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T O P I C    R E V I E W
gigalos Posted - 01/28/2013 : 16:32:48
Hi all.
Last night I ran into this thing called TMS and now I am pretty curious if my physician is right about my condition having a phychological cause... I hope some of you would like to react to see if my condition fits the picture. As reading too much on the internet makes my head spin, I cannot allow myself to study TMS in detail, because my condition will deteriorate. I am not lazy, just selfprotecting. I understand that TMS is mostly about muscle pains, I have some other issues too though. So I might be looking in the wrong direction... ?

I try to keep it short :)

-I have suffered from stiff and painful neck and upper back, luckily this is pretty much under control by regular treatment of triggerpoints.
-I have poor control of my legs. It aggrevates during the day or from walking. Sometimes feels like I am walking on a waterbed. It's not my equilibrium or visual perception, but feels like my muscles are just not entirely sending sensory information back properly.
-I have fasciculations at night in muscles that had to work during the day. I always classified it Benign Fasciculation Syndrom....
-I have pain in my groin, hip, lower ribs, back. Almost never all at once, every few days one dissappears and another appears.
-I feel my control/balance/pain is somehow influenced by me being stressed.
-I am the type of person that slightly worries faster than the normal person and tends to feel ashamed faster too about silly things.
-Habits: smoking cigarettes, searching the internet for possible causes :), gaming for hours on etc.. Often I am obsessed in the beginning before jumping to the next habit.
-I have a serious pshychological thing going on that I won't get into here, but might be more influencing than I am conscious of.

Every reaction I will be greatful for..
14   L A T E S T    R E P L I E S    (Newest First)
gigalos Posted - 03/04/2013 : 04:35:45
Update to see what has changed for me since I started accepting TMS.

- neck and upperback are pretty much under control by mind control. I didn't apply TP since I began.
- control of my legs is better, although I have my bad days, certainly if it's cold.
- fasciculations are less frequent. When it happens it's mostly short lived and I laugh it away.
- my ribs and back pain are mostly gone. The groin/hip comes and goes, but is better than it was.
- I feel more at ease, worry less, started analyzing what feeds my emotions on my own and with the help of a psychologist. I started to change some manners of handeling certain situations.
- A weird thing that is still there is the disturbed sensory information some muscles in my back are sending. When I lie down it's like lying on a waterbed, the feeling often slowly subsides with a good night rest. I still blame TMS for this. I don't get it though that it is mostly present when I lie down, as if certain muscles or nerves are more relaxed or strained then...
- Last week I started playing table tennis cautiously. I still have fear of taking longer walks though (groin pain, loss of leg control). Hope to pick this up too.

all in all I am pretty content with my progress so far. I see more work in making changes with how I normally deal with certain situations and slowly picking up physical work out. I think I will see slow but steady progress with the occassional fallback, but I am positive about the whole process.
gigalos Posted - 02/15/2013 : 13:32:55
Thanx again, I know there is a lot of work to be done before I will reach that 90% mark, so I am not worried yet about the last 10%.
Good luck to you with the boss fight. It's like the last and hardest level in a computer game, but luckily you can somehow save your progress in this one. :)
chickenbone Posted - 02/15/2013 : 11:31:54
Gigalos, I am so happy for you, you are on the right track. I am not surprised that your symptoms got worse before you saw the psychologist. I think you had the TMS on the run right then. It's strategy probably did not want you to uncover the REAL issues.

I am probably 90% healed, but Ace was right, the last 10% is the hardest.
gigalos Posted - 02/15/2013 : 07:32:32
much appreciated too
plum Posted - 02/15/2013 : 06:52:49
Sweetness, sharing our deepest secrets, sobbing like a babe, relishing the release and tending to the little one inside...ah, is this not healing.

With a cuddle for your inner child x
gigalos Posted - 02/15/2013 : 06:36:37
much appreciated
shawnsmith Posted - 02/15/2013 : 06:02:10
Three cheers for you gigalos, as you are on the path to recovery:

Hip Hip, Hooray!
Hip Hip, Hooray!
Hip Hip, Hooray!
gigalos Posted - 02/15/2013 : 05:55:00
As it is my intention that one day this thread can be moved to the success stories , I'm just posting an update here.

Yesterday I had a meeting with my psychologist. In the days preceding the appointment I found my legs getting weaker, my groin getting more painful and I found myself doing all kinds of stuff holding me back from preparing for the meeting.

