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Kluvnp
USA
9 Posts |
 Posted - 08/07/2005 : 10:33:48
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Hello. I just found this forum today. I have read a bit on TMS today and I'm certain that I have this rather than fibromyalgia. I have known for quite some time that there was a mindbody connection as the cause of my pain. My symptoms wax and wane depending on my emotionsal state. My pain and muscle tension will increase by 100% after an angry outburst or any kind of emotional stessor or upheaval. After a night of sleeplessness my pain is stronger. My mind hurts and therefore my body hurts and that's where I am.
I'm just beginning on the path to healing, starting today with this realization finally of what I have once and for all. I just now within the last couple of hours have realized that I have TMS. There's a name for this tension. There's an explanation for this pain. It starts in my mind as supspected and I can treat it rather than the incurable nature of fibromyalgia. I finally know and I'm so thankful. There is a name for the unrelenting tension in my head, spine and body that causes me to feel as if I'm going to snap.
I have suppressed who I am and most of my feelings for so long. They had to come out some how. Pain finds it's way out; if not through one outlet, than another. I'm tired of hurting and I'm ready to heal my mind and body. I need help.I'm going to get that book today by Dr. Sarno if I can find it. I'll try Borders.
Thank you, Jim, for coming to Efibro and posting the link to this site. You may have just saved my life. I'm glad this forum is here.
Thank you everyone for your input, for your honesty and for sharing.
Take care of you.
Sincerely,
Kluvnp
If you want it come and get it, crying out loud. The love that I was giving you was never in doubt. Let go your heart, let go your head and feel it now. Let go your heart, let go your head feel it now, babylon.
Chorus of "Babylon" by David Gray |
Edited by - Kluvnp on 08/07/2005 11:48:54 |
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leegold
USA
66 Posts |
Posted - 08/07/2005 : 11:10:26
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"After a night of sleeplessness my pain is stronger. My mind hurts and therefore my body hurts and that's where I am."
welcome
thanks for the post- i posted a few days ago asking if anyone's pain was worse after a poor night's sleep. you have encouraged me. my sleep has gotten exponentially worse since seeing dr sarno 20 days ago- insomnia like i havent had in YEARS. just strengthens the tms diagnosis, i guess.
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Kluvnp
USA
9 Posts |
Posted - 08/07/2005 : 11:36:34
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HiLeegold. How are ya? You're very welcome and I'm glad your encouraged. Yep, I saw your question in your other post and yes, it's true for me too. You're not alone.
I have a lot of reading yet to do on TMS. I haven't read any of Dr. Sarnos books yet. I'll be doing a search online to see what's out there. I'm real excited and I'm hopeful now that there'a a way to beat this thing.
Have a great day, alright?
Take care of you.
Kluv
If you want it come and get it, crying out loud. The love that I was giving you was never in doubt. Let go your heart, let go your head and feel it now. Let go your heart, let go your head feel it now, babylon.
Chorus of "Babylon" by David Gray |
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Laura
USA
655 Posts |
Posted - 08/07/2005 : 12:37:59
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Welcome aboard, Kluv. I'm glad you found this forum. It is a lifesaver for all of us.
I, too, suffer worse after a poor nights sleep. The problem for me is, I've had insomnia (another fun TMS equivalent) for a couple of months and therefore, my dizziness has been a lot worse too. I see a direct correlation between lack of sleep and an increase in intensity of symptoms.
Best of luck to you on your journey. May I ask, what type of fibro symptoms do you have?
Laura
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Kluvnp
USA
9 Posts |
Posted - 08/07/2005 : 14:16:43
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Hi Laura!! How are you? Thanks for the welcome.  Sorry about the insomnia you're dealing with. It really seems to exaggerate the problems, eh? Grrr. 
My fibro symptoms have basically been chronic muscle pain, head, facial, neck shoulders, upper and lower back. I was diagnosed with chronic myofascial pain. It feels like bone pain occasionally but it's mostly muscle. I don't suffer too much from insomnia so the cause of my symptoms don't seem to fit in with fibromyalgia too well. My rhuemotologist said I don't have fibro but instead diagnosed me with chostochondritis and arthritis which I have in my neck and that hurts a lot with temperature and humidity affecting it with rheumy advising me to I get weekly messages and learn to relax. LOL. However, two chiropractors and my sports med doc both diagnosed me with fibro with my sports doc diagnosing me based on symptomology and not a tender point exam.
