responding, Chantal edited new comments into her original post. |
Edited by - sonora sky on 03/08/2007 08:26:17 |
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alexis
USA
596 Posts |
Posted - 03/08/2007 : 08:20:28
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Hi Chantal,
I don't know if you are still reading here, but I wanted to direct you to this topic by Dave, the forum moderator, to provide some perspective on what you have experienced here:
http://www.tmshelp.com/forum/topic.asp?TOPIC_ID=2300&SearchTerms=forum+isn't
Certainly we could have handled some things a little better, and maybe you would have stayed around a few weeks longer. But I think you still want the kind of support available in a fibromyalgia group. This is, if you have TMS, both counter-productive and, frankly, no longer likely to be available to you in the fibromyalgia world, once you have crossed the TMS line.
If in a few months you have a new perspective on what happened here, just come back. Pick a different screen name if you want. It won't be a big deal to anyone.
I noticed you never commented on the book recommended by many of us here (or on any other piece of advice, for that matter ... in either you current or now deleted posts). I hope you will pick up this book.
And I hope you will look seriously at the reason why you focused on specifics you found negative, but never once commented on any specific of advice or support, offering ever only a general and vague "thanks". And yet you listed in detail every item you found offensive.
You came in announcing in your first post that you already expected to meet a lack of understanding, and as a result, that is mostly all you saw.
I think, by the way, that you are misreading the quote that you posted in your modified introductory post. Read it again. I will let the author clarify, but I am pretty sure it refers to those being offended and not those perceived as offending. |
Edited by - alexis on 03/08/2007 08:31:18 |
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tennis tom
USA
4749 Posts |
Posted - 03/08/2007 : 09:27:57
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quote:
Originally posted by Chantal
quote:
I see no reason that anyone needs to appologize for their replys because no one wrote anything negative or insensitive. It is the TMS gremlin just f...ing with us.
I have removed my list of hilarious symptoms. It was not taken seriously and it was a major mistake to post here. I never got my question answered. It is impossible to write off all symptoms as "just TMS" when they have never been discussed or mentioned in TMS literature. "Fibro" symptoms go far beyond the average "wide-spread muscular pain" that most of you think it is. So, how can one honestly TRUST that? Just because some of you sarcastic folks say so? C'mon! You all seem to liberally write things off as "just TMS" regardless of WHAT those symptoms are! It is also interesting how some of you conveniently blame the "TMS Gremlin" for your rancor and lack of compassion. "TMS made me do it"... please...
I will continue to study Sarno, but this place... talk about a stress-rage-generator! Now that I have read many posts out here, I see that this is nothing new. Some of you guys are really mean to each other, and seem to enjoy the sport of attacking one another out here all of the time... well no thanks!
Again to those of you who responded with care and genuine support...
my sincere thanks and good luck to you.
Well, that was an interesting case. I hope if anyone is doing a "clinical" study or doctoral thesis, from the TMS research gleaned from this board, that they take full note of Chantal's important contribution.
That was one of the most whirl-wind arrivals and departures I have witnessed, (and for a change), I don't think I can be blamed for being one of the "TMS meanies" driving Chantal away (being a late arrival to the scene of the thread).
Her case displays how fibro/TMS is truly one of the most severe forms of psychosomatic/psychogenic disease. No one said anything that remotely required apology, yet some in typical TMS-goodist fashion apologized anyway. Chantal, in a classic example of TMS "in-accurate" observational thinking, misconstrued everything said to her.
Her thinking inputs are 180 degrees off, therefore her pro-preoceptive inputs are equally off. . No matter what anyone would have said to Chantal, she would have mis-construed it as an attack--she is fully defensed.
She did say that she would stick with the TMS books and that is the BEST thing she can do. Maybe the TMS "knowledge penicillin" will get there some day on a cellular level. As for the the "mean" spirited debate she alludes to (I, for one, have NO idea what that's all about  )-- WELLCOME TO THE REAL WORLD! It often SUCKS, causes stress, rage and TMS psychosomatic dis-ease.