During the meeting I started to talk about TMS. The psychologist said he had a slightly different opinion about it, but said that his one wouldn't bite mine, so we proceeded. Not much later I decided to talk about the 'serious pshych thing' that I mentioned in my first post. It took a lot of energy, but I am proud and happy that I did, as it was something I never ever talked about with anyone. Ten minutes of sobbing later, we both came to a startling conclusion about me developing all kinds of physical probs and the time that it started in relation with the thing that had bothered me. It was incredibly refreshing. When I was ready to leave, I stood up and jokingly stated 'I'M CURED', but alas, I already knew there was more work to do. We both had a laugh. The rest of that day I was pretty knackered and still pretty emotional. Today though I feel much better , emotionally an physically, and ready to proceed with the TMS work that I have to do.

One thing I apply is comforting 'the child in me'. 'Don't worry boy, I now you're upset but things will get better, trust me. Just stop what you are doing, as it won't help me helping you' It's almost like giving the child in you a big hug. See if it works in the long run...
gigalos Posted - 02/08/2013 : 14:05:06
... mind blowing stuff

I read the Mindbody Prescription in one day. I will read it again, and possibly a third time, as is adviced in the book.

Since the day that I first read it, I started to feel better significantly. The control of my legs is better, the walking-on-a-waterbed-feeling is almost gone and I have less fasciculations... I accept the fact that it is my brain that causes all the symptoms. This morning I stood under the shower and felt a slightly numb left shoulder blade. I was doubting for a moment that there was not a physical explanation and I immediately felt it becoming more numb. As soon as I realized the mechanism at work, I was convinced it was my mind at work and the numbness subsided.... again, mind blowing...

Today I had an appointment with a neurologist for the results of an MRI to check for stenosis. He totally affirmed my expectations that their was nothing wrong with my back. As I told him about TMS, he was pleased to hear it and told me that the academic research in the field of the mind causing symptoms in the body is still in its infancy. He himself gave me a copy of his thesis on neuroimaging such processes in people with a certain genetic defect that have control issues. I left the room with a smile :)

Maybe I am getting a bit too excited here, there is a lot more work to be done by me, but the realization that it is TMS that has been bothering me for years gives me great hope for the feature.

I already had an appointment scheduled with a psychologist next week and will use it to talk about this. I will follow SteveO's advice to focus on the mind-body connection.

for now thanx for the replies. Keep you updated.
chickenbone Posted - 01/29/2013 : 14:17:25
Welcome to the forum, Gigalos. It sounds to me like you are one of us. I am sure you will find a lot of help and support here. Please check out the reading list on the forum, the books are so important.

gigalos Posted - 01/29/2013 : 14:16:24
I guess the natural preferable order for people trying to get better is: 1. medication,...., 33. physical treatment,...., 88. eat healthier,...., 112. stop smoking, ...., 132. psychological treatment :) Not that I use medication though, I personally avoid it like the plague.

I think I can't escape adressing the things that bother my mind any longer. I am optimistic but can imagine it won't be easy.

The TP-like-treatment (by my beloved aunt) of my upper body is better described by 'searching for disturbances' (yeah, sounds vague doesn't it?) and putting light pressure on it with her fingers. Sometimes it is a pressure point, often I can't feel anything special. However it is always done in a very relaxed setting and is more of a social happening talking about life in general, which is a thing I don't do too often. It really made a huge difference and until I learn otherwise I will keep doing this to keep it that way.

For now I will start to read some more to get a better idea about this TMS thing.

Thanx for your replies.
Racer Posted - 01/29/2013 : 04:23:06
If you start reading various topics in this forum, you will find quite a few people having your symptoms, and managed/managing to get out these pains. Some are totally pain free.
SteveO Posted - 01/28/2013 : 19:38:40

You drink from the potent cocktail called TMS. I remember working with a woman on her TMS 10 years ago and she had BFS all over her body.

If one day you decide to try TMS healing you have to get away from triggerpoint treatments and any and all forms of treating your body, they will stop you from healing.

Counseling is good for you, but you have to tell the counselor that you want to connect the sessions to your body symptoms. It doesn't do much for TMS if you talk about life in general although that's always ok to do for catharsis.

You've got some issues going on there which it seems you already understand. But you can heal. There's much work to do though, and it aint always easy. But it's worth it.

As with most people it's the shame/guilt thing that drives the anger. All from childhood and mom or dad. (unless you had a trauma)

Read Dr. Sarno's Mindbody Prescription, and/or Healing Back Pain.

Steve
plum Posted - 01/28/2013 : 17:23:54
Hello love,

Rest easy. It's wise to tread lightly on unfamiliar ground so I completely understand your desire to self-protect. You're very new to this thing we call tms but you could just think of it as the way your emotions and thinking influence your nervous system.

There are plenty of people here who are better able to explain all this to you and I'm sure they will. Meantime maybe some reading around here will reveal that lots of people are experiencing similar things to you.

Welcome to the forum.

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