The thing that stands out for me most on a daily basis is tension. I have tension headaches pretty bad along with tension in the neck and spine as a daily struggle. Insomnia comes occasionally for me (it'll hit me for a couple of days in a row, like this week has been bad) and when I don't sleep the tension and muscle pain increase and the next day will be filled with almost unbearable muscle pain. When my sleep is restored my pain returns to the normal level (if it can be called normal  ). I have some food sensitivites to things like flour, wheat and refined sugar and caffiene increases my pain. It has made me very leery about what I eat just as I've become very focused on how I move and I have reduced activity to avoid, um, injury which is funny cuz if you could see me, you'd be like you look totally fine to me and you'd think I could easily run a mile. Unfortunately, altho I possibly could run a mile, I'm afraid that I'm going to break. In my own mind I have become fragile and carry a sign around with me that says 'handle with care.' I have no idea how I got here. I do conclude that my problems begin in the mind rather than with the physical.
Lot to read, huh? LOL. Feel free to spill your beans as well, k? LOL.
Take care of you and nice to meet ya.  
If you want it come and get it, crying out loud. The love that I was giving you was never in doubt. Let go your heart, let go your head and feel it now. Let go your heart, let go your head and feel it now, babylon.
Chorus of "Babylon" by David Gray |
Edited by - Kluvnp on 08/07/2005 14:22:40 |
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Jay
4 Posts |
Posted - 08/07/2005 : 17:18:33
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Kluvnp,
I'm glad you were able to find this forum because it will really help you to find your way out of the TMS nightmare. I hope you found one of Sarno's books. The first time I read his first book, Mind Over Back Pain (I've now read it at least 10 times!), my pain was practically gone! It didn't stay that way, because I had a lot of psychological work to do to get at the root of what was causing my pain. I found that just sitting down with a note pad and writing down everything that was bothering me helped me to then dig deeper and discover new things that I didn't even realize were a problem for me. I would suggest reading all of Sarno's books, but I found Fred Amir's book (sorry, can't remember the title, but look on Amazon.com) to be the "how" book vs. Sarno's which to me were more about the what & why. Battling TMS will always be a constant thing for me. To really control it on a regular basis, I must do my journaling at least several times a week and release my anger/rage by verbalizing it out loud (usually in the car when I'm alone) when I'm mad about a situation or at someone. It helps to keep the anger and rage from going into "the Well". I view TMS this way: When the Well gets full, the TMS Gremlin feels too crowded and he gets angry. So, he comes crawling out, causing me pain. Every week I try to keep the Gremlin from getting crowded in the Well. Even when I think I'm ok, I'll make a journal posting and ask the question, "so what's in the Well today?". We all want to ignore the mental anguish and pain that we experience on a daily basis, but journaling brings it right out in the forefront. I can't tell you how much I learned about myself in the past year and a half simply by journaling.
I wish you success in your battle against TMS. Keep a positive attitude, and if it helps to personify TMS with "the Gremlin", use it. Read, read, read, and journal as much as you can. When you have questions, you have all of us here on the Forum ready to help.
All the best,
Jay
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Suz
559 Posts |
Posted - 08/07/2005 : 18:11:53
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Welcome Kluv,
I have suffered from terrible sciatic pain and back pain for 12 years. For the first time in my life, I can now exercise - do anything I want because of finding out about Sarno. I am not "cured" yet - but am very much on my way. I find that reading the books and writing in a journal are invaluable. I like "healing Back Pain" the most. I have suffered from food allergies for 10 years - always equating my muscle aches and also acne to milk, wheat and all sugar. Well, I have finally discovered that this is not the case. It is a conditioned reaction of the body - totally caused by the brain to divert my attention. The brain uses anything it can to divert us from the real problem - suppressed rage and anxiety ( I like to call fear). I have slowly been introducing new foods into my diet and do not seem to have any muscle pain. One has nothing to do with the other. My skin is still breaking out when I eat these foods but I am continuing to as soon that conditioned response will stop.
