| T O P I C R E V I E W |
| stanfr |
Posted - 07/15/2007 : 22:23:53
I suffer from a mild case of paruresis (shy-bladder) which probably is largely due to being attacked in the boys room in elementary school. This definitely relates to my TMS as well, so out of curiosity i logged on to paruresis.org forum and asked if anyone suffered from psychosomatic problems like sciatica, IBS etc. SOmeone responded that these were not psychosomatic and i should see a physician. I replied that i disagreed and recommended that anyone interested in mindbody to research the subject, read Sarno for a start. I made no personal remarks. Amazingly, i found out the next day that i was banned from the site, my account deleted, and my post removed!  Since paruresis.org supposedly is a non-profit site supposedly dedicated to helping people overcome what they acknowledge is a psychological condition, i was quite surprised. I emailed the site but got no explanation form them. Guess some people really hate Sarno, or are really afraid of him 
Anyhow, just goes to show the truth is a dangerous thing. |
| 16 L A T E S T R E P L I E S (Newest First) |
| sensei adam rostocki |
Posted - 07/16/2007 : 17:37:35
Come on Shawn, Give me a little credit... Of course I went into great detail including personal case studies I did, with the actual patient's contact info for her to check out. I am always abundantly clear in my definitions of all things psychosomatic. That is not the point, as I think you must know...
The point is that some people DO NOT want to get better. They want to hang on to the diagnosis and scapegoat condition for their misery. Suggesting anything that is beyond their expectations is scary since it gives them real hope to be well. Not everyone actually wants to be well, ya know...
CURE-BACK-PAIN(dot)ORG |
| stanfr |
Posted - 07/16/2007 : 17:16:40
Hey Stryder, thanks for that info! I went back and took another look at the site, and noticed that pretty much everything on it is passed through Soifer. All the support groups and outside links are to people who were required to have attended one of his lectures. According to their 2005 financial report they pulled in about $120K last year from grants and donations. It does seem like the whole thing is designed to enrich Soiffer, so i guess he viewed the info i was giving out as a threat. Well, at least now i know it wasn't my abrasive personality!  |
| Stryder |
Posted - 07/16/2007 : 15:05:46
The site is registered to Steven Soifer, Ph.D., who is the association's president and apparantly on the staff of the University of Maryland at Baltimore. He is using the web site to hawk his book. No wonder your heresy was purged. Details below. -Stryder
-----
http://www.paruresis.org/
International Paruresis Association
PO Box 65111
Baltimore, MD 21209
1-800-247-3864
The Shy Bladder Syndrome : Your Step-By-Step Guide to Overcoming Paruresis Steven Soifer, Ph.D., LGSW The definitive book on paruresis by Steven Soifer, Ph. D. - IPA President and other experts in the field. You can purchase the book by clicking the hypertext next to the image.
----
Domain ID:D24427737-LROR
Domain Name:PARURESIS.ORG
Created On:07-Apr-2000 20:18:24 UTC
Last Updated On:05-Apr-2007 08:59:31 UTC
Expiration Date:07-Apr-2009 20:18:24 UTC
Sponsoring Registrar:Melbourne IT, Ltd. dba Internet Names Worldwide (R52-LROR)
Status:OK
Registrant ID:10686274903240
Registrant Name:IPA
Registrant Street1:PO box 26225
Registrant Street2:
Registrant Street3:
Registrant City:Baltimoe
Registrant State/Province:MD
Registrant Postal Code:21210
Registrant Country:US
Registrant Phone:+99.999999999999
Registrant Phone Ext.:
Registrant FAX:
Registrant FAX Ext.:
Registrant Email:ssoifer@ssw.umaryland.edu
Admin ID:10686274906960
Admin Name:Steve Soifer
Admin Street1:PO box 26225
Admin Street2:
Admin Street3:
Admin City:Baltimoe
Admin State/Province:MD
Admin Postal Code:21210
Admin Country:US
Admin Phone:+1.18002473864
Admin Phone Ext.:
Admin FAX:
Admin FAX Ext.:
Admin Email:ssoifer@ssw.umaryland.edu
Tech ID:10686274913400
Tech Name:Steve Soifer
Tech Street1:PO box 26225
Tech Street2:
Tech Street3:
Tech City:Baltimoe
Tech State/Province:MD
Tech Postal Code:21210
Tech Country:US
Tech Phone:+1.18002473864
Tech Phone Ext.:
Tech FAX:
Tech FAX Ext.:
Tech Email:ssoifer@ssw.umaryland.edu
Name Server:NS1.SECURE.NET
Name Server:NS2.SECURE.NET
/// |
| Gemma_Louise |
Posted - 07/16/2007 : 14:42:25
This is pretty interesting. I haven't come across this kind of opposition to TMS yet, but then I don't really talk about it to anyone other than on here. I guess a part of me knows that the reaction I would get from a lot of people wouldn't be good! I'm relieved that I was open to the idea of TMS right from first hearing about it. I feel sorry for people who are suffering in pain and will never accept TMS, as they might never obtain any relief. |
| JohnD |
Posted - 07/16/2007 : 13:51:34
I remember once a few years ago I went on a backpain board and had "the nerve" to say that Sarno's work could help them as well as those who have other tendonitis's, joint pains etc...And everyone there was totally offended and they all posted very nasty messages about me, accusing me of getting a kickback for promoting Sarno's work lol |
| h2oskier25 |
Posted - 07/16/2007 : 13:39:08
quote:
Originally posted by shawnsmith
Did you tell her that there is no stigma attached to having a psychosomatic condition? Did you properly define psychosomatic for her? Some people see the term psychosomatic as an accusation that the suffering is all in their head.
