| T O P I C R E V I E W |
| Whoaday |
Posted - 10/27/2010 : 13:51:46
Hey everyone,
I haven't written in a while but among the many issues I have...I wanted to write about this one specifically to see if anyone has any thoughts. I know there has been other topics on this, but here we go.
I have had CPPS (Chronic Pelvic Pain Syndrome) or Prostatitis for just about 2 years. I recognize a direct connection between anxiety, stress, how I react to it, and the start of this condition. extremely tight and de-oxygenated muscles, tendons, nerves and lots of pain. Makes it uncomfortable to sit, have sex, et cetera! I have been married just under a year in a half and it's been difficult. Over the past two years it def. has become better but there is no rhyme or reason.
It will hurt usually a day or so after sex...but sometimes it will hurt or "flare" for no reason. For seven months I did the painful and embarrassing trigger point massage in my anus and outside of it to no avail. I don't know that, that is the answer. Dr. Wise wants you to spend 6 K to go to him then give you a program he says takes two years to work. That is the worst pain I have ever had. So I stopped that and have been trying to relax, think psychologically...but it just gets frustrating.
Some days it hurts for no reason. It can literally hurt...like it does now, or maybe go from hurt to uncomfortable and back again...and then randomly it will stop hurting for minutes sometimes hours at a time...there is no change in pain whether I sit or stand...work out or relax...lay down et cetera.
I suppose it's not important to try to find patterns huh? I just can't find sustained relief. A lot of times I feel like I am constipated...the anus burns and hurts...it gets red and uncomfortable...BM's tend to make it worse...and I guess I stress that I am making it worse though I know nothing is really really wrong.I have started working out more...so of course Ill get random back, neck, shoulder, leg pain. I know it's nothing and it goes away...but it comes back enough that it just makes you wonder WHAT the heck. And then there is the constant spector of the butt pain. Has anyone had this and rid themselves of it?
If so, instead of just saying..."It was TMS I got through it" can you give some tips on how? Everyone is different sure...but I was just wondering how...
I have Dr. Shrubiners book but to be honest I haven't been disciplined to do the work in the book so there it sits blank...should I do something with that?
Thanks,
Whoaday
Whoaday |
| 13 L A T E S T R E P L I E S (Newest First) |
| Whoaday |
Posted - 12/07/2010 : 13:09:11
Hey all,
So that's the thing that's really perplexing. It appears most measure success by the "getting out and doing physical things" or "getting back to what you want" I do everything I ever did. I'm even doing more. I work out, I have sex with my wife...I lift, I bend...all that stuff. The pain is still there during all of that, but I have never not done it. So that is maybe a place I am stuck...I don't feel like anything "holds me back" even with the pain. I do feel like I could do more perhaps...without the pain, but I don't see that I do less with it than I used to...
Whoaday |
| Back2-It |
Posted - 12/03/2010 : 07:18:38
When I had prostatitis years ago, it didn't go away until I decided that I needed to make a major change in how I was living/working at the time.
Short story: too much stress and too much living a life I didn't want to live -- doing things to please other people and not myself.
I quit doing that yet have come right around to it again;hence my return to pain, only different.
I didn't know it at the time: I thought it was real and would never go away (after almost a year with it), but once I made the decisions I made it gradually faded.
I was obsessed with it; just as I am fighting the obsession with the current problem.
I don't know if this helps, but you asked for stories. This is just one. |
| Whoaday |
Posted - 12/02/2010 : 09:14:20
Hi everyone...
Still can't really figure this out...pain moves and such but still primarily stays in the rectum area. I'm not sure really why they call it Chronic "pelvic" pain as it's really my hind parts...and pain on the inside. I have been going to the gym (for about 9 weeks straight now) and I feel good after a work out but the pain always returns with sitting...even with standing...I suppose I haven't been doing any journaling or anything I'm still not sure where to go. People who have resolved this can you tell me what you did?
Whoaday |
| Gibbon |
Posted - 11/08/2010 : 06:17:03
Hiya
I've had prostitis for a number of years - it predated the other TMS symptoms. It caused a lot of problems in terms of pain etc. in the first year or two. Over the past few years it is pretty much under control. I know there is a huge mindbody element to it - whether it's 100% TMS or a mixture of psysiological and mind-related i'm still not entirely sure.
