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Sara
66 Posts |
 Posted - 09/29/2004 : 11:18:31
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I was wondering if anyone out there has pain in their SI joint and/or pubic bone. My back has bothered me since 1995. After the birth of my second childb two years ago, my pubic bone started to be quite painful as well. Could this be TMS? I have been through many treatments with little to no success. The pain is affecting me in so many different ways as I am sure many of you already know. If this may in fact be TMS, does anyone know a doc in the Denver area? Any insight is appreciated.
Thanks,
Sara |
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Suzanne
USA
66 Posts |
Posted - 09/29/2004 : 19:34:22
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It can very well be TMS. I have pain in the SI joint and pelvic area. Dr. Sarno diagnosed me with TMS, and said TMS in the pelvic area is not as uncommon as many people think. TMS of the pelvic floor, tailbone, and other bottom areas are mentioned in The Mindbody Prescription.
I went through every imaginable treatment possible before finally finding Dr. Sarno.
A full list of TMS doctors is on http://www.tarpityoga.com/directory.html |
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bernard
8 Posts |
Posted - 09/29/2004 : 20:14:14
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| Suzanne, prior to your visit to Dr.Sano had you been diagnosed with sacroiliitis or sacroiliac joint disease ? |
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Suzanne
USA
66 Posts |
Posted - 09/29/2004 : 21:39:30
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I'd been diagnosed with so many things, it was getting ridiculous.
Sacroiliac joint dysfunction was just one of the dx's. Twice I was diagnosed with Coccydynia, twice with Levator Ani Syndrome, once with Piriformis Syndrome, once with Myofascial Pain Syndrome, and once with Pelvic Floor Myalgia. My internist said that had I continued to go from specialist to specialist, Fibromyaligia was next on the list. (He believes I have TMS) |
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Sara
66 Posts |
Posted - 09/30/2004 : 08:58:07
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Suzanne,
How long have you had the pain? Are you better? My pelvic floor was quite sore for a long time, but is now better. Most of my pain is in my pubic bone, lower back, SI area, butt and legs. I am not sure my personality fits the TMS profile. I have gone through stages of being a perfectionist, but other times I do not care how well something is done. My pain limits me quite a bit and I have bouts of mild depression. I feel that I am in touch with my emotions, but I definitely have fear of pain. I have trouble visualizing myself doing any sort of physical activity and have pangs of jealousy when I see others running, jumping etc. I have two small children and really want to be an active mom. We also want to have a third child, but I am terrified of more pelvic pain. Anyway thank you for responding. I would like to embrace this diagnosis, but feel that I need a doc to say it is so. There aren't any doctors near me that are listed in the Tarpit Yoga site. Is there any other way to find a doctor who has a greater understanding of TMS? Thanks again.
Sara |
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tennis tom
USA
4746 Posts |
Posted - 09/30/2004 : 09:37:24
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Welcome to TMS-land Sara,
About five years ago, I thought my pain was coming from the SI joint. Thanks for reminding me. I had forgotten all about that mis-diagnosis. I have a shelf full of medical books, anatomy, physiology, human body disection videos, etc. I had also been dx'ed with piriformis syndrome, ITB band, significant arthritis, pinched nerve at L4-L5, scar tissue adhesions, soft tissues issues, congenitaly small hip socket ("maybe"), etc.
With each new dx I would run to my book shelf and research the body part. And, surprise, surprise, I would be able to visualize the offending part and the pain would be right there-don't ask a barber if you need a haircut. Sports injury books are great for this. Needless to say, my hip never got better, the pain would just zero in on the newly diagnosed area.
So, IMHO, SI pain can and probably is TMS. The only thing that has really gotten me better and enables me to play through is accepting TMS as the source of my pain. Sara, thanks for reminding me of some of those past mis-diagnoses. They helped remind me of how TMS can move aound.
Hope this helps,
tt |
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Suzanne
USA
66 Posts |
Posted - 09/30/2004 : 10:24:31
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Hi Sara,
I've had it since March 2000, and saw Dr. Sarno in 2002. I'm in therapy with a TMS psychologist via Dr. Sarno.
Prior to Dr. Sarno and therapy, I never had pain-free times and the pain was taking over other areas, like my hips and going down my legs. After Dr. Sarno, it stopped that. Also, after getting diagnosed and being in therapy, I've been able to go on vacations or away from home and be 100% pain-free for as long as I'm away. This proved the TMS diagnosis more than anything else because only my mind knows I'm away, not my muscles, bones or nerves. I was unable to go away pain-free prior to getting the TMS diagnosis, so that's progress in itself.
Since the emotions causing TMS are repressed, we're unaware of them. You might feel you're not a candidate for TMS, but your unconscious thinks in a completely different way. Which book have you read? I'm not sure, but I think in The Mindbody Prescription Dr. Sarno explains how the unconscious resents things we see as joyful, like having children. To the unconscious mind, this is a burden and stressful. That part of your mind thinks/behaves like a little child.
If you can make a trip to get a diagnosis, it's worth it. This many years of suffering is worth a flight to a doctor to find out and see what happens. |
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Sara
66 Posts |
Posted - 09/30/2004 : 14:23:20
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Thank you all for your replies. One more question. Does Dr. Sarno see out of state patients?
Sara |
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floridaboy
40 Posts |
Posted - 10/01/2004 : 17:15:53
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| I understand that he does not. |
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Suzanne
USA
66 Posts |
Posted - 10/01/2004 : 20:23:12
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Someone posted once that he would if you are willing to see him for the initial exam and then come back for the lecture, which is usually not too long after you see him. I'm not sure 100% about this, though. I would try to find out somehow. If not, call the other TMS doctors and see what they can offer.
Dr. Nancy Selfridge is in Wisconsin. She is the author of Freedom from Fibromyalgia ("Physician Selfridge and self-help author Peterson are former fibromyalgia (FMS) patients who credit their recovery to a program based on the work of Dr. John Sarno (The MindBody Prescription)."
Your other options are California, Florida, DC, and Vermont (for the well-known TMS doctors).
There is a video of the lecture Dr. Sarno gives, available online for purchase, and there's an audio version of one of the books. Many people find them helpful.
Getting the diagnosis might be what you need to really get past the iffy feelings you have about it, but if you can't get one, you should try all the different approaches available, and methods, via the books and other TMS-related help items available. Many people I've spoken to don't feel they fit the TMS profile, but once the dive into the books and listen to the lecture, they realize that they are more prone to TMS than they wanted to admit, or knew. Some started feeling a bit better as they read the books or after watching the video a few times and it sunk in. Everything is worth a shot. |
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Could SI joint pain and pubic bone pain be TMS?