It takes time to break the patterns of the subconscious.
Congrats for finding this board - this has been the most amazing freedom for me. Just imagine - running, doing yoga, eating what you want with not a care in the world!! - and that after 12 years of agonizing pain |
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Kluvnp
USA
9 Posts |
Posted - 08/07/2005 : 20:27:02
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Thanks for the welcomes and for the responses.
Have a good night.
k
If you want it come and get it, crying out loud. The love that I was giving you was never in doubt. Let go your heart, let go your head and feel it now. Let go your heart, let go your head and feel it now, babylon.
Chorus of "Babylon" by David Gray |
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celestica
Canada
38 Posts |
Posted - 08/07/2005 : 20:48:15
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HI there...
there's a book specific to Fibro by a doctor who studied with Sarno. Her name is Nancy Selfridge and the book is called Freedom from Fibromyalgia. She herself suffered from it and cured it using his methods. A great book to be sure. Check it out.
Welcome,
Amelia |
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Jim1999
USA
210 Posts |
Posted - 08/07/2005 : 22:02:10
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You're welcome, Kluvnp! I'm the Jim who posted on efibro.com. (I couldn't be just "Jim" here...someone else had already used that name.)
It's good to hear of your interest. Only a small percentage of patients will take Dr. Sarno seriously, and it can be draining to hear the negative feedback from the other patients.
I would appreciate if you would also post a thank-you to DebbieG on efibro. She is the one who started the Sarno discussion. I doubt that I would have joined that group if I hadn't seen her posting.
I recovered by using two of Dr. Sarno's books: "Healing Back Pain" and "The Mindbody Prescription". Two years ago, I met another fibromyalgia patient (in the non-virtual world) and told her about Sarno. She bought "Healing Back Pain" and "Freedom from Fibromyalgia", which Amelia mentioned. This patient also recovered. She preferred "Freedom", as it is more practical.
Welcome to the group!
Jim
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Susie
USA
319 Posts |
Posted - 06/26/2006 : 13:35:22
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| Hi kluvnp, I have had lots of fibro symptoms in the past and have controlled them using Sarno. What I wanted to address was your reference to "wax and wane". I hadn't thought of that in years but I remembered using that phrase numerous times to doctors when trying to describe a symptom djour. That was so common with my tms equivalents, especially the fibro symptoms. As Sarno says,"that's why they call it a syndrome". Tms often has many parts and phases. I really think it's just your brain trying to throw you off track. I could go from ibs to migranes to numb arm to hand twitching to fatigue, etc. It's all the same. Like others have suggested, be sure to get sarno's books as quickly as you can. I believe you will find yourself inside them. |
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Singer_Artist
USA
1516 Posts |
Posted - 06/26/2006 : 13:38:34
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Hi Susie,
You mentioned numb arm and hand twitching and it comforted me to know i am not the only one who gets these twitching sensations with my neck TMS...They come and go and the symptoms are all over the place...Just wanted to thank you for your comment...
~Karen |
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wrldtrv
666 Posts |
Posted - 06/26/2006 : 22:32:57
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Hi Kluvnp,
Yes, welcome to the forum. Just one comment about your original post: you are so right that symptoms wax and wane depending upon emotional state and probably lack of sleep too. That's certainly my experience. In fact, I can probably say that any initiation of symptoms or worsening of symptoms occurs ONLY when I am in some kind of emotional turmoil, which is pretty much most of the time nowadays. |
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Jim1999
USA
210 Posts |
Posted - 06/26/2006 : 23:20:49
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Slimmylou, Susie and Wrldtrv,
I just thought you should know that Kluvnp left the forum shortly after making these postings last August. It's very unlikely that she will reply.
Jim |
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Susie
USA
319 Posts |
Posted - 06/27/2006 : 07:24:56
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| Thanks Jim. I never looked at the date. |
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Hi. I'm new.
