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 trigeminal nerves
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FlyByNight

Canada
209 Posts

Posted - 01/26/2006 :  19:21:03  Show Profile  Reply with Quote
IS there anyone who experienced TMS pain in the first cervical vertebra (just at the base of the skull) with pain in the trigeminal nerve irradiating the side of the head and the face ?

This pain is quite new to me , id like to hear from previous experiences .

thanx

Pat.

CherylH

USA
21 Posts

Posted - 01/27/2006 :  08:13:40  Show Profile  Reply with Quote
Hi. yes, that's where my journey began as well.

Somewhere after my finding out about TN I learned of Dr. Sarno's work. I started to read it and decided I needed medication and a hole to crawl in, it was just too painful to consider alternatives. Move ahead a year and another bout of TN and I started doing research in earnest. I learned of various dental anomalies, mercury, MS (an MRI pointed to possible MS).... and then spent 6 months pretty down and out believing the pain was a symptom of MS.

The pain disappeared - for the 2nd time, although that 2nd bout was pretty intense at times and I seriously felt like I could be suidicidal. I went on neurontin and stayed on it for a while and I started to feel normal again except for the fear of facial pain. It was a logical place for me to have pain because I've had dental problems for 25 years.

Then I developed sharp twinges in my elbow, which I thought was overuse, a repetitive stress injury caused by trying to learn the steno machine. Somewhere during the first few months of dealing with this, I once again heard about Dr. Sarno's work and I thought I had one of his books. I went to the basement and found it - devoured it with a few days, and all the pieces started to fit together. Dr. Sarno mentioned TN in the Mindbody Prescription but just a short reference. I wholeheartedly believe my facial pain is part of this whole thing. I'd started dealing with some emotional issues that I had no idea were as intense and sad for me as they were - starting to read his books and Schechter's, and Fred Amir, I started to see the light.

My facial pain episodes occurred over the summer of 2001 and again in 2002. I haven't had any facial pain since - now it's all in my right arm. I really don't know how you'd go about ruling out TN as a true condition and decide it's TMS - I think all the Sarno Drs are orthopedists. Do you live anywhere near any Sarno doctors, do you know?

I hope this helped a little. Hang in there - I hope the facial pain is not too intense. A friend of my brother was recently out on disability because of TN - I hope yours is not as bad as that... Cheryl
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FlyByNight

Canada
209 Posts

Posted - 01/27/2006 :  09:04:38  Show Profile  Reply with Quote
SHould I undestand that you got rid of your pain since 2002 by diving into TMS approach 100% ?

By the way, I live in Canada and there is no Sarno doctors nearby, unfortunately

P.
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CherylH

USA
21 Posts

Posted - 01/27/2006 :  12:31:32  Show Profile  Reply with Quote
Well, I don't know if it's coincidence or not, but nothing done medically stopped the facial pain, and it's not recurred since I started believing in Sarno - and the pain's moved - another TMS issue.

Not sure what part of Canada you're in but Duluth MN is pretty close to Canada... I guess for anyone who doesn't see a Sarno doctor, it's a matter of belief. Unfortunately there's no tests they can run to prove or disprove trigeminal neuralgia - symptoms = diagosis. Cheryl
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FlyByNight

Canada
209 Posts

Posted - 01/27/2006 :  13:05:10  Show Profile  Reply with Quote
I am in Montreal, Quebec , Canada...

You are right. For me It has to be an act of faith cuz there is no professional support here apart family and friends....


Pat

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Mary

USA
9 Posts

Posted - 01/29/2006 :  07:58:06  Show Profile  Reply with Quote
quote:
Originally posted by FlyByNight

IS there anyone who experienced TMS pain in the first cervical vertebra (just at the base of the skull) with pain in the trigeminal nerve irradiating the side of the head and the face ?

This pain is quite new to me , id like to hear from previous experiences .

thanx

Pat.

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Mary

USA
9 Posts

Posted - 01/29/2006 :  08:12:54  Show Profile  Reply with Quote
Hi Fly,

Yes, my journey to the depths began after several invasive dental procedures (really a guessing game). After all the procedures they could think of had been done and I was in worse shape, they started using diagnoses such as "atypical trigeminal neuralgia, arthralgia, myofascial pain, (you get the picture). This lasted nearly two years before I got to professionals that realized the brain had to be "turned off" to sending pain signals. While the diagnosis was never TMS (never heard of it until recently), I was prescribed many oral medications which only caused side effects and no improvement. Finally, an enlightened specialist prescribed a gel to rub on the painful areas. The gels consisted of Elavil, Tegretol and Lidocaine. In no time, I was feeling so much better! I rarely need to use the gels anymore and if I have a flare=up, I know I can make it go away by ignoring it for a day or two. The parallel I am drawing here, is that the brain "learned" to quit hurting there. The brain no longer tortures me with pain in the jaw and face. It learned to move onto other areas such as back, leg, foot and ankle. Now that I am feeling more in control and after studying Dr. Sarno, I truly believe my diagnosis for everything is TMS. This is a new journey....just starting out but I intend to give it my best shot. Hope this helped you in some way.

Mary
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