What's worked for me:
1) TMS stuff - meditation and trying to avoid/deal with stress
2) Lifestyle changes - esp re things like alcohol
3) "paradoxical relaxation" - where you relax into the pain rather than try to tense up as a result of it
4) Trying to carry on with activities even though you may not feel 100% - things like sport seem to really help both in terms of making you feel better and in terms of taking your mind off symptoms.
Hope this helps - feel free to PM me if you've any questions...
Check out the TMS website: www.rsi-backpain.co.uk |
| Paul |
Posted - 11/03/2010 : 16:18:52
More about Tim Parks and prostatitis...
http://www.youtube.com/watch?v=NgdnKCtfL_Y |
| Whoaday |
Posted - 11/02/2010 : 14:50:10
Yo,
Thanks Pan! I have tried to find this book I don't think I can get it that is amazon UK. I am in the states...Did he have prostatitis? Have you read it?
Whoaday |
| pan |
Posted - 11/02/2010 : 13:07:47
http://www.amazon.co.uk/Teach-Us-Sit-Still-Sceptics/dp/1846553997
You really MUST read this book!
Wake me up with your amphetamine blast
Take me by the collar and throw me out into the world
Rock me gently & send me dreaming of something tender
I was brought here to pay homage to the beat surrender
|
| Back2-It |
Posted - 11/02/2010 : 09:28:12
quote:
I have Dr. Shrubiners book but to be honest I haven't been disciplined to do the work in the book so there it sits blank...should I do something with that?
I have had to start on something, so I am starting a class tonight on TMS. Maybe the books might help you?
I have multiple problems: back, neuropathy, etc.. I'm convinced the back is either healed or TMS but the neuropathy (from surgery) I have some questions on, because I can actually feel the lumps from scar tissue around it.
But like the prostatitis I had years ago, I'm thinking the neuropathy (from surgery) is TMS too. I have multiple things to work on, and I admit I need help. If I weren't near an area where there was a class (and doctor), I would be looking at the books. |
| Whoaday |
Posted - 11/01/2010 : 20:24:39
anything else
Whoaday |
| jaya |
Posted - 10/28/2010 : 11:19:34
every day i have a different symptom-5 years strong-all happened after my mom died-ive come to the realization that no disease can cause this many symptoms not even the big c word. its all mentalquote:
Originally posted by Back2-It
jaya...
quote:
2 years now no problems with prostatitis-the symptoms however have moved to different parts of the body ie dry eyes, ibs,and quirky back pain, panic attacks-its real fun stuff!
This has been my story, with some differing physical maladies, which has brought me back to my mind creating the lingering symptoms from my supposed back structural problem. The Big Back Problem is the one that has finally threatened (literally) my life and well-being.
It's time to get a handle on it all. And I will.
Whoaday-- hang in there. Be convinced that almost all cases of Prostatitis is one head messing with the other. (It's bad enough the little guy and its parts don't think right normally, but to have the top head complicit -- that ain't right!)
|
| Back2-It |
Posted - 10/28/2010 : 10:50:24
jaya...
quote:
2 years now no problems with prostatitis-the symptoms however have moved to different parts of the body ie dry eyes, ibs,and quirky back pain, panic attacks-its real fun stuff!
This has been my story, with some differing physical maladies, which has brought me back to my mind creating the lingering symptoms from my supposed back structural problem. The Big Back Problem is the one that has finally threatened (literally) my life and well-being.
It's time to get a handle on it all. And I will.
Whoaday-- hang in there. Be convinced that almost all cases of Prostatitis is one head messing with the other. (It's bad enough the little guy and its parts don't think right normally, but to have the top head complicit -- that ain't right!)
|
| jaya |
Posted - 10/28/2010 : 05:11:24
my whole range of symptoms started w/ "prostatitis"- after 6 grand of rx visits and copays it went away after realizing it was a mental thing/somatization/tms
it hasnt come back since
jaya
2 years now no problems with prostatitis-the symptoms however have moved to different parts of the body ie dry eyes, ibs,and quirky back pain, panic attacks-its real fun stuff!quote:
Originally posted by Back2-It
Hi Whoaday,
I'm new when it comes to the TMS idea, but I have read through HBP and MBP, and am starting the Divided Mind.
