| T O P I C R E V I E W |
| Peg |
Posted - 02/14/2009 : 13:28:07
Hi All,
I just wanted to acknowledge Dr. Schubiner's efforts. The interview today on psychiconair.com was excellent.
He is working hard to complete current and plan future randomized controlled medical studies. These will be essential to demonstrate the effectiveness of the mindbody approach to the medical community in treating the various mindbody syndromes.
Thanks Dr. S.
Peg
In questions of science, the authority of a thousand is not worth the humble reasoning of a single individual. Galileo Galilei |
| 9 L A T E S T R E P L I E S (Newest First) |
| Peg |
Posted - 02/17/2009 : 16:21:02
hott--that's very encouraging to hear the MD you saw mentioned emotions. Little by little.
Hi fft--Thanks for all your efforts on the wiki.
I am going to the conference. I had wondered if any of it would be filmed. I hope so. I think it would be good to have a record of it. The first of many, I hope.
Peg
In questions of science, the authority of a thousand is not worth the humble reasoning of a single individual. Galileo Galilei |
| forestfortrees |
Posted - 02/16/2009 : 17:00:28
quote:
Originally posted by Peg
It was not going to be replayed or archived.
It seems like such a shame that it isn't going to be rebroadcast. I wasn't able to listen to it while it played, so I made a copy of it that I turned into an mp3 so that I can listen to it on my iPod when I go go on walks (woohoo! my knee is better!). I'm going to contact Dr. Schubiner to see if he minds if I post it on the TMS Wiki. My bet is that he wouldn't mind it at all, because he wants to help people and it only raises his public profile. I'm worried, though, that CBS, which probably owns the copyright, won't allow me to, because they have a policy against rebroadcasting shows. It's worth a try, though, and I'll keep people updated in this thread.quote:
Originally posted by Peg
Well said mk. You're exactly right. I have spent a lot of time trying to figure out the best ways to promote this information. Unfortunatley this mental effort has not translated into action, probably due to doubt and perfectionism.
I told Dr. Schubiner that I had started to compose a letter to all of the TMS advocates (physicians, mental health professionals, lay people involved in spreading the word) in an attempt to organize the group and combine all of the intelligence, talents and resources. Something held me back from following through.
The idea came to me after seeing a news story about representatives of Haagan Daaz speaking to congress, asking for funding to study the dwindling honey bee population. They explained that everyone should be concerned because the consequences could be less choices of ice cream flavors, or an increase in prices. Now I like ice cream as much as the next guy, but all I could think of was, what's wrong with this picture? We (TMS advocates-physicians, mental health profess, lay people, successful patients) should be asking congress for funding to study the TMS treatment approach. We could even bring a celebrity or two, like the other groups do.
You are so right, it is a difficult challenge, but it's THE RIGHT CHALLENGE and a necessary one.
I totally agree. It just amazes me that there is so much needless suffering from TMS these days. That is why I started the TMS Wiki. I really believe very strongly that a wiki is the best way to get the word out. The TMS wiki is currently growing faster than Wikipedia did in it's first month. If we are able grow at even one twelfth of the speed that they grew at in their first three months, then in three years we will have over 750 pages. Think of the good that a well organize free TMS website with anywhere near that number of pages could do! We could be like a free book about TMS that TMS sufferers could read to complement Dr. Sarno's books (or people who aren't yet willing to spend their money on Dr. Sarno's books could read it first). We could have a free encyclopedia of TMS the way that Wikipedia is a free general encyclopedia (unfortunately, Wikipedia has very strict policies that prevent much content about TMS. In fact, there have been three efforts to delete the page about TMS entirely because it isn't mainstream enough yet). We could categorize every success story on the web by diagnosis so that anyone who thinks they have TMS can read 20 stories by people who have symptoms just like them. (I had "RSI" and it took reading about other people with symptoms like mine to help me.) We've already done so for 31 symptom groups & diagnoses. We could get a response for our TMS professional survey from every single TMS doctor and therapist. Dr. Sarno has already faxed us his list of doctors to use as a starting point for building our own directory (since we will be putting it up on the web, we want to double check that he is okay with us doing so, so it may be a couple of weeks before it is up). We could make the best doctor and therapist directory available on the web by linking to wiki biographies of the doctors as well as organized forum threads that hold testimonials. We've already started a bibliography of TMS-relevant research and a page on TMS activism. (For more details on what we can learn from other wikis, check out the the TMS Wiki is growing faster than Wikipedia did page.
You can tell that I get pretty excited just thinking about it. I completely agree with you that it is the right challenge and a necessary one. I further think that the wiki is a terrific way for ordinary people, like you and me, who can't do clinical research, to make a big difference in the public awareness of TMS.
Just my two cents.
quote:
Originally posted by Peg
As a Nurse, I hope to help out as well and am looking forward to the first TMS conference being held in March.
Are you going? I hope to go and record videos of the sessions so that I can put YouTube videos of them on the wiki. I also hope to meet Dr. Sarno. If we both go, we should meet up!
Forest
tmswiki.org |
| hottm8oh |
Posted - 02/16/2009 : 09:13:14
Every once in awhile, I find a medical professional who believes in the vast scope of mind-body disorders. I was discussing my ongoing abdominal pain problem with an urgent care doctor, and he suggested that it might be an emotional reaction. I was very pleasantly surprised to hear him suggest this. My allergy doctor also believes in mind-body disorders. Everyone else thinks I'm batsh*t insane. |
| Peg |
Posted - 02/16/2009 : 05:43:34
Okay, just one more thing.
