| T O P I C R E V I E W |
| Villen |
Posted - 07/14/2008 : 08:56:24
Hi!
I am a norwegian girl suffering from what I now think its TMS. To make a long story short: I have been suffering from anxiety/panic for over 5 years. Started betablockers for my racing heart. Helped back then. Two years ago I was exercising alot and slept too little, started developing pain in the front of my hip/pelvic. Tried every therapy. now I feel worse than ever, with an extreme weak feeling in my legs (esp. the right one with the pain) I have constant pain, tighness and weakness in the right leg, and I wake up every morning with a pounding heart and severe achy legs. When I get out out bed, my legs are stiff, and they burn if I walk up stair. Feels horrible.
I have always been an anxious person, a people pleaser, worrier etc etc
So, I just wondered (after reading many great posts here) can I be sure my problems are due to repressed emotions/anxiety? Why does my legs ache every as son as I open my eyes? Anyone else have weak legs as part of their TMS? Its only the front of my thighs and around the knees that ache and feel weak...does that mean my brain has the nerve going to my legs as a "target"? I have suspect the betablockers to be part of the weakness (its a common side effect) but I didn`t have that the first 3-4 years I was one them)
Anyone else know if POTS (postural orthostatic tachycardia syndrome, which basically means that the heart races a lot when switching positions, standing) can be a TMS symptom as well? The condtiions is linked with fibromyalgia, CFS, which I have understood is the same as TMS. I am suffering alot with this as well, and together with the pain its almost unbearable...as soon as I start to walk my legs are shaking and my heart pounds if doing anything more than just walking around...I also get the pounding heart after eating. especially food containing sugar, wheat. I never suffered with this before, and it seems as if my body is in a hyper mode all the time.
I have been to my GP several times (alot of blood work done, she thinks everything has to do with stress/anxiety and decontioning and lack of strenght in my muscles), endoctrinolgist, neurologist, cardiologist..nothing found (exepct a little high cortisol levels, but that was due to stress of course)They alslo found "antibodies" for lyme disease...but I read Dr Sarnos book, and believe theres no link between that and my symptoms!? My neurlogist didn`t think so either.
Any help or advice would be appreciated!:)
Villen
Villen |
| 5 L A T E S T R E P L I E S (Newest First) |
| mk6283 |
Posted - 07/15/2008 : 14:37:41
I believe in his lecture Dr. Schubiner talks about his experience with the emergence of many new syndromes like interstitial cystitis and POTS in the years since he graduated medical school. Indeed, these new syndromes are "created" all the time and defining/classifying them seems to often do more harm than good. Of course, at this point, there is no way of saying anything with absolute certainty (and I'm sure there may be a rare case or 2 out there somewhere with POTS that can be attributed to some "real" organic process), but in following up patients who have gone through TMS therapy for POTS, some definitely did report improvement in their symptoms.
Best,
MK |
| Villen |
Posted - 07/15/2008 : 00:32:50
Thank you very much for your input.is there any literature where it says that pots can be a part of TMS?it helps just to know that you have heard about this rare syndrome,and that you link it to tms. la kevin,did the heart racing wake you up at night?
Villen |
| la_kevin |
Posted - 07/14/2008 : 23:35:19
POTS has my vote for TMS equal. Though I am not a doctor, I had them a lot when I was in my worst TMS point. Benign but scary. I still have them in sleep a lot.
Oh wow, I still have remnants of TMS going on. :(
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"Life is what happens while you are busy making other plans"- John Lennon |
| mk6283 |
Posted - 07/14/2008 : 22:49:59
POTS is most likely a TMS equivalent.
Best,
MK |
| armchairlinguist |
Posted - 07/14/2008 : 14:00:29
If you have been through the round of docs and they do not think you have anything serious (your GP even thinks it is psychogenic -- that is a BIG clue right there if even a traditional doctor thinks that!), then you have little to lose and everything to gain trying TMS treatment.
Give it a try for a while. No, you cannot be 100% certain until you recover, but you can be 100% committed to changing your behavior and your attitude so that you don't allow the symptoms to distract you from your emotions and your life.
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What were you expecting? |
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