| T O P I C R E V I E W |
| tennis tom |
Posted - 11/02/2012 : 09:02:46
Hi SteveO,
Where you been? Word is that now that you're a big time auteur, you spend all your time on the golf course fishing for balls hobnobbing with Thomas Wolfe.
This Irish lassie has a hurt assey, (actually it's her knees). She needs more then my limited powers of persuasion can provide since I have not been clinically proven fully cured by the Cure Committee of NYU. May be you can perform an internet laying on of the hands and perform a TMS "cure" for her. Here's a copy of her OP. Show us your stuff. I told her after thirty years of TMS pain your were running six minute miles. It's good for a bottle of Two Buck Chuck and a ride down the River Road to the casino on the other side of the Ohio.
I'm not a hippy doctor, I just stayed at the Holiday Inn Express in Lawrenceburg.
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"carrick
Ireland
5 Posts
Posted - 10/30/2012 : 05:07:01
Hi All,
"I'm new to the forum, so this is my first time posting. I'm hoping for some insight and advice to get me back on track. To give you some background, I started experiencing, annoying pain in both knees in January this year. I first noticed something was not quite right going up and down stairs, my kness would click and grind and my legs just didnt feel right, like they were not my own, heavy buring sensation. I tend to overthink everything, so immediately became focused on this noise, feeling. I went to a physio and was told the usual, tight hips, need to stretch. The left knee got a little better, but in about April/May of this year, my right knee really started to bother me - the pain was intense and sharp going up and down stairs, it bothered me all of the time. I was stating to walk with a limp, by August I was on crutches, I was feeling so down and scared that this was never going to get better. I went for more physio, was told it was a tracking problem, runners knee. I went for an mri, came back normal, but surgeon told me that it was a carilage problem and I would need my knee washed out so an operation. Anyway, I'm 4 months preganat so an operation is not an option. The pain started long before pregnancy and I'm delighted to be pregnant, but fear how I will mange with limited movement. I discovered TMS on the internet and was very interested in learning more. I am a born worrier, people pleaser etc. I read Fred Amir's book and am reading Sarno at the moment. I have improved, can walk much better, not as down, I keep telling myself that there is noting structurally wrong with me. But with certain movements, the pain is so intense, then I doubt how this could be tms and start falling back to my old ways of thinking - - maybe I do need an operation, what if there is something really wrong, how will I mind my baby if I can't bend, kneel, get up and down stairs. Stairs cause me a big problem. Also, I have been doing yoga for years but positions cause me great pain, sometimes if feels as thoug my knee will lock in a position, the sharp pain is that intense, but I continue to push myself. Of couse with pregnancy, I am going easier on myself. I'm loosing hope and faith and need some encouragement, similar knee success stories, if anyone out there can help? Before this all stated I worked out, bootcamps, kettlebells, but maybe working out was a distraction in itself? I'm 34 years old and did not have a happy childhood, it wasnt all bad, but not great. I have been for theraphy over the years and feel that I have confronted alot of my issues, that's why I sometimes find it hard to believe that I have repressed emotions, anger. I did have an issue with my mum last Christmas and my first problems started in January, but really don't feel the two are connected? I'm confused as you can probably gather. Do I have TMS or a structural problem that does require medical attention?? As I said, I live in my head and do find it hard to relax, I think I'm getting better at that, but would be so concerned what people think of me and look for approval from others.
Thank you for reading my story and I look forward to hearing from anyone who has the time to help. Thanks so much." |
| 8 L A T E S T R E P L I E S (Newest First) |
| carrick |
Posted - 11/22/2012 : 08:25:49
Hi SteveO
Happy Thanksgiving from Ireland! and apologies once again for the late reply. Your book finally arrived, phew, it took its time, but worth the wait, finding it hard to keep my eyes open at night to read (nearly 6 months pregnant now so feeling the strain!!), but planning to really get stuck in this weekend.
I decided not to go for a second MRI opinion, thanks for your advice, don't think I could handle another doctor at the moment!! I am making progress, slowly, very slowly but surely, in July this year I got so bad I was on crutches and last night I did a pilates class. I can't squat or bend my knees,legs in certain positions but I'm pushing myself to move on, knowing that there is nothing structurally wrong with me (well in nearly there, but after I read your back I know I will be 100% convinced!). Don't worry when I feel I have really healed, I will give TMS some media attention, my background is PR and I will be calling on my journalist friends to help spread the word...