Who has the time to go down that list she presented to study and reply as to which is legit and which is psychosomatic? You get what you pay for--and none of us are getting paid to provide treatment to a perfect stanger.
Rather than being grateful for the sincere help she was given, gratis, she cut and ran. Well I guess she or her insurance comapany will continue paying thou$$$and$$$ of dollar$$$ for more bad advice. What a pity. It points out whether the purpose of the board is to give attention or useful TMS accurate information. Maybe she was a troll, that's always a possiblity over the internet.
I answered her question but it went right by her. Good try kids, better luck next time.
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miche
Canada
283 Posts |
Posted - 03/08/2007 : 12:05:14
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One does not have to be right nor wrong to extend an apology, it is sufficient to know that our words or actions have hurt someone, to be able to do so is not tms goodism, it simply means that one has empathy, grace, and maturity. Bravo to the ladies who cared enough about a fellow sufferer to apologise ,to explain, and to reach out. |
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tennis tom
USA
4749 Posts |
Posted - 03/08/2007 : 13:00:27
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WHATEVER  --what do you expect from a dumb guy, (not to mention an idiot and an imbecile). But please, I'm certainly not looking for an apology. |
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Victoria008
USA
26 Posts |
Posted - 03/08/2007 : 13:34:13
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Wow, what a thread! After reading I broke down and cried. Today has been a terrible day for me. I decided to give up. When I first read 2 of Sarno's books and then found this forum, I had hope and started feeling better. So I got real excited and thought it was all behind me. Then I had a few bad days, then more, I wasn't doing much journaling or reading. I just wanted it to be over NOW! During the last 2 weeks it's like all the symptoms came back, plus some new ones. I kept trying to stay positive and not focus on it, then today, I just lost hope. Whatever this syndrome is I don't care, F--k it! I quit! If I have to quit my job, go on disability and lay on my hot pad for the rest of my life so be it! I am tired of fighting! I went to work with this attitude. Came home and for some reason wanted to read the forum. This thread was very helpful. Made me realize that everyone here has or is suffering. That many of you here have felt the same way I do now. Like poor Chantal. The fear and anger can be overwhelming! It can make one feel so desperate. One thing I learned from the threads is that it takes time. I am impatient, cuz it just feels so horrible some days. I know you know what I mean. Baffling and powerful.
I want to thank you all for sharing your experience, strength and hope. You sure helped me today.
Victoria |
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Wavy Soul
USA
779 Posts |
Posted - 03/08/2007 : 14:38:43
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quote:
One thing I learned from the threads is that it takes time. I am impatient, cuz it just feels so horrible some days. I know you know what I mean. Baffling and powerful.
Victoria -
yes, that is the big thing. It takes time, just like those other programs you are obviously alluding to!!!
Welcome to Sick-Anon
Although you may not like us, you may come to love us, the way we already love you.
xxx
Love is the answer, whatever the question |
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miche
Canada
283 Posts |
Posted - 03/08/2007 : 15:07:58
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Victoria I have fibro, I understand your despair, but you mustn't give up, last night it occured to me that fibro is the equivalent of a suit of armor for me, it may keep me stiff and rigid , but it protects me also, as long as I wear it I look calm and composed and it suits my purpose , I will visualise shedding it like the burden that it has become, journalling has had minimum effect on my pain level, maybe this new approach will help. |
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miche
Canada
283 Posts |
Posted - 03/08/2007 : 15:18:01
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| Victoria I have fibro, I understand your despair, but you mustn't give up, last night it occured to me that fibro is the equivalent of a suit of armor for me, it may keep me stiff and rigid , but it protects me also, as long as I wear it I look calm and composed and it suits my purpose , I will visualise shedding it like the burden that it has become, journalling has had minimum effect on my pain level, maybe this new approach will help. |
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miche
Canada
283 Posts |
Posted - 03/08/2007 : 15:25:49
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| Sorry for the double posting, computor problem, maybe it has tms also lol |
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If FIBRO is TMS- are ALL of these TMS equivalents?
