| T O P I C R E V I E W |
| timmbell |
Posted - 05/01/2012 : 15:42:45
I read about TMS and thought my situation might apply. I started having tingling and burning in my legs last summer after a stressful day at work. Long story short, my stress level continued to rise as i was tested for everything -- MRIs -3, EMGs, blood work, etc. I have now been going through this for nearly 10 months. I have a general diagnosis from the Cleveland Clinic of Benign Fasiculation Syndrome.
The interesting part is that my symptoms are very variable. I get parathesias from my legs, to my mouth to my legs that spikes with anxiety and is totally transient. I have had some things that have happened that seem psychosomatic in nature. An example is my legs only bothered me until November when i was at a neurologist appointments. At that appointment he told me of a case he diagnosed with ALS that started with teh patients hand. My hand began hurting that weekend and has hurt since. never before.
Just wanted some opinion from this forum. |
| 12 L A T E S T R E P L I E S (Newest First) |
| timmbell |
Posted - 05/17/2012 : 11:59:30
Yeah Dustin, getting the diagnosis is more difficult in neurology. That is actually a blessing i think. The Divided mind is fascinating so far. I hope this will help me. |
| drh7900 |
Posted - 05/17/2012 : 08:34:15
quote:
Originally posted by timmbell
I've had literally 15 neurologic physical exams in 10 months Lara along with 4 EMGs, 3 MRI, skin biopsy, two visits to the cleveland clinic neuromuscular dept, every blood test you can imagine. I have been given a diagnosis of BFS as of now. I bought the divided Mind last night and began to read. It is very interesting so far.
Wow! That's a lot in 10 months! I've been suffering my back pain for 12 years and haven't had that much! But...I was also "diagnosed" early on with herniated discs and degenerative disc disease....no sense in the doctors testing further if they think they have it right....right?
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Dustin |
| timmbell |
Posted - 05/17/2012 : 08:10:42
I've had literally 15 neurologic physical exams in 10 months Lara along with 4 EMGs, 3 MRI, skin biopsy, two visits to the cleveland clinic neuromuscular dept, every blood test you can imagine. I have been given a diagnosis of BFS as of now. I bought the divided Mind last night and began to read. It is very interesting so far. |
| drh7900 |
Posted - 05/16/2012 : 20:23:14
And it's ok to be afraid. I know I've felt memories of horrible lonliness creeping up on me. I've never lived in fear of a drunk parent coming home, but I was afraid of my parents for other reasons...not outright fear of them, but always fearing unknown negative consequences for my choices...and to this day I fear decision making.
And I mentioned the word "alone" because I have read that in your other posts...your afraid you're the only one with your symptoms. You're afraid you're the person who is the worst off. Fear and loneliness are the two predominant emotions I read in your posts so far.
And facing your memories and emotions can be scary...it has been for me and I'm not even sure why...I have no outright scary memories that I can think of...but I have a lot of rage and anger and dread and hate and loneliness in my emotions. It's unsettling for me to realize that there are people I hate...I've never admitted hating a person before...and to recognize there are people I hate scares me. I HATE the thought if hate!
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Dustin |
| lara |
Posted - 05/16/2012 : 19:34:00
quote:
Originally posted by lara
Dustin,
Thank you ,yeah I'm an anxious person,what I noticed this week is that when I feel the pain theres also a fear similar to the one I always felt when it was andalmost time for dad to come home,he was always drunk.I haven't sern a tms dr we can't afford it,but I'll start tomorrow seeing a psychologist that seems to know about mind/body issues ,and she accepts our insurance,it is intersting that you mention the word ”alone” that's exactly how I always felt during my childhood and nowadays with this kind of pain.which got worse since I started seeing tms more deeply.I am going to dig deeper ,but I will seek for professional help to do so ,I'm afraid ,scared there is something horrible hidden.
Lara
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| drh7900 |
Posted - 05/16/2012 : 18:33:16
Lara, while I am new to TMS, I am not new to dealing with anxiety. My wife of 11.5 years has dealt with some pretty severe anxiety and through several of your posts, I am hearing fear and anxiety. If you have TMS and your doctors ruled out something more severe, then your TMS is doing its job...it's distracting you from the emotions it doesn't want to surface. I can't remember all of what I've read that you wrote, so forgive me if I'm just echoing something you've said somewhere.
I'm currently reading "The Mindbody Prescription" and I'm just approaching the section that identifies anxiety and depression as TMS equivalents. It sounds like you have some very strong, very raw, and, to your subconscious mind, very frightening emotions that need to be desperately avoided (at least that's what your brain thinks). I'm not a doctor nor am I qualified to make any kind of diagnosis, but if you've had all these tests done and the doctors aren't finding anything serious, then it seems to me you need to accept TMS and actively work toward exposing the emotions your inner child is raging with and your internal adult is suppressing. As long as you accept the possibility that TMS might not be it, you'll be stuck.