Wow, Shawn. Well said. I think that's so true. I remember how I felt when people suggested that to me. I was adamant. It was like they were saying "well, you CAN just stop your pain, so why DON'T you?", and that was so invalidating !!
Any RSI site that has decided to rule out all but the "scientifically proven" cures, ought to concentrate on proving scientifically why some people can type all day in very un-ergonomic conditions and never get pain, and other can't.
Funny. The causes are not scientific, but the cures have to be.
That's illogical enough to be something the government would say !! 
Beth |
| Dave |
Posted - 07/16/2007 : 11:25:26
These kinds of sites perpetuate the distraction by providing a community of users who can relate to each other because they suffer from an ailment that is "misunderstood" by the medical community. Similar sites exist for fibromyalgia and other TMS equivalents.
The personality type who seeks this kind of forum is often the type who simply cannot accept the TMS diagnosis. They find it insulting when it is suggested that they do not suffer from a "real" medical condition. Those who don't have an open mind, nor take the time to read Sarno, can never grasp the TMS concept, and assume that it means the problem is "all in the head" and this somehow weakens them.
Paruresis is certainly a TMS equivalent. |
| shawnsmith |
Posted - 07/16/2007 : 11:21:37
quote:
Originally posted by sensei adam rostocki
In the course of gaining link partners for my site, I corresponded with a woman who runs a very well known and popular Irritable Bowel Syndrome (IBS) site. She refused to consider a link exchange or any further correspondence since I had written a article proclaiming many cases (not all) of IBS to be a psychosomatic condition and TMS equivalent.
Did you tell her that many people have recovered from IBS using Sarno's methods? Did you tell her that there is no stigma attached to having a psychosomatic condition? Did you properly define psychosomatic for her? Some people see the term psychosomatic as an accusation that the suffering is all in their head.
*******
Sarno-ize it!
Read chapter 4 of Dr. Sarno's "The Divided Mind." It's all you need to know in order to recover. |
| ralphyde |
Posted - 07/16/2007 : 11:16:27
Yes, I've been doing work on Wikipedia for over a year now, trying to keep the links to Dr. Sarno, TMS, etc., reflecting accurate cited information, but there are constantly skeptics who say that it is not scientifically proven, and try to disparage it. Recently in the RSI area, someone is trying to get rid of all but "scientifically proven" treatments. The arguments are in the discussion sections of the topics. It's quite frustrating to try and deal with, a constant battle with the skeptics (like John Stossel's brother).
Ralph |
| h2oskier25 |
Posted - 07/16/2007 : 09:54:39
quote:
Originally posted by stanfr
Weatherman--i hadnt thought of that, they're probably funded by physical therapists or back surgeons! Congrats on gettin off the meds, veg!
You guys are so naive. 
They're no doubt funded by big Pharma, who can have as many ".org" sites as they want, and therefore appear to be non-profit, and hide there agenda. I bet there's lots of talk about drugs one can take for that condition. |
| sensei adam rostocki |
Posted - 07/16/2007 : 09:33:30
In the course of gaining link partners for my site, I corresponded with a woman who runs a very well known and popular Irritable Bowel Syndrome (IBS) site. She refused to consider a link exchange or any further correspondence since I had written a article proclaiming many cases (not all) of IBS to be a psychosomatic condition and TMS equivalent. I explained to her that she has suffered for many years and still has not found relief, just like many of her readers. Maybe the reason she has never healed was because she could not accept that her condition might possibly be psychosomatic. She refused to even listen to the argument and flat out cut off correspondence. She did not care at all that the information on her site should be objective if it will help some of her readers. She obviously suffered from a severe case of psychological symptom stigma and considered the mere idea of her pain being psychosomatic a huge insult. Just goes to show that TMS has a long way to go before it gains popular acceptance. – Sensei
CURE-BACK-PAIN(dot)ORG |
| shawnsmith |
Posted - 07/16/2007 : 06:15:13
Dean Ornish, MD also talks about the stiff resistance in the medical community towards his groundbreaking work even though he cites dozens of highly scientific academic studies backing up what he says. For details, see his book "Love and Survival: The Scientific Basis for the Healing Power of Intimacy," and especially chapter 2.
*******
Sarno-ize it!
Read chapter 4 of Dr. Sarno's "The Divided Mind." It's all you need to know in order to recover. |
| vegomatic |
Posted - 07/16/2007 : 00:30:19
Thanks stanfr.
I once assisted organizing a dinner party at a very upscale restaurant. The party was thrown by a drug company and consisted of a free, expensive and great tasting three course meal.
Their guests? A lot of psychiatrists summoned to listen to a presentation on the benefits of certain drugs in the treatment of anxiety and depression. The guest speaker was a psychiatrist from a very prominent university. Lovely. Lured by a free meal. I listened to the whole presentation biting my lower lip. How's that for a source of rage?  |
| stanfr |
Posted - 07/15/2007 : 23:53:20
Weatherman--i hadnt thought of that, they're probably funded by physical therapists or back surgeons! Congrats on gettin off the meds, veg! |
| vegomatic |
Posted - 07/15/2007 : 23:25:56
My old psychiatrist lambasted me personally when I mentioned I will start using Sarno's techniques to rid me of depression. I don't see this Doctor anymore. So there is defintely resentment present. You are not alone my friend.
My old shrink's techniques included prescribing anti-depressants after our first session. I used Sarno's methods to get off of the pills and have been "med" free for a while now. |
| weatherman |
Posted - 07/15/2007 : 23:21:42
Makes you wonder what they're afraid of, and who's funding them. Pretty paranoid to say the least.
Weatherman
"Good judgement comes from experience. Experience comes from bad judgement." |