I would like to say I'm shocked by NUI, but I'm not, typical Ireland, afraid to look outside the box. It must be very frustrating for you and others who have put so much time into spreading the word about TMS and helping others to then be dismissed. I just listend to the audio and I can't believe it, I don't know the interviewer, but that doesnt matter, it would be a case of going to someone on the news desk in RTE, editorial team and hounding them until they listen! The other way to approach this to begin with is with the lifestyle media, health magazines, a personal piece telling my TMS story (not my story but you know what I mean, well hopefully my story some day). I can see this running in one of the lifestyle magazines the comes with our national newspapers. Then what would happen is people would start to talk about TMS and once this happens and the word is out, it would be easier to target the more serious medaia, like RTE news. I am on Skype if you want to talk in more detail. RTE is our state broadcaster, but we could always try and go to a competing national station and see if they have interest in the story, but first I think the way to go is with the personal story, that people can ideantify with.
Let me know if you would like to discuss in further detail. And I'll let you know how I'm getting on with your book!
Thanks again so much for your help, advice and support. Oh and I hear you about not underestimating pregnancy on my tension levels.
Lu |
| carrick |
Posted - 11/08/2012 : 17:15:13
Sorry for the late reply SteveO, I'm away for a few days,home Monday! Will reply properly then....still no sign of ur book,hurry up Amazon!!! Chat soon,Lu |
| SteveO |
Posted - 11/04/2012 : 10:01:33
Dublin Lu,
You can get another MRI opinion but it adds plurality. So instead of one diagnosis to forget about, you will now have two to erase from your memory--Dublin your work, if you pardon my pun, lass. With TMS-healing, the idea is to forget about the body completely and focus on the conflicts: id-superego, daily stressors, residual childhood. You also need to untie your sympathetic nervous system from its gridlock by reducing mental chatter.
Keep in mind that several of the TMS physicians who trained with Dr. Sarno had severe knee pain and could no longer run. But they healed completely after learning, and then applying the new knowledge. They then fanned out to begin healing people all over. Healing occurs often, and its foundation is belief. You can't heal unless you believe your body is ok.
I hope when you heal that you give TMS some media attention. Do you have Skype? There are some things I can explain. I went after Galway because my publicist had me on pain watchlists everywhere. When I first published my book, NUI had begun a large study (link below). I contacted everyone involved from, Letterkenney, Buncrana, Swinford, Sligo Town, Limmerick, Mayo, etc. But they were so excited to begin these new studies with their grant money that they didn't like that I was telling them they were studying pain from the wrong direction. They're still in the "let's manage pain" phase; show them how to live with their pain. The idea is to get rid of the purpose for the pain.
So I went to Miriam Raftery again at NUI Galway and asked her to just look at TMS but they weren't going to budge from their current knowledge. People who feel they're doing good for other people don't like to change course mid-stream. So I gave up and turned toward Canada and Australia, and now Germany, thanks to Birdie. Birdie is one extremely intelligent lady.
Lu, I'm looking forward to the day you're shouting TMS from your rooftop. Beware of standing on thatch roofs.
Email me if you are able to, in between shouting, healing, and giving birth, which could all occur at the same time if you try to stand on a thatch roof. Don't underestimate the pregnancy itself in the tension-cycle. You'll read about that if the pony express ever delivers my book to you.
Be well, keep baby Eire feeling safe,
Steve
In this audio you can hear Miriam say, "there isn't research to support back pain is psychosomatic..." When in fact, all good research shows that it is. I want to find this interviewer in the audio below so I can do a radio interview with him. Is he famous in Ireland? RTE NEWS? If you know who he is I'll contact him. I tried Brian McGuire too since he's a CBT psychologist working on the psychological aspects of pain within the study. He seemed to be the guy, but no response.
http://www.rte.ie/news/2012/0130/nuig.html
https://www.nuigalway.ie/about-us/news-and-events/news-archive/2012/january2012/nui-galway-calls-on-patients-with-back-pain-for-trial-of-a-new-rehabilitation-programme.html
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| carrick |
Posted - 11/04/2012 : 05:24:09
SteveO, thanks so much for your reply, you don't know how much it helped me last night, I was not having a good day...I will keep reading and believing, I suppose I am struggling to believe 100% that what I have is TMS, but I have moments of total clarity, where TMS makes sense to me, I am the perfect candiate after all!! I am so grateful that I found this forum and good people like yourself and Tennis Tom, you're very kind. Ok, I'll keep you posted on how I'm getting on, hope your book comes this week! Can I ask why your are focusing on NUI Galway? I'm a Dublin girl, went to college in Dublin, althoough I love Galway, it's beautiful. TMS is the complete unknown in Ireland, I called a leading bookshop to see if they stocked Sarno and the girl was like, "we wouldnt stock something like that". Before a University takes this seriously, I think there would need to be some media attention and focus around TMS, I work in the media world and if or should I say when I have success, I will shout it from the roof tops!!! What course are your targeting in NUI, is it a physcology course, or more medical? I think I will get a second opinion on my MRI, just to be sure and put my mind at ease, I know I'm still searching looking for a quick fix, but just to double check and then TMS really is the only logical answer. Thanks again from me and baby Eire, Lu
Tennnis Tom, tanks again, I'll keep reading and keep you posted on my progress. I hear what you're saying about people who like to instil fear, i'll steer clear. Have a good day and talk soon, lu
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| tennis tom |
Posted - 11/03/2012 : 23:04:31
quote:
Originally posted by carrick
...My MRI came back normal...