In my defense of my earlier post. true to my TMS nature, I haven't taken any credit for the things I HAVE done over the past several years to promote this work. The negative appraisal of my efforts is because I have not saved the world yet.
Recommending the book to anyone I could. Recommending it to any physician I have come into contact with, chiropractors, acupuncturists, alternative health practitioners, personal trainers, Nurses,mental health professionals. I have helped some people lose their back pain (shoulder, knee, hip, etc), and those people have helped others. I think my husband has helped more people than I have, by recommending the book to guys at work, people at the diner, etc. I have discussed the information and ideas for promoting it ad nauseum to my very patient family, friends and co-workers.
I introduced this information to the owner and physicians (and entire staff) at a medical information company and while they are aligned more with mainstream medicine at this time, was able to get BackSense approved to be used as a resource for some of our clients (unfortunately due to the age of the book, there is resistance to using it, but I persist). My co-workers have heard so much about it that now, when they talk to certain clients, they come to me and say, "here's a perfect one for the TMS information".
I'm sure there's more, but i've gotta go.
Best,
Peg
In questions of science, the authority of a thousand is not worth the humble reasoning of a single individual. Galileo Galilei |
| Peg |
Posted - 02/16/2009 : 05:29:19
Actually Pandamonium, we do have several.
--John Stossel
--Howard Stern
--Janette Barber (former producer Rosie O'Donnell show)
--A pro golfer (? name)
--A sportscaster named Gerry something
I actually discussed this with Dr. Sarno one day not too long ago and he told me that he had treated two Senators. He thought if anyone would know how to go about making this idea happen, they would. My response to him was that, sometimes people know what needs to be done, but may not want to be the ones to do it.
Many years ago, I learned this lesson the hard way. I worked at a small community hospital. There were many issues there which negatively affected the working conditions for the Nurses as well as compromising patient care. I couldn't just sit by and watch this, nor could I stay and complain, so I began an organizing campaign with the help of the Mass Nurses Association. It took a year for the campaign and then once voted in, another year to negotiate the first contract. Obviously, there was enough Nursing support to win the vote and the Resident Physicians wrote a moving letter to the Nurses in support of the campaign (they were concerned about the quality of patient care being threatened by less than ideal working conditions), but I was shocked at the lack of involvement of many Nurses. Some of the staff seemed downright afraid. I guess I can understand, since I'm sure many of them depended on this job to support their families and feared losing it.
So now, fast forward, 25 years and I feel like I did back then. This is a WAY bigger project, but as MK said, it's the RIGHTONE! This situation is unacceptable and never being one to look the other way while witnessing an injustice, I feel compelled to help promote this life changing (even life saving) information. The challenge is, how to do it?
Anyway, I'll get off my soapbox now. It's nice to discuss with like minded people.
Best,
Peg
In questions of science, the authority of a thousand is not worth the humble reasoning of a single individual. Galileo Galilei |
| pandamonium |
Posted - 02/16/2009 : 04:49:48
Funny you should mention celebrity Peg, I was saying only the other day that if we knew of a celebrity who had had TMS it would be very beneficial to us as a community.
I wish I could attend that conference! |
| Peg |
Posted - 02/15/2009 : 12:03:12
It was not going to be replayed or archived.
Well said mk. You're exactly right. I have spent a lot of time trying to figure out the best ways to promote this information. Unfortunatley this mental effort has not translated into action, probably due to doubt and perfectionism.
I told Dr. Schubiner that I had started to compose a letter to all of the TMS advocates (physicians, mental health professionals, lay people involved in spreading the word) in an attempt to organize the group and combine all of the intelligence, talents and resources. Something held me back from following through.
The idea came to me after seeing a news story about representatives of Haagan Daaz speaking to congress, asking for funding to study the dwindling honey bee population. They explained that everyone should be concerned because the consequences could be less choices of ice cream flavors, or an increase in prices. Now I like ice cream as much as the next guy, but all I could think of was, what's wrong with this picture? We (TMS advocates-physicians, mental health profess, lay people, successful patients) should be asking congress for funding to study the TMS treatment approach. We could even bring a celebrity or two, like the other groups do.
You are so right, it is a difficult challenge, but it's THE RIGHT CHALLENGE and a necessary one.
As a Nurse, I hope to help out as well and am looking forward to the first TMS conference being held in March.
Best,
Peg
In questions of science, the authority of a thousand is not worth the humble reasoning of a single individual. Galileo Galilei |
| pcraider |
Posted - 02/15/2009 : 10:44:20
Do you know if this interview is going to be replayed at all or is available in archive? I missed it both days and would like to hear it if possible. |
| mk6283 |
Posted - 02/14/2009 : 13:52:23
I second that. Dr. Schubiner did a terrific job. He is a tremendous asset to the TMS community. The only way TMS will ever break into mainstream medicine is to have more high-quality research studies of the kind he has been performing. However, there is only so much Dr. Schubiner can do all by himself. Every "enlightened" physician who understands TMS needs to help out. If you're a neurologist, do a TMS study on headaches. If you're an ENT, do a TMS study on tinnitus. If you're a gastroenterologist, do a TMS study on IBS. If you're a urologist, do a TMS study on chronic prostatitis. If you're a family practitioner, do a TMS study on back pain. If you're a psychiatrist/psychologist, collaborate with your colleagues and do a TMS study on your patients with somatoform disorders (etc.). The fact that Dr. Sarno has anecdotally cured over 10,000 patients carries no value in the "real world," especially when so many physicians/surgeons/chiropractors/etc. stand to lose so much money if TMS were to break into the mainstream. It's a difficult challenge, but it's the right challenge and a necessary one. We all need to help out. I know that I intend to...
Best,
MK |
|
|