I had Prostatitis about 16 years ago. I did a self-diagnostic thing and never went to the doctor with it, though I was very close.
It finally went away, after being quite steady and coming and going for months. I also had a low grade fever with it. It hurt and it effected my life in a big way. I worried and obsessed everyday about it.
I attribute it's vanishing to deciding to make a major change in the way I have been living/working for the past six years. I was working 70 to 80 hours per week with my own business, was working my little sleep around my girlfriend's odd schedule and remember (now) just seething at everything. Yet everything (almost) was of my own doing. I was physically and mentally exhausted.
Finally, my girlfriend and I took a day off from regular jobs/duties and spent a "mini-vacation" of just sitting in a great German Restaurant we loved. There is where I decided to finally break the insanity, to live life again.
I'll also be honest in saying that I had hesitated from taking a holiday with my girlfriend because we weren't married and I didn't want my mother and relatives looking at us side-ways, not to mention what her parents would think. Early on we had taken some trips, but had stopped.
Bottom line: my pain was real. It lasted the better part of a year. It only went away when I made a radical choice to change things and get some fun out of life and do what the hell I (and we) wanted, heck with the parents. It was my life. Our lives.
I didn't know for sure, then, that the problem was caused by my brain, but I do now. You can probably see some of the obvious stresses.
The Prostatitis gradually went away and never came back, though once in a great while to this day I'll get a momentary ache there. My mind says "nothing" and "don't go there" and it goes away.
I think knowing that there is an emotional problem helps, as Dr. S says, but taking an action can help to facilitate the cure.
I doubt if I kept the status-quo going that I would have gotten better. Like you said: everybody is different.
Dig deep. Think. Make a Big Change if that is what you think might somehow be behind it (pun intended).
Sorry to be so long-winded, but I've been there. It can go away, though at the time I didn't think so. You sound so much like the me of so long ago.
|
| Back2-It |
Posted - 10/27/2010 : 17:00:55
Hi Whoaday,
I'm new when it comes to the TMS idea, but I have read through HBP and MBP, and am starting the Divided Mind.
I had Prostatitis about 16 years ago. I did a self-diagnostic thing and never went to the doctor with it, though I was very close.
It finally went away, after being quite steady and coming and going for months. I also had a low grade fever with it. It hurt and it effected my life in a big way. I worried and obsessed everyday about it.
I attribute it's vanishing to deciding to make a major change in the way I have been living/working for the past six years. I was working 70 to 80 hours per week with my own business, was working my little sleep around my girlfriend's odd schedule and remember (now) just seething at everything. Yet everything (almost) was of my own doing. I was physically and mentally exhausted.
Finally, my girlfriend and I took a day off from regular jobs/duties and spent a "mini-vacation" of just sitting in a great German Restaurant we loved. There is where I decided to finally break the insanity, to live life again.
I'll also be honest in saying that I had hesitated from taking a holiday with my girlfriend because we weren't married and I didn't want my mother and relatives looking at us side-ways, not to mention what her parents would think. Early on we had taken some trips, but had stopped.
Bottom line: my pain was real. It lasted the better part of a year. It only went away when I made a radical choice to change things and get some fun out of life and do what the hell I (and we) wanted, heck with the parents. It was my life. Our lives.
I didn't know for sure, then, that the problem was caused by my brain, but I do now. You can probably see some of the obvious stresses.
The Prostatitis gradually went away and never came back, though once in a great while to this day I'll get a momentary ache there. My mind says "nothing" and "don't go there" and it goes away.
I think knowing that there is an emotional problem helps, as Dr. S says, but taking an action can help to facilitate the cure.
I doubt if I kept the status-quo going that I would have gotten better. Like you said: everybody is different.
Dig deep. Think. Make a Big Change if that is what you think might somehow be behind it (pun intended).
Sorry to be so long-winded, but I've been there. It can go away, though at the time I didn't think so. You sound so much like the me of so long ago.
|
|
|