...a friend said to me, once you have knee trouble you will always have knee trouble. I cried when I got home with the thoughts of this been my life.
...Obviously now that I'm pregnant I will be taking it easy,
*Your MRI came back NORMAL now your doc may be fishing for something to hook the pain onto.
*Your so called "friend" who told you that is NOT a friend! Run, literally away from her, as fast as you can. That is complete RUBBISH! From my own personal experience as a runner (thirteen marathons) and a senior tournament tennis player, I had a "knee" once and it COMPLETELY was resolved with a few weeks of PT. That was pre-Sarno and I had trust in my phyiso, therefore it went away in the time he said it would. Carisma and belief in the practitioner, whatever the modality, is a big reason folks "heal" from the strong placebo they instill into their clients. Google "failed knee surgery", there was a recent study about the very high incidence of it.
*I've known swimmers and tennis players who exercised up to the day they delivered. In the third world women drop kids while leaning against a tree.
G'luck, "healing is gradual, very gradual." (SteveO). The TMS idea is new to you but it has taken your mindbody maybe all your life to develop the wrong thoughts about what causes psychosomatic dis-ease--patience. All the nocebos you have been given by docs and "friends" have you in a fear state. Keep reading and the TMS "knowledge penicillin" will take effect.
==================================================
DR. SARNO'S 12 DAILY REMINDERS:
www.youtube.com/watch?v=r0dKBFwGR0g
TAKE THE HOLMES-RAHE STRESS TEST
http://en.wikipedia.org/wiki/Holmes_and_Rahe_stress_scale
Some of my favorite excerpts from _THE DIVIDED MIND_ :
http://www.tmshelp.com/forum/topic.asp?TOPIC_ID=2605
==================================================
"It is no measure of health to be well adjusted to a profoundly sick society." Jiddu Krishnamurti
"Pain is inevitable; suffering is optional." Author Unknown
"Happy People Are Happy Putters." Frank Nobilo, Golf Analyst
"Be careful about reading health books. You may die of a misprint." Mark Twain and Balto
"The hot-dog is the noblest of dogs; it feeds the hand that bites it." Dr. Laurence Johnston Peter
======================================================
"If it ends with "itis" or "algia" or "syndrome" and doctors can't figure out what causes it, then it might be TMS." Dave the Mod
=================================================
TMS PRACTITIONERS:
John Sarno, MD
400 E 34th St, New York, NY 10016
(212) 263-6035
Here's the TMS practitioners list from the TMS Help Forum:
http://www.tmshelp.com/links.htm
Here's a list of TMS practitioners from the TMS Wiki:
http://tmswiki.org/ppd/Find_a_TMS_Doctor_or_Therapist
Here's a map of TMS practitioners from the old Tarpit Yoga site, (click on the map by state for listings).:
http://www.tarpityoga.com/2007_08_01_archive.html |
| SteveO |
Posted - 11/03/2012 : 10:20:00
Lu,
Yes--this is the stage where you're stunned that the issues in your life could be affecting you this way. But they still are. This is TMS.
Current issues with mum are probably triggering deeper issues from the past. It's more important to look at the personality type. This Type T tends to repress until it hits a certain threshold, or a trigger point (like fist-fights with mums) and then whamo, the symptom suddenly appears. But they can come on gradually as well, there are 4 main phases I noticed for the onset.
I had that same kneecap pain, and was told I needed it cleaned out too, but it was TMS, and I didn't need anything done. What the doctors don't know is harming us further.
You're spot on, what you're reading you must believe in, or it doesn't work. But don't worry, no one truly believes in it at first. It's difficult to quickly alter what we have chosen as our reality. After a lifetime of brainwashing things don't suddenly switch. This takes time, but persistence.
For me the the knee pain was the most painful TMS symptom. As you read my book you will see what I considered the most frightening ones.
By "worked up" I mean you must have a good physical exam by a good doctor to make sure you're healthy enough to try TMS healing, to rule out other disorders. I assume everyone has been medically cleared before I give advice on healing. I don't want to harm anyone, I want to help them.