By the way, you're not alone. I am struggling within myself to fully accept TMS. I get it intellectually, but I'm not at 100% acceptance yet...but I'm working on it and grow more convinced each day as I observe my emotions, dig deeper, and see how my symptoms respond. I *know* it's TMS. I'm just not sure it's sunk in deep yet.
Have you seen a doctor who can qualitatively diagnose TMS?
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Dustin |
| lara |
Posted - 05/16/2012 : 16:51:59
[quote]Originally posted by SteveO
Have you had any neurologic exams? TMS can mimic other things and vice versa. The best route is to eliminate anything that is not TMS.
Just reading this makes me so anxious and worried,i think that the MRN that was practiced on me this past february wasn't enough to see if my pudendal nerve was damaged or entraped,(nerves looked normal ON MY RESULT)but now i am thinking that i need more neurological tests,that tought has just come to my mind reading your answer SteveO to the OP.Is it possible that they missed it,and didn't see the entrapment on the 3T machine? ,is this my subconcious trying to convince me that something is wrong with my nerve "down there"?
"Magnetic resonance neurography (MRN) is a new type of adapted MRI that can take pictures of nerves. MRN can be used to diagnose conditions like sciatica and piriformis syndrome, as well as pinpoint the source of related nerve pain"
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| timmbell |
Posted - 05/16/2012 : 14:57:20
Thanks Happy Star. We have a similar story with lots of testing. Ironically, i had a lab error on an enzyme that also sent me spiralling. This has been going on for 10 months and i haven't been able to get back to normal yet. Still working on it. |
| happystar |
Posted - 05/04/2012 : 18:15:10
Hello Timmbell,
I've had similar symptoms for over one year now. Mine started after a very stressful move from overseas and other very stressful things. My tingling was minor until I was sent to the neurologist who did an EEG and an MRI and he saw something "abnormal" on the MRI and said it might not be anything but we need to check in a few months. I went to another neurologist after a few months and she did an EMG which was normal, a circulation test which was normal and lots and lots of blood work. My bloodwork resulted in a protein that is not supposed to show up, and I was sent to the oncologist. I was freaking out this whole time, thinking I have ALS, MS, or cancer. Thankfully the protein was a lab error!
I've been stressed out for more than a Year now. Last week I decided to do the other MRI the 1st neuro suggested and there is no change from the first one. He said that if there was no change that it was probably nothing and I did not need to worry about it. The only thing they found after all these tests was that my blood sugar drops (hypoglycemia). So now, I think I can relax and FULLY accept that what I have is TMS. I am actually happy that I finally got a closure on all the tests and I think this will help with my TMS recovery. Of course I need to do all the work that Dr. Sarno suggests. I am already working on it. Good luck, we will be OK :-) |
| Hillbilly |
Posted - 05/01/2012 : 21:07:30
Timmbell,
There is a BFS thread on every anxiety site on the internet. You are healthy and should be very glad of that.
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Failures do what is tension relieving, while winners do what is goal achieving."
Dennis Waitley
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| timmbell |
Posted - 05/01/2012 : 18:47:38
I have seen 6 neuros had multiple emgs and probably 15 physical exams. Went to the Cleveland clinics neuromuscular dept looking for answers. They said bfs. I am a very anxious person. I can almost make the parathesias start by thinking about certain things. Things have actually improved recently. I'm starting to believe I might be okay. |
| SteveO |
Posted - 05/01/2012 : 18:08:44
Have you had any neurologic exams? TMS can mimic other things and vice versa. The best route is to eliminate anything that is not TMS.
Having said that, I was also diagnosed with Benign Fasciculation Syndrome, which was TMS. If you take the fasciculation part out of BFS you can see what your left with.
My limbs would begin the pins and needles when I entered the hospital also. It was a conditioned response that they told me would probably never go away, but it did. The only pins and needles I get these days is when I sit on real pins and needles.
Interesting seed that doctor planted when he forced your mind to worry about your hand through his throwing around of arcane possibilities. That is a nocebo no-no. I've seen it occur countless times. The physician casts out a possibility, the anxious mind latches on and it takes quite a while to get the person to unlock their focus on the frightening possibility. When fear is planted, fear grows.
The rule is: "rule out first," then try TMS healing.
You should then look at your life and all the events that led up to your symptoms. Was there a major change? Or milestone?
Why did you go to the Cleveland Clinic? Curious.
Good luck,
SO |
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