T O P I C R E V I E W |
oak |
Posted - 07/23/2009 : 07:37:14 Hi, I've been lurking around this forum for a few weeks but this is the first post. I wanted to say thanks to everyone, as reading others worries and success stories has really helped me. I feel lucky to have discovered tms, I feel like it happened very much by chance. My first discovery was on the wiki RSI page, particularly the 'talk' section. I had always felt that my RSI diagnosis was a bit suspect so discovering the forum really made things fall into place.
My pain started around Christmas last. Pain and weakness in the right arm and numbness in 4th and 5th finger. When I returned to work I started to experience intense burning pain in my left forearm also, to accompany the pain in my right arm. From there I was eventually unable to work and went to a number of doctors, some very unsympathetic to my debilitating pain, like i was wasting their time. I went from gp to consultant, took a load of Lyrica without any result. I sat almost completely still for 2 months, convinced that the reason I wasn't getting better was that I wasn't resting enough. This put me from bad to worse. Eventually I changed doctor, got some steroid injections which gave a moderate amount of relief and started a strengthening program with a physiotherapist. I found going to doctors and having to fight to be taken seriously very stressful.
So finding this forum and Rachels rsi page was a breakthrough for me. I found it while surfing the net with my voice recognition software late at night and followed the links for ages. It really made sense in the way nothing else did.
While all this was going on I still had to be in contact with work, try to explain what was going on, deal with hr, attend doctors including a workplace injury specialist to defend my need for time off and convince them that I wasn't crazy, attention seeking etc. In fact, I hate being the centre of attention. I also had to postpone my part time course, and have someone else to take on some commitments i had made in association with this. The amount of stress this illness has caused me has been untold. It's like every part of your life starts to unravel bit by bit. This along with the intense pain.
Thankfully I have recovered somewhat.. the physio helped (I know what Sarno says about physical therapy, but it did help me. I was in such a state, pointing my finger or extending my arms at all was causing pain, and my physio helped me alot with overcoming the fear of activity) along with reading the Mind Body Perscription. I am due to go back to work in September, when I am expected (by workplace doctor) to be better. At this stage I will have been off work 8 months..a long time.
In relation to this, I am wondering how you are mananging to explain your tms to your friends, employers, colleagues? I'm not getting a good reaction at all. I find it somewhat embarassing. Alot of people have never heard of RSI, let alone TMS. Anyway, this isn't really a big worry for me, just a thought... Going back to work will be a big event as this is where the pain started. So its a scary prospect, particularly as a date to return has now been set. How have any of you coped with this?
Thanks for reading my lengthy post. I'm delighted to have been physically able to type it, though I'm feeling very fatigued now!
Nice to know I'm not alone. |
4 L A T E S T R E P L I E S (Newest First) |
oak |
Posted - 07/25/2009 : 14:50:21 Hi folks, Thanks for your responses. Yes part time sounds like the way to go, good advice there. Thankfully my physio suggested this to me and I was able to mention it to the employment doctor. I've spent so much time worrying about being missing from work, particularly as when I fell ill, it was a very busy time with deadlines looming. No surprise there. However life in the workplace goes on and no-one is indespensible. I must remember to remember this in future!
Ndb made an interesting point in the thread you linked to HilaryN about muscle fatigue being another manifestation of tms. I get this alot, unreasonable fatigue after activity, but had put it down to muscle weakening after a long period of inactivity. Now I'm not so sure.
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HilaryN |
Posted - 07/23/2009 : 15:06:18 Hi oak,
quote: I feel lucky to have discovered tms
So do I! Welcome!
Regarding going back to work, perhaps this thread might help?
http://www.tmshelp.com/forum/topic.asp?TOPIC_ID=3734
Particularly going back part-time if you can persuade them. Tell them you're worried going back full-time could cause a relapse, whereas if you could build up gradually you feel more confident of a lasting recovery. Your physio / doctor's support would be useful.
Hilary N |
pandamonium |
Posted - 07/23/2009 : 08:30:44 Seriously, I wouldn't tell them about TMS, I'd say the injections and pt helped, and you are better. Most people won't understand at all, only those if us who have been through this will get it.
I wouldn't worry too much, in my experience most people just want to hear you are better and don't want the full story. I'd just say I had time off work because of a problem with my wrist & hand, but now it's all fixed, and then change the subject.
Good luck!
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A beginner's guide to psychology: If it's not your mum's fault.... it's your dad's... |
Plantweed |
Posted - 07/23/2009 : 08:08:13 "In relation to this, I am wondering how you are mananging to explain your tms to your friends, employers, colleagues? I'm not getting a good reaction at all. I find it somewhat embarassing. Alot of people have never heard of RSI, let alone TMS."
Regarding my back pain, when people ask how it started and how it got better, I don't mention TMS, I just say It was "stress." It's not the whole truth, but not a lie! And folks do seem to accept that. |
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