I've seen too many people like you who have been told they'll have knee trouble for life. But they all healed. TMS gives hope, Dr. Sarno provided answers for people who were lost in modern medicine. I worked with people who couldn't climb steps at all, and now run and golf and live normal lives. If you stop listening to your doctor--after you have been cleared--you can heal.
Keep hope in your heart and understanding in your brain.
You've found the right topic, be thankful. I don't know if you're the first Irish person here or not? There are Scots and Brits, and even our Birdlady of Germantraz. What city are you in? I've been trying for 6 years to get NUI Galway to listen to me about TMS. They keep expanding their back studies to include more and more therapies, taking healing in the wrong direction. I spoke to the director of the studies but he won't commit, he's too wrapped up in finding grant money too make the problems worse.
Read, read, read, and then read.
Good luck with baby Eire,
Steve
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| carrick |
Posted - 11/02/2012 : 11:14:15
First of all, thank you TT once again and for makeing contact with SteveO on my behlaf. I am still eagerly waiting for his book to arrive in the post.
SteveO, thank you for your time and your rely. I think I might be the first Irish person on this forum?! It's like speaking a different language in Ireland when I mention TMS to others, nobody seems to have heard of it, I'm just glad I found this forum to give me some hope.
So I'm at the stage of TMS conflict, is this where I just don't believe that issues in my life could be affecting me in this way? I did focus alot on what happened with my mum over Christmas to see if this was the cause, but I don't think it is or maybe in my sub conscious it is? I have also had a lot of theraphy over the years so feel I have dealt with my issues?. My MRI came back normal and when the doctor examined me put pressure on my knee cap while I was contracting my quad, the pain was quite intense. He therefore came to the conclusion of a cartilage problem, my articular carilage and told me I have chondromalacia and would need an arthroscopy. Of course I'm pregnant, so can't have the operation. He suggesed physio, but I am sick of physiotheraphy and don't feel it has helped. I am reading and obsorbing as much information as I can, but the catch is that I must believe what I'm reading. I was explainng to Tom that my pain really gets to me bad when I move my leg a certain way, feels like "broken glass" in my knee cap, very intese, nearly feels like my leg will lock in that position, I suppose that's way cartilage problem has me convinced at times as it does feel like something is stuck. In your opinion am I dealing with TMS. Once I read your book many of my concerns will probably be answered, so apologies but as mentioned I wating on a delivery from Amazon!
When you say, "if she has been worked up good", what do you mean by this? Do you mean that I am half believing the medical profession?. Last weekend, a friend said to me, once you have knee trouble you will always have knee trouble. I cried when I got home with the thoughts of this been my life. From an active girls 12 months ago, in the gym, weights running to this, I thought to myself, what if I can never be fit and fully flexible ever again. Obviously now that I'm pregnant I will be taking it easy, but I don't want to be a mum who can't play with her kids. I make myself go for a walk and I'm not too bad (couldnt walk during the summer), but if I even attempted to break into a run, I feel like my knee is about to break in half. Same with staris, if I don't concentrate on every step, the pain can go up through my brain with a wrong move.
Anyway, I have gone on enough. Thank you so much for taking the time out to help me. I wish there was a TMS doctor in Ireland.
Hope to hear from you soon,
Lu
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| SteveO |
Posted - 11/02/2012 : 10:14:59
TTom it was nice to talk to you again and get caught up. Thanks for reminding me to check in here. I haven't found Tom Wolfe or any golf balls. I do like Two Buck Chuck though. It's $3 here now.
I just read the Carrick saga, is she still around here? I look for these keys when trying to help people, "MRI shows nothing wrong....surgeon wants to operate anyway...pain before pregnancy, although is worse now...born worrier, people pleaser...34 yos...unhappy childhood...lives in her head...can't relax...concerned what people think of me...look for approval from others."
Those are all TMS red flag factors, but the biggest is "issue with mum at Christmas, pain started in January...doesn't see how the 2 are connected." This is Phase 4 TMS; the most common manifestation, and to me, the trigger for TMS.
As you know, my research took me to separation anxiety as the stage for all TMS problems. It's the only thing that creates tension, the fear of isolation. This is only overcome by letting go, accepting, deeper growth, and learning to love the self. It's within the first major separations that anxiety is born, and where we first learn how to handle stress, or to be more precise, how to not handle stress. As our outer core develops we begin a non-self, to hide the anxiety of separation, and our inner needs get pushed deeper inside; as the mind gets divided between what we feel we should be doing, and what we really don't give a damn about.
So she has the stage set for TMS conflict, if she has been worked up good, then she should begin her healing by gathering information, and better yet, acting on it. This is where most people fall short, they don't act. They need to live the information by decreasing mental chatter and filling the liminal threshold with some faith that things are ok. And then step through the next door.
Steve
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